Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow! Suddenly Feel Better Than Ever Before!


navigator

Recommended Posts

navigator Apprentice

Started to feel an improvement a couple of weeks ago but for a week now I've felt better than at any point in my life! I keep thinking,' this is how other people feel, I had no idea!' I'm staying awake all day and evening, I'm walking every day, no aches, palapatations or numbness/tingling. I've even worked a day as a receptionist at the place where I go for massage, reiki and reflexology.

I had to finally give up my well-paid job as a social worker due to intimidation,bullying and threatened disciplinary action by senior management due to my illness. This was the first I'd worked since May, with the exception of one week when I went back to work against GP's advice to try and prevent disciplinary action. I was so ill, I put in my resignation the following week. It felt good to be out for the day. I'm now going to work a day a week and if I continue in good health I can increase this.

We travelled about 250 miles each way to visit my daughter at the weekend and I stayed awake for both journeys. My husband and I are so happy about this - it's a first. Normally I can't stay awake on any journey longer than 45 minutes. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Di2011 Enthusiast

Oh my isn't this the most amazing yet bizarre of "ah-ha" moments!!!??!! I had mine about 2 weeks ago. The washing up was done, clothes washed, floors clean, vaccumed and I was sitting at the table wondering what was next... "ah-ha" was this what some normal/healthy people actually do????????????????????????????

Metoo Enthusiast

I had mine yesterday! I feel so awake! I get up and go to bed with feeling like I am dragging! My stomach still is a little messed up....but yesterday I ate a bunch for lunch and felt FULL not pain! I realized that is what full is supposed to feel like!!

maximoo Enthusiast

I'm so happy for you (& everyone else who has improved!) I have a friend with a host of problems: fibromyalgia, herniated/bulging discs, scoliosis, gastro problems, etc. She has to take 50,000 units of Vit D daily! She was blood tested for celiac but it was negative. However I still begged her to go gluten-free & she finally did. Within 2 weeks the severe head/neck pain she has every single day of the yr has diminished, and her gastro problems are gone. I told her she will continue to improve. I almost feel like a Dr. b/c my advise helped. ; ) So to everyone you all will continue to improve, some more slowly than others

I wish you all the best!

Silencio Enthusiast

I would like to know how long you guys were having day to day problems before you started feeling better. I think it would be helpful to others too.

navigator Apprentice

I first started attending GP and hospital 3 years ago with debillitating fatigue. I'd had trouble with bowels, bloating, palpitations and joint aches all my life and just thought that everyone was the same and so never sought medical advice about these. I was finally diagnosed on 6th May this year and initially did not experience any improvement. At the end of August - beginning of September I started having good days/bad days. About 2/3 weeks ago I stopped having bad days and for the past week I have felt better than at any time in my life.

Hope this is the information you were looking for.

India Contributor

Silencio - I've not had such a dramatic recovery but I can tell you that I do feel much better than I used to. My recovery was quite rough as I felt rather worse before I got better. After about eight months, I started figuring out my additional intolerances (soy, corn and FODMAPs) and that really helped. If you're not feeling better yet, keep looking for answers.

Navigator - glad to hear you're doing so well!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Silencio Enthusiast

Yeah im feeling totaly fine right now, its just the beginning though. Im sure it will get a lot worse once im totally off gluten and take some in by accident.

  • 2 weeks later...
navigator Apprentice

My improvement has continued and I'm still working one day every week. It feels really good to be working all day and still feel okay at the end of the day - and I now get my treatments at half-price as I work every week :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,597
    • Most Online (within 30 mins)
      7,748

    JosiePosey
    Newest Member
    JosiePosey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.