Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lupus And Celiac Disease?


Asimmonds92

Recommended Posts

Asimmonds92 Newbie

I'm 18 and I have Celiac Disease. At first being on a gluten free diet totally cleared up my symptoms, everything was dandy.

But now I keep going back through phases of exhaustion, muscle aches, and brain fog. A lot of times they're happening when I'm 99% sure I'm not eating any gluten at all. Then last week I broke out into a weird rash that looked like dermatitis. It's nearly gone now.

I guess what I'm asking is, is there a chance that I could have Lupus as well? I know that lupus is less likely in males, but I haven't found any studies relating to gender in patients who already have an autoimmune disease.

At this point I'm feeling pretty desperate, so any thoughts you have would help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Welcome to the board, and do not be undully alarmed :o Your rash could have several different origins. It could be the skin form of celiac, dermatitis herpetiformis. This is activated by iodine in addition to gluten, so if you had gotten a heavy dose of salt, for example, that could have set it off. Do a google for foods containing iodine - things like eggs, asparagus, may surprise you, and avoid them for a while. Or the rash could be another food intolerance, which is quite common in celiacfs, pushing its way to the surface and finally being heard after the gluten has been expelled. Or it could be unrelated to either of those, but it is probably food related. Many of us have mysterious rashes until we find out what is causing them. I had rashes for a good 18 months until I find out all their sources.

Quick question: what kind of rash? Was it bumpy and/or pustular, did it have little white heads or was it a straight sheet kind of rash?

Asimmonds92 Newbie

Welcome to the board, and do not be undully alarmed :o Your rash could have several different origins. It could be the skin form of celiac, dermatitis herpetiformis. This is activated by iodine in addition to gluten, so if you had gotten a heavy dose of salt, for example, that could have set it off. Do a google for foods containing iodine - things like eggs, asparagus, may surprise you, and avoid them for a while. Or the rash could be another food intolerance, which is quite common in celiacfs, pushing its way to the surface and finally being heard after the gluten has been expelled. Or it could be unrelated to either of those, but it is probably food related. Many of us have mysterious rashes until we find out what is causing them. I had rashes for a good 18 months until I find out all their sources.

Quick question: what kind of rash? Was it bumpy and/or pustular, did it have little white heads or was it a straight sheet kind of rash?

Interesting, I had never heard about the iodine thing!

It was bumpy with a few white heads in it. It formed in patches that spread.

mushroom Proficient

DH is usuallly intensely itchy/stinging, and can leave residual scarring. It often has the white heads that become blisters that burst leaking clear fluid. But it does manifest in different ways, most of which will drive you nuts wanting to scratch them. :blink:

Asimmonds92 Newbie

Ha, definitely itched like crazy! If I get it again, I'll let my doctor take a look at it. I've read that it can be biopsied and confirmed, so that will probably be the next step! Thanks for your help!!

domesticactivist Collaborator

Make sure that your doctor biopsies the clear skin just next to the rash, not the bumps themselves!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Teaganwhowantsanexpltion posted a topic in Introduce Yourself / Share Stuff
      0

      A little about me and my celiac disease

    2. - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    3. - Paulyw commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    4. - xxnonamexx posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Healthy Gluten Free Foods low sugar that you found?

    5. - Jmartes71 replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,232
    • Most Online (within 30 mins)
      7,748

    Melvin McDowell
    Newest Member
    Melvin McDowell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Teaganwhowantsanexpltion
      I was diagnosed at 6 after having severe stomach pain after eating white bread or any kind of gluten my sister had one done aswell I was scared for the biopsy but thats bc the gas mask thing but now that I am a 14yr old female struggling with severe chronic pain making my body ache for no reason making it hard to sleep and do the things I love like playing spot which I love to do but I can sometimes not even be able to walk bc my knees hurt so bad I can or my hips or back the only think I wish for is to be a normal kid which I can't even be and I get accused of faking pain bc there is no physical things to notice especially at school when one day it will be so sore im limping the next im walking perfectly fine idk if its all from celiac disease but im the only one in my family that has this problem 
    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.