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Wow! Suddenly Feel Better Than Ever Before!


navigator

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navigator Apprentice

Started to feel an improvement a couple of weeks ago but for a week now I've felt better than at any point in my life! I keep thinking,' this is how other people feel, I had no idea!' I'm staying awake all day and evening, I'm walking every day, no aches, palapatations or numbness/tingling. I've even worked a day as a receptionist at the place where I go for massage, reiki and reflexology.

I had to finally give up my well-paid job as a social worker due to intimidation,bullying and threatened disciplinary action by senior management due to my illness. This was the first I'd worked since May, with the exception of one week when I went back to work against GP's advice to try and prevent disciplinary action. I was so ill, I put in my resignation the following week. It felt good to be out for the day. I'm now going to work a day a week and if I continue in good health I can increase this.

We travelled about 250 miles each way to visit my daughter at the weekend and I stayed awake for both journeys. My husband and I are so happy about this - it's a first. Normally I can't stay awake on any journey longer than 45 minutes. :D


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Di2011 Enthusiast

Oh my isn't this the most amazing yet bizarre of "ah-ha" moments!!!??!! I had mine about 2 weeks ago. The washing up was done, clothes washed, floors clean, vaccumed and I was sitting at the table wondering what was next... "ah-ha" was this what some normal/healthy people actually do????????????????????????????

Metoo Enthusiast

I had mine yesterday! I feel so awake! I get up and go to bed with feeling like I am dragging! My stomach still is a little messed up....but yesterday I ate a bunch for lunch and felt FULL not pain! I realized that is what full is supposed to feel like!!

maximoo Enthusiast

I'm so happy for you (& everyone else who has improved!) I have a friend with a host of problems: fibromyalgia, herniated/bulging discs, scoliosis, gastro problems, etc. She has to take 50,000 units of Vit D daily! She was blood tested for celiac but it was negative. However I still begged her to go gluten-free & she finally did. Within 2 weeks the severe head/neck pain she has every single day of the yr has diminished, and her gastro problems are gone. I told her she will continue to improve. I almost feel like a Dr. b/c my advise helped. ; ) So to everyone you all will continue to improve, some more slowly than others

I wish you all the best!

Silencio Enthusiast

I would like to know how long you guys were having day to day problems before you started feeling better. I think it would be helpful to others too.

navigator Apprentice

I first started attending GP and hospital 3 years ago with debillitating fatigue. I'd had trouble with bowels, bloating, palpitations and joint aches all my life and just thought that everyone was the same and so never sought medical advice about these. I was finally diagnosed on 6th May this year and initially did not experience any improvement. At the end of August - beginning of September I started having good days/bad days. About 2/3 weeks ago I stopped having bad days and for the past week I have felt better than at any time in my life.

Hope this is the information you were looking for.

India Contributor

Silencio - I've not had such a dramatic recovery but I can tell you that I do feel much better than I used to. My recovery was quite rough as I felt rather worse before I got better. After about eight months, I started figuring out my additional intolerances (soy, corn and FODMAPs) and that really helped. If you're not feeling better yet, keep looking for answers.

Navigator - glad to hear you're doing so well!


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Silencio Enthusiast

Yeah im feeling totaly fine right now, its just the beginning though. Im sure it will get a lot worse once im totally off gluten and take some in by accident.

  • 2 weeks later...
navigator Apprentice

My improvement has continued and I'm still working one day every week. It feels really good to be working all day and still feel okay at the end of the day - and I now get my treatments at half-price as I work every week :)

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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