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Time After Consuming Gluten Until....

texmar

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texmar Newbie
texmar
Posted

Having symptoms of joint/muscle pain, fatigue and constipation. In a week I will be going to the Rheumatologist for a battery of tests to check for autoimmune disorders. My question is...how long does/did it take for your symptoms to show up after consuming gluten, i.e. was it after the meal or did it build up after so many days? So many of my symptoms fall under so many labels...too funny. Thanks a bunch!

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peeptoad Apprentice
peeptoad
Posted

My symptoms built up after about 3-5 days (and got progressively worse), but I think everyone is different.

atan91 Newbie
atan91
Posted

The tingly limbs, brain fog and numbness shows up within 30 minutes. Over the course of a few days, the GI stuff/joint pain/bone pain/muscle aches get worse. Takes about 1-2 weeks for it to go away completely.

AVR1962 Collaborator
AVR1962
Posted

24 hours after gluten I will have digestive issues, headache, brain fog, messed up speach, I will be tired and off balance. The first week is the worst for me. By the end of the week I usually have my thoughts together, headache gone but I will be off balance for at least 3 weeks.

anna34 Enthusiast
anna34
Posted

headache within 15 minutes

emotional/weepy/anxious for 48 hours

C for up to a week

dilettantesteph Collaborator
dilettantesteph
Posted

It varies depending on what symptom and how much consumed. Onset can be from a few hours to several weeks. Makes it tricky to figure out. Elimination diets and keeping a food journal help a lot.

Lori2 Contributor
Lori2
Posted

Takes about three days for most symptoms to show up and they last about three days. Sinus problems build up over a longer period but are definitely gluten induced.

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Celtic Queen Explorer
Celtic Queen
Posted

Got glutened Saturday. The extreme fatigue started about 2 hours afterwards. The D started the next day and lasted 1 day. The sinus problems, depression and brain fog started on day 2 and the depression lasted until today. The brain fog and sinus problems will probably go on for another week or so.

I agree with everyone else about the journaling. It helps.

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    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
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      Severe severe mouth pain

      By Charlie1946 · Posted

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      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Oh, my dear!  Get off that Fairlife chocolate protein shake!  That's got milk in it!  Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  If the villi grow back, they can resume making lactase again.   I react to casein and lactose both.  I get sores in my mouth and coated tongue, and inflammation, my Dermatitis Herpetiformis flares up, I get cold sores or shingles, and TMJ pain, well, joint pain in general, and my brain health is really affected, depression and anxiety.  So dairy is a really scary horror movie.     I take Benfotiamine and Thiamine TTFD  (tetrahydrofurfuryl disulfide).  These have anti-viral properties.   I've had chicken pox/shingles, and I also harbor the cold sore herpes virus which traveled to one eye through a nerve. It's broken now.  I had really bad nerve pain in my check at the time, then it turned into Bell's Palsy.  Thiamine TTFD helped clear up the dysphagia I was also experiencing then.  I took lots of Lysine to fight the herpes viruses as well.  Between the Thiamine TTFD and the Lysine, and avoiding dairy, mine stays dormant for the most part.   I also take a B Complex, and Magnesium Threonate to help the Thiamine TTFD work, Vitamin C, Vitamins A and D, and Zinc supplements to help Thiamine TTFD fight off those viruses. I have Sjogren's so I understand dry eye and mouth.  I found including Omega Threes, healthy fats, improved my problem.  You know how oil floats on top of water?  That's going on in our body, too.  Flaxseed oil supplements, and flaxseed oil to use on food is one way I increased my Omega Threes.  Choline and sunflower seed oil supplements are other choices I've tried.  Eat real food!  Eat fresh vegetables and fruit!  I had cooked stew in a crockpot until super mushy so I could chew and swallow it without lots of pain.  I got a bag of mandarin oranges, Cuties, whatever they're called now.  They're not too acidic.  Gluten free crackers don't have any nutritional value, no vitamins.   I followed the low histamine version of the Autoimmune Protocol Diet.  The book The Paleo Approach by Dr. Sarah Ballantyne has been most helpful.  She's a Celiac herself, and the diet has been shown to improve intestinal health. I have seen liquid vitamins on line.  Thiamine TTFD comes in a capsule, but tastes really strongly of garlic, so be prepared if your Gatorade tastes funny.   
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