Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is A Change In Reaction To Gluten Possible


Richie1

Recommended Posts

Richie1 Rookie

Hi everyone just looking for help .......After being gluten free for about 5 weeks i was getting to feel a lot better acid reflux had lessened,bloating was almost gone stomach cramps were few and far between and constipation was getting better, but went to a dinner party last week and although our friends had made every effort for me i am pretty sure i got glutened.....

Since then my constipation is back but I have been extremely fatigued all week with a really fuzzy head, chest tightness and an almost uncontrollable hunger along with stomach cramps again .....This week i have felt worse than ever is it possible that your symptoms change or get worse really confused

Thanks

Rich


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Welcome Rich, and yes, it is indeed possible, especiallly after we hve been gluten free for a while and the body has had a rest from fighting gluten. Symptoms often become worse with the reintroduction of gluten which is why so few make it through a gluten challenge for testing - the pain is just intolerable. Your friends may well have used all gluten free ingredients, but their cookware was probably contaminated with gluten, so you have been what we refer to as cross-contaminated. I am sorry you are feeling so bad and hope you get to feeling better soon. A glutening can last for a couple of weeks in some people. :(

IrishHeart Veteran

They are probably not getting worse. You noticed them going away right?...and now, they are back. Sorry, hon! Unfortunately, the healing process is an up and down road. If you are OFF gluten and feel better, when you get hit, you feel worse.

It is quite possible you were glutened. :blink:

Even well-meaning friends (whose kitchens are NOT gluten-free) cannot avoid cross-contamination.(CC) A cutting board, a strainer, maybe a knife that cut bread was CCed?? My sister tried valiantly to make me my own turkey last year, but (without thinking) basted the stuffed one and mine with the same baster ALL DAY LONG :rolleyes:

I did not find out until I helped wash dishes and could only find one baster. She felt so bad. How could she know? I was newly Dxed and had only schooled her in the big points of living gluten-free. The next few weeks were not so great! <_<

We both learned a valuable lesson.

Drink a lot of water and know it's going to pass in a week or so. (Takes me longer, but that's just Me :rolleyes: )

Sorry you got "hit". If you are newly DXed, try to avoid dairy and take some probiotics.

You'll be okay. :)

Best wishes!

***Edited to add: I see "Shroomie" and I were posting simultaneously!! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    5. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,211
    • Most Online (within 30 mins)
      7,748

    IvonneT
    Newest Member
    IvonneT
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.