Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dry Mouth A Symptom Of Celiac?

Silencio

Recommended Posts

Silencio Enthusiast
Silencio
Posted

I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

I haven't heard of it myself, but it can be a sign of other things. I think you should see your Dr.

Lisa Mentor
Lisa
Posted

Absolutely! If I recall (the percentage), you absorb 75% of your fluid intake in your small intestines. If your intestines are damaged due to Celiac, you're not getting adequate hydration.

Listen to your body and drink as much as it asks for. ;)

Meatballman Rookie
Meatballman
Posted

Not sure but I get it too.Dry eyes as well.

Skylark Collaborator
Skylark
Posted

Dry mouth and eyes can be an autoimmune disorder called Sj

Meatballman Rookie
Meatballman
Posted

Dry mouth and eyes can be an autoimmune disorder called Sj

Olivegirl Newbie
Olivegirl
Posted

I used to get dry mouth periodically before I was diagnosed with coeliac disease. I don't think it's anything to worry about (assuming coeliac is the cause). My doctor recommended a gel for my mouth which performs almost the same function as a moisturiser for your skin. It worked to some extent. I'm in Australia - so I don't know how available the gel is in the US - but I just bought it over the counter here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

Yes - exactly skylark. There is a correlation between SJogren's and Coeliac, if you are getting things like dry eyes and dry mouth you should see your Dr.

Silencio Enthusiast
Silencio
Posted
  • Author

Well im going to talk to a GI on the 23rd so I will see what she has to say about it. I went through so many blood tests in the past few weeks. Im sure if it was anything serious they would have found it in the tests? Also my doc didnt say anything at all about my vitamin levels. Should I just assume there fine?

beebs Enthusiast
beebs
Posted

They have to do specific tests to check for autoimmune disease and I guarantee you they wouldn't do them unless there was a reason for it. Anyhow - ask your GI and see what he/she says.

Silencio Enthusiast
Silencio
Posted
  • Author

I didnt know that. I just figured they would check for everything when I went for my physical. Thanks beebs.

Gemini Experienced
Gemini
Posted

I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

If your mouth and/or eyes are dry enough that you are noticing it, then there is a strong possibility that you may have Sjogren's Syndrome. I have Sjogren's and there isn't much you can do for it except keep yourself hydrated, chew gum to encourage saliva production and use Biotene mouthwash, which is made specifically for those with extreme dry mouth. There is blood work which can be done to test for it and those would be the SS-A and SS-B antibody tests. However, it's like Celiac. You can have a raging case of Sjogren's and not pop positive on your blood work.

I had all the symptoms and knew I had it but never bothered to go to a doctor about it because their track record with autoimmune disease is poor. If your blood work is negative, then they move towards a biopsy of a salivary gland. No way was I going to let them do that, especially when I was so blatantly symptomatic for Sjogren's. My doctor insisted on blood work, which I let her do but told her I knew had it, so this was just to make her happy. My antibody levels were sky high.

Along with Celiac testing, they insist on multiple tests for diagnosis for Sjogren's. Do diabetics have to go through multiple tests just to get a diagnosis? As you can see, I have little patience with the medical profession! ;) Other symptoms of Sjogren's are a fissured tongue (from being so dry) and my favorite, the bread test. I cannot swallow a bite of bread without water or liquids or I will choke. That's how deprived of saliva I am. If you have this issue also, you probably have it. Then there is the dry eye....very fun!

You may want to ask about the blood work as that's pretty easy testing but a negative test does not rule out Sjogren's. Good luck to you!

Silencio Enthusiast
Silencio
Posted
  • Author

Thanks for the detailed post Gemini. My eyes dont get dry at all. My mouth is fine during the day when I can get water in. I havent ate bread since I was diagnosed with Celiac a few weeks ago but I dont think I would have that much of a problem. I tried Biotene, didnt help at all. I will see what the GI has to say then maybe go in for testing to see whats up. I really dont mind all the doctors as much as you, I live pretty close so thats a good thing.

beebs Enthusiast
beebs
Posted

See - I don't have dry eyes- or what I mean is, I don't feel like I have dry eyes, they don't feel gritty or annoying or anything. But I had the shirmer's test and scored 0-0 which means I produce no tears when there is a foreign thing in them (dry as you can get) - we don't have the salivary gland test in Oz - and my bloods are negative. At this stage I am undiagnosed but have something of the connective tissue autoimmune stuff going on. As Gemini said - Autoimmune diag can be a royal pain. Although I do think that you should still seek a diag if possible. Sjogren's can cause other things, not just dryness. Anyhoo. bloody autoimmune diseases!

domesticactivist Collaborator
domesticactivist
Posted

I get a disguisting, coated, dry mouth from eating cheese. It usually shows up when I am asleep and is terrible for a few days if I eat cheese. It's better when I eat or drink, but comes right back a bit after I'm done. I also get BO and dandruff along with the bad breath and dry mouth. Does this sound like what you get?

beebs Enthusiast
beebs
Posted

Hey domesticactivist = that sounds like hairy tongue? Do you think it could be that? I get it when I'm on antibiotics and it throws of my gut flora - so gross!!

domesticactivist Collaborator
domesticactivist
Posted

I don't think it's hairy tongue. My whole mouth gets coated and is dry and sticky and stinky. In fact all of me gets stinky! It was chance that we figured out the connection. I'm very curious about what component of cheese is the problem. I can eat yogurt!

Reba32 Rookie
Reba32
Posted

a GI doctor is unlikely to know what Sjogren's is, let alone know what tests to do for it. It is not a disease that turns up in your gut, it's a rheumatic auto-immune disease. Make an appointment with your GP and/or get a referral to a rheumatologist.

Silencio Enthusiast
Silencio
Posted
  • Author

Yeah the GI I talked to yesterday said its probably nothing, she said to not even bother seeing a family doctor about it. I would like to deal with it though since its bothering me so much and I know it does mess teeth up when gums are so dry through the night. Dosent it?

Should I just go to a family doctor and ask to be checked for Sjogren's, or how do I go about this?

Skylark Collaborator
Skylark
Posted

Start with the family doctor. The specialist who will really be familiar with Sjogren's testing is a rheumatologist so you may need to ask for a referral. (Or go directly to a rheumy if your insurance allows.)

Reba32 Rookie
Reba32
Posted

yes, if you have Sjogren's it can negatively affect your teeth and gums.

beebs Enthusiast
beebs
Posted

yes- badly affect your teeth and gums if its sjogren's. Hope that it isn't!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Positive biopsy

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each...
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

      This technology is currently years away, as it will need to go through an extensive FDA approval process.
    3. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease...
    4. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    5. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,998
    • Most Online (within 30 mins)
      7,748
    SpoonedMango
    Newest Member
    SpoonedMango
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Positive biopsy

      By Scott Adams · Posted

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Help understand results

      By trents · Posted

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.