Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy

Chad Sines

By Chad Sines
in Coping with Celiac Disease

Recommended Posts

Chad Sines Rising Star
Chad Sines
Posted

How many of you die a horrible death with soy? I just had some reese cups last night and felt like i was going to croak. Wondering if it was from soy content. I have felt the same way when i consumed vitamin D with soybean oil. Just recently realized that vegetable oil is often soybean oil. It seems like a bunch of little pieces may be falling in place. My issues with soy seem much different than gluten, assuming it really is a soy issue.

I am almost tempted to do a shot of soy vegetable oil one day to know for sure...prolly not a good idea.

Hmmmmm..

Very curious indeed.

I am about ready to replace my GI system. If you want to trade, just let me know. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I am about ready to replace my GI system. If you want to trade, just let me know. :)

As bad as it is, I think I will keep mine -- at least it is one I am familiar with :P

IrishHeart Veteran
IrishHeart
Posted

How many of you die a horrible death with soy? I just had some reese cups last night and felt like i was going to croak. Wondering if it was from soy content. I have felt the same way when i consumed vitamin D with soybean oil. Just recently realized that vegetable oil is often soybean oil. It seems like a bunch of little pieces may be falling in place. My issues with soy seem much different than gluten, assuming it really is a soy issue.

I am almost tempted to do a shot of soy vegetable oil one day to know for sure...prolly not a good idea.

Hmmmmm..

Very curious indeed.

I am about ready to replace my GI system. If you want to trade, just let me know. :)

oh honey, you sooooo do not want mine! :lol:

The only way to isolate a food to see if you are intolerant is to eat something plain.

A Reese's cup could mean soy lecithin or it could be the chocolate or the peanut butter or sugar, or, or, or ....and you'd just be guessing.

If you really, really want to know if soy is a problem, eat some edamame or tofu PLAIN. NOTHING else. That's how you tell.

Marilyn R Community Regular
Marilyn R
Posted

Hi Chad,

Soy hurts me hard. After several months of going soy free, I'm tolerating soy lecethin now. (That's in all chocolate I think, so that's pretty important.) :)

Hang in there!

Chad Sines Rising Star
Chad Sines
Posted
  • Author

I had not even thought about soy lecithin to be honest until just recently. I was more looking at soybean oil. D'oh.

mushroom Proficient
mushroom
Posted

I had not even thought about soy lecithin to be honest until just recently. I was more looking at soybean oil. D'oh.

Some people can handle the soy lecithin, others can't. Same for the soybean oil. I have added back soy lecithin but still avoid the oil.

sandsurfgirl Collaborator
sandsurfgirl
Posted

The lecithin doesn't bother me but soy flour or soymilk, major major pain. Soybean oil has been okay. I have no idea why.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I guess my body just cringes when I see soy or soya (unless followed by lecithin) :blink: May try oil someday, but in the meantime avoid anything that says "vegetable oil" because that includes canola, safflower and sunflower too and one never knows what one will get :rolleyes:

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I can't handle even traces of soya. I have neuro symptoms, the worst of which is a crushing depression, emotional confusion, temptation to self-harm. Then headaches, pain, reflux. Last time I got symptoms from eating a single piece of shrimp cooked in a jambalaya with soya-containing sausages. Before that I got symptoms from washing my face with a shower soap that contained soybean oil.

I avoid soya lecithin as well, because I feel like I reacted to it once upon a time. I've chewed pieces of gum with the lecithin in it once or twice without symptoms, but I don't chance it anymore. It's actually kinda nice that this rules out so many candies for me, because I used to have a raging sweet tooth, and having to avoid soya lecithin (which is in practically anything that contains chocolate) helps me rein it in.

in the States, vegetable oil = soybean oil. Crisco and vegetable shortening is all soybean shortening. I wish they'd just label the damn vegetables in the oil rather than hide behind "vegetable", especially considering most "vegetable oil" in the US contains ONE ingredient which is SOY.

here in Europe "vegetable oil" usually = rapeseed (canola) oil or sunflower oil. which is nice. I don't have to avoid things that list veggie oil or shortening or vegetable fat in the ingredients. (soya will be listed, due to its being an allergen, if it is contained in the product)

Austin Guy Contributor
Austin Guy
Posted

You will also find soy as part of the vegetable broth in canned meats and tuna. I found out the hard way. Soy hits me almost as hard as gluten and like gluten, it seems to be everywhere.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748
    westman3d
    Newest Member
    westman3d
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.