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Argh

Leper Messiah

By Leper Messiah
in Super Sensitive People

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Leper Messiah Apprentice
Leper Messiah
Posted

Oh man, I must have the most sensitive reaction to gluten ever.

I went to work today in a positive frame of mind, it's been two weeks since my last glutenning so this is when improvements start, and continue dramatically over the following week. So of course I was anticipating this and walking to work with a :).

It was a cold day so wrapped up and walked to work, however I got tap nose en route and it started streaming down my lip to my mouth. I'm understandably sensitive to things touching my mouth in anycase but unfortunately I didn't have a plastic pack of tissues to hand so I thought I'll gently wipe it with my sleeve.

I did think at the time, 'will I be safe?' but thought I was being too OCD about it. Of course when I took a gulp of water at work, bang....glutenned. Should have went to the toilet and rinsed my mouth out, stupid.

This is exactly 2 weeks since my last gluttening - which I thought at the time was the most ridiculous, I touched a banana before eating at work where tons of folk eat sandwiches at their desks so there's probably gluten all over the desks/files/everywhere.

Residual gluten, like peanuts, I guess is everywhere but it's so difficult mentally this disease, you think you're on top only for it to kick you in the nuts in a whole new way.

I mean that's 6 weeks of my life taken away by two ridiculously minor infractions. This would be draconian as a federal/criminal punishment!!

And of course I organised a poker night for this Saturday on the basis that I would be a bit better....sods law!

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lovegrov Collaborator
lovegrov
Posted

I'm sorry, but it's hard to believe you got glutened simply wiping your nose on your sleeve or a gulp of water at work.

And any new folks, this simply in NOT something your average person with celiac has to worry about.

richard

Booghead Contributor
Booghead
Posted

I'd say that did not happen because of gluten. Something else maybe. ;)

dilettantesteph Collaborator
dilettantesteph
Posted

I am extremely sensitive but I must admit that I don't understand how you got glutened either. What is tap nose? Is there something about it which would gluten you if it touched your lip? Is there a reason why your sleeve would have gluten on it? Is there something wrong with the water at work?

I am so sorry that you are feeling sick. It is so hard to deal with each setback.

Leper Messiah Apprentice
Leper Messiah
Posted
  • Author

No it wasn't the water per se, it was the fact there was likely to be gluten on my sleeve which was then transferred onto my mouth and then swallowed by drinking the water. I stopped cleaning so hard at home, and instead rely on plastic plates, cups, disposable everything basically as I tried the cleaning route but I was getting glutenned on average twice a week and I could spend 1-2 hours a day cleaning and still get glutenned. No idea how it got on my coat but my flatmate eats a lot of gluten so it's not a big surprise.

Thanks Steph, trying to be positive and now looking forward to a couple of weeks on when I should be there again. Time to batten the hatches.

Richard - whilst I appreciate your feedback, I'm literally on the floor with tiredness today so whilst it may be hard to believe, it happened. I wish I knew exactly how it happened, i.e. seen the trace gluten or whatever but the last 6 months I've been glutenned by things I cannot physically trace. Just be glad you aren't this sensitive!

I also want to know why my reaction to gluten is so different and a lot more sensitive than others. It's bad enough avoiding gluten but this is so difficult, especially when I get so close as well. Makes me think, is this sustainable over the long term...I mean I literally have to watch anything that touches my mouth, and that doesn't appear to be the case with most folks who have to avoid gluten.

beebs Enthusiast
beebs
Posted

If you are that sensitive then maybe you should make your home gluten free??? Others in your house won't die for not eating gluten while they are around you and then they can just eat it when they are out?? Is that an option for you?

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