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2Yr Old Son Being Tested...should I?

*charliesmum*

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*charliesmum* Apprentice
*charliesmum*
Posted

My 2yr old son has had his bloods done which are suggestive of coeliacs. Waiting to see specialist on 30th Nov then probably biopsy after that. My dad also has coeliacs so should I get tested? Im thinking I probably should but keep putting it off!!! I havent had any symptoms of coelics (apart from recurrant mouth ulcers) most of my life until recently. Im not sure if they are symptoms though or if im just thinking too much into it??!

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psawyer Proficient
psawyer
Posted

All first-degree relatives of persons with celiac disease should be tested. You already qualify because of your father.

*charliesmum* Apprentice
*charliesmum*
Posted
  • Author

Thanks for your reply :)

So if my bloods came back suggestive would I still need the bioposy with both my dad and my son already having it? It would seem obvious to me that I would have it too :(

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for your reply :)

So if my bloods came back suggestive would I still need the bioposy with both my dad and my son already having it? It would seem obvious to me that I would have it too :(

The doctors will want to do one but the choice is yours alone to make. There are also high rates of false negatives with both blood tests and biopsies so be sure to take your little one and yourself gluten free after all testing is finished no matter what the results. The truest test is the diet and not all symptoms are GI related.

*charliesmum* Apprentice
*charliesmum*
Posted
  • Author

All first-degree relatives of persons with celiac disease should be tested. You already qualify because of your father.

Also, should my daughter be tested? She hasnt had any symptoms so far. Shes 4 in January.

domesticactivist Collaborator
domesticactivist
Posted

Yes, I would test all members of the family.

Make sure you all are eating lots of gluten for a couple months prior to testing. Also, if your children do not turn up positive for celiac and you continue to feed them gluten, make sure to have them retested regularly. This is important since damage doesn't always show up right away and false negatives are common.

After receiving your results, it will probably make sense for you to try going gluten-free and see whether that has an effect on your system.

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      By Resada · Posted

      Same, and I appreciate your comments. I just needed to get it off my chest. Sometimes, even when its a genuine mistake, it can feel all too hurtful and I didn't want to go back to work tomorrow still in my feelings. 
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      By trents · Posted

      Yes, probably slipped his mind. Grace is in order here is my thought.
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      By Resada · Posted

      I should have added that, while I dont have access during the meetings, I do as soon as I leave them (same for him) so I would have seen before I even left work. He has my number since we've needed to coordinate by cell a few times for work and other stuff. I usually have a protein bar or two in my desk for emergencies so I could have grabbed one of those and gone to meet them at the right restaurant.  Someone else decided on the change of restaurant and it must have slipped his mind that I wasn't coming back to my desk.
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