Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Symptomatic After 6 Months Of gluten-free Diet?

DanPatch

By DanPatch
in Introduce Yourself / Share Stuff

Recommended Posts

DanPatch Rookie
DanPatch
Posted

Hi,

I have been following very strictly (except for today... :( ) the gluten free diet. Every time I eat a meal, I get extremely bloated directly afterwards. I don't really have any idea what is causing it. This was happening before I was diagnosed as well. Until 2 months ago, and at the direction of my GE, I was dairy free. Now I am lactose-free, and so far the bloating has not changed, which leads me to think that it isn't lactose/dairy. I'm really not sure, and I was wondering if anyone else could lend a bit of insight or perhaps they have had similar situations??

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


krystynycole Contributor
krystynycole
Posted

Corn? It's in a ton of stuff! More than you may realize.

lucky28 Explorer
lucky28
Posted

Dan, after reading a LOT of posts on here I realize it could be many things. Have you checked your toiletries (shampoo, soap, hand soap, etc?)for gluten? It could also be another sneaky food intolerance (corn,soy,eggs). Possibly cc? I would investigate these; that's what I'm in the process of doing for myself. I did have relief for a couple months gluten-free but for the last month or so it has gotten bad again. It's really messing with me so I feel your pain. Good luck to you, hope you get some relief soon!

mommyto2kids Collaborator
mommyto2kids
Posted

What helped me was eating for IBS combined with eating gluten free. I started this because I was misdiagnosed for 3 months with interstistial stistitis. The founder of the ic network has ibs and I learned all about it. But when they realized I had celiac disease, I combined eating for IBS and I was able to get it under control. There are many good books out there. Hope this may help. For instance, eat some bread with a salad.

Cut out caffiated drinks. Cut way back on fats. Eat several small meals during the day. No big meals!

DanPatch Rookie
DanPatch
Posted
  • Author

Could it really be corn/soy/eggs? I've definitely heard of it before, but how does one test for it? Do you have to be referred or something?

DanPatch Rookie
DanPatch
Posted
  • Author

On thing that I did not mention when I first posted this that may/may not make a difference to your replies would be that around two months ago I began to take prevacid (acid reduction), which helped to get rid of most of the stomach/abdominal pain I was feeling every time after eating and throughout the day. However, as I mentioned before, the bloating persists, with the occasional pain/cramp between the belly button and rib cage (on the front). If you place your hand directly above the belly button, the pain is in the area of the palm.

dilettantesteph Collaborator
dilettantesteph
Posted

Could you tell us what you are eating? That might give us some ideas.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Could you tell us what you are eating? That might give us some ideas.

Yes, and a food diary would be helpful to pin point a potential issue.

mommyto2kids Collaborator
mommyto2kids
Posted

How about aliminating food with xanthum gum. That could be it. I know I get sick when I eat bisquick gluten free. I just get sick and have to go all morning, so something is wrong.I you figure out what it is soon.Maybe do the brat diet and add one thing back per day and see what happens.

Lisa Mentor
Lisa
Posted

How about aliminating food with xanthum gum. That could be it. I know I get sick when I eat bisquick gluten free. I just get sick and have to go all morning, so something is wrong.I you figure out what it is soon.Maybe do the brat diet and add one thing back per day and see what happens.

Have you looked into the other ingredients in the Bisquick? Or milk or other dairy products? What makes you think it's the Xanthum gum?

krystynycole Contributor
krystynycole
Posted

You could be healing from your stomach acid damage. I have a herniated esophagus and am on acid reducers for it. I had a lot of damage from the over production of acid/heart burn. I had a lot of pain for about 4 months after just healing up. I noticed it more when I was on the meds because my heart burn was gone. Just a thought...

mommyto2kids Collaborator
mommyto2kids
Posted

My husband brought an article home from a registered diatitian that said that xanthan gum gould give the d. I can eat bread with it. Just no clue about the bisquick.

  • 2 weeks later...
DanPatch Rookie
DanPatch
Posted
  • Author

As for what I am eating, just regular run-of-the-mill gluten-free stuff, for example, fish, pork, beef, chicken, shrimp, corn, potatoes, gluten-free bread, crackers, a few cookies here and there :), salad, nuts, dried fruit, fresh fruit, vegetables, eggs, milk (LF) and other dairy products (LF with lactase enzyme).

My GE thinks that the bloating/gas is coming from the lactose, but I know it isn't, because I had been off of dairy for six months before he told me to start taking the lactase and go back on a LF dairy diet. So I did, and nothing changed.

Stomach acid...yeah, possibly. The majority of my stomach pain (ache) went away after starting prevacid. However I still seem to be producing a lot of gas so the last time I went to see him I was told to double the prevacid (2 30mg tabs/day). Nothing has changed.

I read up on bloating/over production of gas (in general), and the book said that it could be due to malabsorption and/or not enough good bacteria (among others, but these were the two reasons I thought most applicable). The others were reasons like gastritis, IBS, and parasites. Anyone have any input on this?

Oh, and I was also thinking that perhaps my system might just be taking a long time to heal...but it's got to be more than that...cause it wouldn't make sense that there would be hardly a sign of improvement after 6 months, would it?...

Thanks :)

dilettantesteph Collaborator
dilettantesteph
Posted

You might want to look into the possibility of being a super sensitive celiac. Some of us react to processed foods. What you would need to do is eat only produce and meat for a few days and see if you notice a difference. Then you could look into the particulars further.

DanPatch Rookie
DanPatch
Posted
  • Author

Has anyone done the (Company Name Removed - They Spammed This Forum and are Banned) test? How much more accurate is it than an IgA or IgG test?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      How can you be negative for HLA? What markers did you have here? Curiouser and curiouser...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Yes, I would be good with the diagnosis. While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels. Recovery from either disease requires avoiding gluten. celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748
    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.