Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grains, Legumes, Nuts, And Seeds


RiceGuy

Recommended Posts

RiceGuy Collaborator

Hi everyone. I have a few questions for those who avoid grains, legumes, nuts, and seeds. Especially if you have noticeable symptoms if you ingest some, even a trace.

For those who cannot eat (or just avoid) legumes, does this include: coffee, cocoa, chocolate, carob, mesquite, guar gum, green peas, and green beans? Does it also include soybean oil?

For those who cannot eat (or just avoid) nuts, does this include: almond, Open Original Shared Link, and coconut? Does it also include the oils from nuts, such as walnut oil, macadamia nut oil, peanut oil, and coconut oil?

For those who cannot eat (or just avoid) seeds, does this include: black pepper, celery seed, caraway, cumin, fennel, mustard, and all other spices derived from seeds? Does it also include oils from seeds, such as sesame, safflower, sunflower, etc?

For those who cannot eat (or just avoid) grains, does this include: amaranth, buckwheat, and quinoa, as these are not "true" grains like wheat, rice, corn, sorghum, and so forth. Do you find it necessary to use corn-free xanthan gum (the microbes which produce it are typically fed corn, though not always). Also, sugar cane is in the grass family, which is where the "true" grains come from. So if you must avoid all grains, do you also have to avoid regular cane sugar?

Now for perhaps the trickiest one of all: Vanilla. Real vanilla comes from a bean-like pod which grows from an orchid (from what I've read, it is the only orchid known to produce something edible). Inside the vanilla "bean" there are some 60,000 teeny tiny seeds. So is vanilla from a bean, a seed, a flower, a vine, or something else? Does anyone find it necessary to avoid vanilla?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi Rice Guy: I am one who avoids some of all of these. Since I suspect that lectins are responsible for my avoidance my reactions may be different from others.

Legumes: - Consume decaf coffee about once a week in a cappuchino; cocoa, chocolate, guar gum. Avoid green peas and beans, soy bean oil, carob

Nuts - Consume almond, cashew and coconut. Avoid peanuts and the oil

Seeds - Consume them all but not in huge amounts. Chia and sesame in muesli, e.g. Avoid safflower and sunflower oil as much as possible on advice of a nutritionist

Grains - Consume most grains, including xanthum gum and cane sugar. Avoid Amaranth, quinoa

Vanilla - Momma, don't take my vanilla beans away :rolleyes: - I don't care what it is except yum!

missy'smom Collaborator

Lots of good questions. The foods that I avoid are all based on allergy skin testing and elimination/challenge of the foods. I included my comments in bold in the quote of your post below.

Hi everyone. I have a few questions for those who avoid grains, legumes, nuts, and seeds. Especially if you have noticeable symptoms if you ingest some, even a trace.

For those who cannot eat (or just avoid) legumes, does this include: coffee, cocoa, chocolate, carob, mesquite, guar gum, green peas, and green beans? Does it also include soybean oil? I tested pos. for legumes.

I avoided all "beans" but no green beans and chocolate and green peas and soy as these were all separate tests. Of those others, the only one I tested pos. to was soy. Back to the beans. After avoiding for 2 years I recently re-introduced chickpeas with no problems. I have those on a 4 day rotation to avoid repeat problems, which has happend in the past with other foods. I plan to try some other variety of beans in the future. Don't happen to drink coffee or eat carob. I became allergic to chocolate a while back so will be avoiding for a good long while. After 2 years avoidance I have not tried re-introducing soy in any form. Don't know if I will. Soy is a cross-reactor to latex and I am quite latex allergic. Allergist said "be careful" with soy. Tried a bit of oil a couple days in a row and got some odd patches show up on my skin so I am avoiding oil as well.

For those who cannot eat (or just avoid) nuts, does this include: almond, Open Original Shared Link, and coconut? Does it also include the oils from nuts, such as walnut oil, macadamia nut oil, peanut oil, and coconut oil?

I was doing fine with nuts and initially not pos. but started a low-carb diet and started eating more and became allergic to almonds(almond meal baking;))I did have problems earlier on with cashews and tested pos. on repeat testing. So far so good with coconut but occasionally I wonder, however I don't eat it often so am ok. The nut oils...I don't try them. Don't know. My son is mildly peanut allergic and I tested pos. for peanuts on my initial tests so as a family we avoid the oil. With almonds I tried re-introducing after a long avoidance and seemed to be ok with occasional consumption but it turned on me suddenly and I ended up with lung function issues and burning tongue, stomach etc. So no almond oil and almonds are out for good. I may consider trying pecans and walnuts again but with the almond problems I am avoiding all nuts and oils for now.

For those who cannot eat (or just avoid) seeds, does this include: black pepper, celery seed, caraway, cumin, fennel, mustard, and all other spices derived from seeds? Does it also include oils from seeds, such as sesame, safflower, sunflower, etc?

I had not thought of the seeds as including all those. Interesting. Black pepper test was pos. Haven't noticed problems just trying not to use it everyday. Cumin was also pos. Haven't tried re-introducing yet. Mustard was pos. and gave me problems with re-introduction the first time so I haven't tried again after another long avoidance. It's also listed as a latex cross-reactor and I was still showing pos. on the 2nd round of tests even after 1 year avoidance. Just recently ditched sunflower-even the oil and feel much better and symptoms cleared up so it clearly was bothering me.

For those who cannot eat (or just avoid) grains, does this include: amaranth, buckwheat, and quinoa, as these are not "true" grains like wheat, rice, corn, sorghum, and so forth. Do you find it necessary to use corn-free xanthan gum (the microbes which produce it are typically fed corn, though not always). Also, sugar cane is in the grass family, which is where the "true" grains come from. So if you must avoid all grains, do you also have to avoid regular cane sugar?

Buckwheat is a problem for me, again it's a latex-cross-reactor. Some of these things I am not yet sure if they bother me because of the latex or some other reason. A few more years may clarify that.

Now for perhaps the trickiest one of all: Vanilla. Real vanilla comes from a bean-like pod which grows from an orchid (from what I've read, it is the only orchid known to produce something edible). Inside the vanilla "bean" there are some 60,000 teeny tiny seeds. So is vanilla from a bean, a seed, a flower, a vine, or something else? Does anyone find it necessary to avoid vanilla?

Marilyn R Community Regular

Hi Riceguy,

I can tolerate most of the foods you mentioned in your posts if I don't overindulge. (For instance, I'll have a tablespoon of nuts for a snack every other day, or sunflower seeds on a salad a couple of times a trace amount of soy lecithen. Anything else with soy (like vegetable oil, mayo, tuna fish, most processed foods, even gluten-free processed foods, alternative milks, etc.) are out.

Coconut isn't in the nut family. It's in the palm family. I've never had a problem with coconut milk or oil. (I used to hate that dried coconut in a plastic bag when I was a child, and still despise it.) So rest easy about coconut products. I like the coconut aminos as an alternative to soy sauce (health food store find).

I think the vanilla is ok if you're getting pure, fermented vanilla, but that's just armchair advice.

missy'smom Collaborator

I'll add the when I ditched sunflower recently I also ditched stevia(Truvia). It had been bothing me for while but I couldn't figure out why until I googled it and it is in the sunflower family. Mystery solved.

RiceGuy Collaborator

I'll add the when I ditched sunflower recently I also ditched stevia(Truvia). It had been bothing me for while but I couldn't figure out why until I googled it and it is in the sunflower family. Mystery solved.

Interesting, that even with such purity, whatever component(s) bothers you is still detectable by the body. However, I will point out that Truvia has other questionable ingredients. It contains erythritol, a sugar-alcohol derived from corn. It also has "natural flavors", which of course says nothing about from what they are derived.

But if it was the Stevia extract itself which you reacted to because it is in the chrysanthemum family, then I wonder if you also cannot eat lettuce, globe artichoke, Jerusalem artichoke, shungiku (edible chrysanthemum), endive, escarole, chicory, cardoon, scorzonera, or salsify. Then there is ragweed, which is also in the same family.

Incidentally, have you ever tried Simply-Stevia made by Stevita? It has the highest purity of any Stevia extract I know of, and has no other ingredients whatsoever. It's also made in Brazil, not China like all other brands I've been able to verify.

I find it fascinating and amazing, how the immune system can detect the presence of such minuscule levels of things. Although it can also be very frustrating too!

missy'smom Collaborator

Riceguy,

I don't have problems with the other things you mention, as far as I know and with which things of those that I consume but the ones I do are not all that often. I put the sunflower puzzle together after ditching 3 things that bothered me. They were ditched one at a time over a period of time, without knowing why, other than they bothered me. The latest being a salad dressing with sunflower oil. The one before that was Earthbalance soy-free which has sunflower lecitin and the first was Truvia. I haven't tried the pure form of stevia. That salad dressing had me looking back at the others and realizing that there was a connection and it was sunflower. I would not have thought I was sensitive on that level.

I have lost more than one member of a food family before but not always. For exemple I am now allergic to broccoli, brussel sprouts and califlower but am still ok with cabbage. However those first 3 were staples of my diet for a long time and I consumed them more often and in greater quantity than cabbage. As a bit of insureance against losing cabbage, it is now on a 4 day rotation. Not more than once in 4 days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I avoid all those things unless I grow them myself or source them very carefully. I am super sensitive to cc. I don't have food allergies to any of them that I know of.

RiceGuy Collaborator

Riceguy,

I don't have problems with the other things you mention, as far as I know and with which things of those that I consume but the ones I do are not all that often. I put the sunflower puzzle together after ditching 3 things that bothered me. They were ditched one at a time over a period of time, without knowing why, other than they bothered me. The latest being a salad dressing with sunflower oil. The one before that was Earthbalance soy-free which has sunflower lecitin and the first was Truvia. I haven't tried the pure form of stevia. That salad dressing had me looking back at the others and realizing that there was a connection and it was sunflower. I would not have thought I was sensitive on that level.

I have lost more than one member of a food family before but not always. For exemple I am now allergic to broccoli, brussel sprouts and califlower but am still ok with cabbage. However those first 3 were staples of my diet for a long time and I consumed them more often and in greater quantity than cabbage. As a bit of insureance against losing cabbage, it is now on a 4 day rotation. Not more than once in 4 days.

Sounds like the common culprit is sunflower specifically, not the other members of that same botanical family. So if it were me, I'd be thinking that the Truvia's "natural flavors" more likely contains something specifically from sunflower. Though companies are usually very secretive about stuff like that, I suppose they should at least tell you yes or no to a sunflower-derived ingredient. Or, if the symptoms aren't too uncomfortable, I'd try the pure Stevia extract and confirm it that way.

I'm reminded of when I found I was reacting to celery seed. After researching it, I found that there are in fact two different plants used for the spice. One is the common vegetable, which is the source of the whole celery seed. The other is apparently a plant actually named "Celery Seed", because it tastes like it, and the leaves are used to make ground celery seed. I can eat the seeds from true celery, but not the other one.

T.H. Community Regular

For those who cannot eat (or just avoid) legumes, does this include: coffee, cocoa, chocolate, carob, mesquite, guar gum, green peas, and green beans? Does it also include soybean oil?

I test positive on allergy tests to navy/white beans and soy, and have reacted with a mild allergic reaction to carob beans, guar gum, green peas, and green beans, yes. Soybean oil has been a problem, although the reaction was very mild. I don't react to mesquite beans (and a couple other regular legumes), but do react to another legume often found in the same part of the country as mesquite: palo verde beans. Also, sennakot is a legume based laxative that I react to, as well.

Coffee beans and cocoa beans are actually not legumes, although funnily enough, I'm allergic to coffee, too. :D

For those who cannot eat (or just avoid) grains, does this include: amaranth, buckwheat, and quinoa, as these are not "true" grains like wheat, rice, corn, sorghum, and so forth. Do you find it necessary to use corn-free xanthan gum (the microbes which produce it are typically fed corn, though not always). Also, sugar cane is in the grass family, which is where the "true" grains come from. So if you must avoid all grains, do you also have to avoid regular cane sugar?

RiceGuy Collaborator

I test positive on allergy tests to navy/white beans and soy, and have reacted with a mild allergic reaction to carob beans, guar gum, green peas, and green beans, yes. Soybean oil has been a problem, although the reaction was very mild. I don't react to mesquite beans (and a couple other regular legumes), but do react to another legume often found in the same part of the country as mesquite: palo verde beans. Also, sennakot is a legume based laxative that I react to, as well.

Coffee beans and cocoa beans are actually not legumes, although funnily enough, I'm allergic to coffee, too. :D

I react very badly to low level gluten cc and always get a gluten cc reaction to all grains and pseudo grains I've tried, I'm assuming due to processing. It's a strong enough reaction that it's been hard to tell if I react allergically, too. I am mildly allergic to wheat, I am oat sensitive, and I am definitely allergic to sugar cane - the latter gives me an unpleasant enough reaction it's very obvious when I get some.

I've been trying to grow my own grains and near-grains to test out if I react to low level gluten cc AND the grains themselves, and so far amaranth and quinoa seem to be completely fine, if I grow them myself. My corn crop bit the dust, so I have to try that again next year. I haven't tried bamboo, yet, but that's in the grass family as well so I've wondered if it might be an issue.

I do react to xanthan gum (I also have trouble with citric acid, lactic acid, and dextrose from corn). I have looked for corn-free xanthan gum, but haven't found any yet. I have found xanthan gum that claimed to be corn free, but after research, it turns out that it was still fed with corn, just processed to a point that they considered it to be 'corn free.' If you have ever found an actual corn-free xanthan gum, I'd really love to hear about it! Been looking!

Very interesting. If you're looking for a truly gluten-free buckwheat flour, the only one I know of is from Open Original Shared Link. Buckwheat is the only thing they grow, and the only thing they mill. It's the only one I've not had any trouble with. As for corn-free xanthan, that's a tough one. Corn is such a cheap grain, in part because the US typically has a huge surplus of it. I haven't done much searching for xanthan, so I don't know if a corn-free one is actually available. Some sites list the one from Authentic Foods as corn-free, but it doesn't make that claim on the label from what I can tell. The first company which comes to mind is Open Original Shared Link. I haven't checked to see if they sell xanthan directly, but if not, they might be able to tell you where to obtain it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    2. - trents replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    5. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
    • knitty kitty
      Oh, my dear!  Get off that Fairlife chocolate protein shake!  That's got milk in it!  Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  If the villi grow back, they can resume making lactase again.   I react to casein and lactose both.  I get sores in my mouth and coated tongue, and inflammation, my Dermatitis Herpetiformis flares up, I get cold sores or shingles, and TMJ pain, well, joint pain in general, and my brain health is really affected, depression and anxiety.  So dairy is a really scary horror movie.     I take Benfotiamine and Thiamine TTFD  (tetrahydrofurfuryl disulfide).  These have anti-viral properties.   I've had chicken pox/shingles, and I also harbor the cold sore herpes virus which traveled to one eye through a nerve. It's broken now.  I had really bad nerve pain in my check at the time, then it turned into Bell's Palsy.  Thiamine TTFD helped clear up the dysphagia I was also experiencing then.  I took lots of Lysine to fight the herpes viruses as well.  Between the Thiamine TTFD and the Lysine, and avoiding dairy, mine stays dormant for the most part.   I also take a B Complex, and Magnesium Threonate to help the Thiamine TTFD work, Vitamin C, Vitamins A and D, and Zinc supplements to help Thiamine TTFD fight off those viruses. I have Sjogren's so I understand dry eye and mouth.  I found including Omega Threes, healthy fats, improved my problem.  You know how oil floats on top of water?  That's going on in our body, too.  Flaxseed oil supplements, and flaxseed oil to use on food is one way I increased my Omega Threes.  Choline and sunflower seed oil supplements are other choices I've tried.  Eat real food!  Eat fresh vegetables and fruit!  I had cooked stew in a crockpot until super mushy so I could chew and swallow it without lots of pain.  I got a bag of mandarin oranges, Cuties, whatever they're called now.  They're not too acidic.  Gluten free crackers don't have any nutritional value, no vitamins.   I followed the low histamine version of the Autoimmune Protocol Diet.  The book The Paleo Approach by Dr. Sarah Ballantyne has been most helpful.  She's a Celiac herself, and the diet has been shown to improve intestinal health. I have seen liquid vitamins on line.  Thiamine TTFD comes in a capsule, but tastes really strongly of garlic, so be prepared if your Gatorade tastes funny.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.