Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Test Results...pretty Sure There Is No Chance These Are Positive


Metoo

Recommended Posts

Metoo Enthusiast

I got my results back! They look pretty negative to me! I am kind of bummed she didn't retest me for the allergy, so I made an appointment next week with my allergist for food allergy testing. i am hoping that a skin test to wheat would possibly be acurate for gluten, that if I have a high IgE to gluten, I should react to a skin test to wheat. Since he only does skin tests.

Anyways here are my results...what do you think?

Demidated IgA - 6

Demidated IgG - 3

tTG IgA - less than 2

tTG IgG - 3

Endomysial IgA - Negative

Imunoglobulion A, Qn, Serum 200 mg/dL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AzizaRivers Apprentice

Did your lab sheet show you what the "normal" ranges are? Maybe someone with more experience than me would be able to say that that looks like what normal usually looks like, but I do know that different labs use different numbers, so your should have told you what the normal ranges were so you could see where yours fall.

ravenwoodglass Mentor

False negatives are also posible for a variety of reasons. After you're done with all testing give the diet a good strict try if your symptoms suggest celiac. Being gluten free will only effect testing for celiac if you should have something else going on being gluten free will not mask it.

Bubba's Mom Enthusiast

Some of us have negative bloodwork and ARE celiac. About 20-30% of us fall in that category.

I have biopsy DXed celiac, but negative blood work. I had my allergist do the skin prick test because I wanted to know if I had other allergies or intollerances to foods, besides gluten.

My skin test came back fine. No reaction to wheat.

The Allergist said there's a type of allergy that they don't have a good way of testing for, Gluten falls into that group. I have a soy intolerance and my skin prick test showed no reaction. I was told that's common.

Skin prick testing won't tell you about intolerances either.

You may see ELISA/ACT allergy/intolerance testing available if you search online. I asked about those and my allergist said they're a waste of money. They give a lot of false readings.

Roda Rising Star

Some of us have negative bloodwork and ARE celiac. About 20-30% of us fall in that category.

I have biopsy DXed celiac, but negative blood work. I had my allergist do the skin prick test because I wanted to know if I had other allergies or intollerances to foods, besides gluten.

My skin test came back fine. No reaction to wheat.

The Allergist said there's a type of allergy that they don't have a good way of testing for, Gluten falls into that group. I have a soy intolerance and my skin prick test showed no reaction. I was told that's common.

Skin prick testing won't tell you about intolerances either.

You may see ELISA/ACT allergy/intolerance testing available if you search online. I asked about those and my allergist said they're a waste of money. They give a lot of false readings.

My oldest boy has negative celiac blood test and a negative biopsy. He has also tested negative on skin testing for food allergies. My son's allergist said the same thing that skin testing won't tell you about intolerances. You have to do an elimination to find out for sure. That's what we are doing with my oldest boy with gluten. His allergist feels he is at high risk because of his IgE allergies(non food, environmental and does injections weekly) and his brother and myself having celiac. He feels he is better off without it regardless.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,314
    • Most Online (within 30 mins)
      7,748

    Lisa Gassick
    Newest Member
    Lisa Gassick
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.