Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Does The Reaction Linger So Long

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celtic Queen Explorer
Celtic Queen
Posted

I don't know why it's so drawn out, but I have the same problem. It takes me 10 days to 2 weeks to get it all out of my system. That's more frustrating to me than staying on the diet. I have no problem not eating gluten, but I get so frustrated when I get glutened by accident and know that's two weeks of my life that I'll feel bad.

Maybe that's how long it takes for it to get out of your intestines and blood?

Leper Messiah Apprentice
Leper Messiah
Posted

Yeah me neither although I'd be delighted to know what's going on over the 2/2.5 weeks I get nailed. All I know is that it makes me really really tired!!

I also get frustrated when I get glutenned especially when I try so hard to avoid it. I guess you just have to be wary of everything and anything that touches your lips.

blueshabooMoon Apprentice
blueshabooMoon
Posted

I am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?

Thanks!

Thanksfoe posting about this, I follow strictest gluten free eating and I know I have been gluttened somehow, had 13 days chronic Diarhea, cannot leave house, cannot go up to hospital see my new born grandson, am reduced tears and I never cry. Feels like 7 months ago before celiac diagnosis, scares me that I will relaspe get wrdsw worse again.I am going to live on chicken broth, roast chicken, gluten free yogurt, blandest foods see if I can pull myself out of this nightmare. Terrilynne

Macbre Explorer
Macbre
Posted

I am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?

Thanks!

I don't know why it last so long either, but I did try something different the last time I was accidently glutened. Even though I felt horrible and had absolutely no energy and my joints ached...I made myself exercise....I have to say that I sweated more than usual but I felt better afterwards and my symptoms didn't last as long. I guess sweating is kind of like a detox for your body. I know most people will think there is NO WAY they can exercise when they feel so bad, but I think it helps. I didn't leave the house because I knew I couldn't get too far from the bathroom, so I popped a workout disk in and and suffered through it. I told my husband that no matter how sick I get in the future with accidental glutenings that I want him to encourage me to exercise because it definitly made a difference.

bartfull Rising Star
bartfull
Posted

I don't know if it will work for gluten (probably not), but a friend suggested I drink a glass of water with 1/4 to 1/2 teaspoon of baking soda to get the salicylates out of my body. I looked it up, and it IS suggested for metal poisoning, AND for salicylates.

That's probably why it WON'T work for gluten though - heavy metals are somehow bound in the baking soda and excreted. And for the salicylates, well, those are an acid, and I guess the baking soda neutralizes them.

Just a stab in the dark. Who knows, maybe it WILL work on gluten, and it can't hurt.

DerpTyler Newbie
DerpTyler
Posted

Holy crap I feel for you guys, my symptoms(Diarhea) usually only last about an hr if I have a little bit of gluten accidentally.

also when I was undiagnosed but still having bad stomach pains my doctor gave me some pills to take when I was having problems and they actually helped and stopped the cramps within 15mins, not sure what they were called though sorry.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

I checked out a book on AI diseases about 2 years ago. I can't attribute the author, but she said a good soak with a mixture of epsom salts and baking soda (I believe two cups of the former and 1 cup of the latter) was really good as a detox soak. I personally like to add pepperment oil.

The soak has never hurt me, and has made me feel better than I felt before, so I thought I'd post. You should use water as hot as you can stand to soak in. I'm not a freak, but the book said you should lay in the hot bath and visualize the toxins being soaked out of your body. I can do that. I'm not sure if it helps (the visualization thing), but it's worth giving it a whirl when times are tough.

tarnalberry Community Regular
tarnalberry
Posted

I am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?

Thanks!

I don't have the source to cite for you at the moment, but when I last looked up the reasearch, the chemical reaction that causes intestinal damage is somewhat self-sustaining in the intestines - it requires gluten to trigger it, but it can propel itself for some time after that. It lasts generally up to two weeks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748
    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.