Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is A Change In Reaction To Gluten Possible


Richie1

Recommended Posts

Richie1 Rookie

Hi everyone just looking for help .......After being gluten free for about 5 weeks i was getting to feel a lot better acid reflux had lessened,bloating was almost gone stomach cramps were few and far between and constipation was getting better, but went to a dinner party last week and although our friends had made every effort for me i am pretty sure i got glutened.....

Since then my constipation is back but I have been extremely fatigued all week with a really fuzzy head, chest tightness and an almost uncontrollable hunger along with stomach cramps again .....This week i have felt worse than ever is it possible that your symptoms change or get worse really confused

Thanks

Rich


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Welcome Rich, and yes, it is indeed possible, especiallly after we hve been gluten free for a while and the body has had a rest from fighting gluten. Symptoms often become worse with the reintroduction of gluten which is why so few make it through a gluten challenge for testing - the pain is just intolerable. Your friends may well have used all gluten free ingredients, but their cookware was probably contaminated with gluten, so you have been what we refer to as cross-contaminated. I am sorry you are feeling so bad and hope you get to feeling better soon. A glutening can last for a couple of weeks in some people. :(

IrishHeart Veteran

They are probably not getting worse. You noticed them going away right?...and now, they are back. Sorry, hon! Unfortunately, the healing process is an up and down road. If you are OFF gluten and feel better, when you get hit, you feel worse.

It is quite possible you were glutened. :blink:

Even well-meaning friends (whose kitchens are NOT gluten-free) cannot avoid cross-contamination.(CC) A cutting board, a strainer, maybe a knife that cut bread was CCed?? My sister tried valiantly to make me my own turkey last year, but (without thinking) basted the stuffed one and mine with the same baster ALL DAY LONG :rolleyes:

I did not find out until I helped wash dishes and could only find one baster. She felt so bad. How could she know? I was newly Dxed and had only schooled her in the big points of living gluten-free. The next few weeks were not so great! <_<

We both learned a valuable lesson.

Drink a lot of water and know it's going to pass in a week or so. (Takes me longer, but that's just Me :rolleyes: )

Sorry you got "hit". If you are newly DXed, try to avoid dairy and take some probiotics.

You'll be okay. :)

Best wishes!

***Edited to add: I see "Shroomie" and I were posting simultaneously!! :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,163
    • Most Online (within 30 mins)
      7,748

    Carolyn harkless
    Newest Member
    Carolyn harkless
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.