Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can This Happen?


Jenni121

Recommended Posts

Jenni121 Rookie

Hi all

Something strange has happened this week and I'm wondering whether it could be related to coeliac disease.

I was diagnosed about 6 weeks ago (after biopsy). My only symptom prior to being diagnosed was low iron. I've never experienced any GI symptoms or anything like that.

Have been gluten free since diagnosis.

For 3 days now I have had the worst pain in my upper abdomen, that goes through to my back. I can't bend over or lift my legs, it hurts too much. I also feel constantly nauseous and have to force myself to eat at mealtimes (I've never had this, I'm a big eater).

I went to a dr who said it could be a mild case of gastro. But I'm not vomiting and don't have diarrhea.

Could it be that by eliminating gluten I've now become super sensitive to it? Could this be how my body is going to react now to being glutened? I can't remember eating anything dodgy but I guess I could have.

Just hoping to find an explanation for this awful pain.

Thanks for reading if you made it this far!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RollingAlong Explorer

Based on my husband's experience, it seems like anything can happen in the first 6 months or so without it meaning anything in terms of your long term reaction to gluten. What I am trying to say is that it would be perfectly normal for you to be "super sensitive" to just about anything at this point. Some examples - coffee, pepper, spices, too much fat in one meal, etc. He did better on a plain simple diet, the Paleo diet.

You're healing up and you just have to be careful about gluten and hang in there. You sound terribly uncomfortable. Perhaps a version of the BRAT diet for a few days or some home made chicken broth?

I hope you feel better very soon.

mommida Enthusiast

That could also be gallbladder. If you are still feeling this sick you should go in to the doctor.

T.H. Community Regular

The pain, when it's in your back, is it in the same place as your kidneys? Could it be that it's going from back to front rather than front to back? It sounds a bit like a kidney infection or kidney stone, which can also involve severe nausea as well as pain.

Did the doctor check for anything along those lines? It might be worth asking about, especially if the pain has been pretty constant these few days. Kidney stones can be an issues for some Celiacs (some information about that here:

Open Original Shared Link ).

I had a kidney stone about a year after going gluten free and had sharp, nasty pain and nausea as my own symptoms. I thought at first that it was originating from my gut, the nausea was so bad.

Korwyn Explorer

Yes to your question about becoming super-sensitive, but I had the same first thoughts T.H. and mommida did. Kidney or gallbladder. If it has persisted for more than a couple days like this after seeing your Dr. I would strongly recommend you get back in there and insist on a more through diagnosis. Sharp pains penetrating all the way through your abdominal cavity are not something I would just ignore if it were me.

Jenni121 Rookie

Thanks for the replies. Went to the dr twice, still no answer. Not kidney or gallbladder related, he was thinking appendix or gastro. In any event, the pain and nausea were gone when I woke up this morning. I'm stumped. Maybe a 4 day bug? Guess I'll never know.

Thanks again for replying, it was only after reading your theories that I made the doctor look into kidneys, gallbladder etc. I really hate paying $70 to be told "just leave it a few more days and see how you are then". I'm far too inpatient and hate being sick!

T.H. Community Regular

Very glad you are feeling better, but oh so frustrating not to know what it is. Argh.

It would be so much easier if our bodies just came with an instruction booklet that had troubleshooting in the back! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,480
    • Most Online (within 30 mins)
      7,748

    Elpho
    Newest Member
    Elpho
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Michelin tire company, since 1900, has published a guide to restaurants that is very well respected: https://guide.michelin.com/us/en/restaurants For info: https://en.wikipedia.org/wiki/Michelin_Guide
    • trents
    • cristiana
      Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my  TTG levels to settle to normal levels in  blood tests.  I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened (or nearly glutened whilst eating out  - like regular bread being served with a gluten-free meal ).  Even eating in chains that Coeliac UK were recommending as safe for coeliacs.  So I gave up eating in restaurants for a while.  My blood tests normalised.  But here's the thing:  the lowest my TTG readings ever got to were 4.5 (10  and under being my local lab's normal levels) and now that I am eating out again more regularly, they've gone up to 10 again.  I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset.  My next coeliac blood review is in September and I mean to give up eating out a few months before to see if that helps my blood results get back on track. It seems to me that there are few restaurants which really 'get it' - and a lot of restaurants that don't 'get it' at all.  I've found one restaurant in Somerset and a hotel in East Sussex where they really know what they are doing.    The restaurant in Somerset hardly uses flour in any of their dishes; the hotel in East Sussex takes in trainees from the local college, so they are teaching best standards.   But it has taken a lot of searching and trial and effort on my part to find these two places.  There are certainly others in the UK, but it seems to me the only real way to find them is trial and error, or perhaps from the personal recommendation of other strict coeliacs (Incidentally, my coeliac hairdresser tells me that if a Michelin star restaurant has to have a separate food preparation so she has never been glutened in one - I can't say I've ever eaten in one!) For the rest, I think we just have to accept that gluten may be in the air in kitchens, if not on the surfaces, and there will always be some level of risk wherever one dines, unless the restaurant cooks exclusively gluten free dishes. Cristiana  
    • RMJ
      Hopefully @cristiana will see this question, as she also lives in the UK.
    • knitty kitty
      @Theresa2407, My Non-Alcoholic Fatty Liver Disease (NAFD), now called Metabolic Dysfunction-Associated Steatotic Liver Disease (MASLD), cleared up, resolved, after supplementing with Thiamine B1 and Riboflavin B2.  "Specifically, higher intakes of vitamin B1 and vitamin B2 were negatively associated with the risk of NAFLD. Consequently, providing adequate levels of Vitamin B1 and Vitamin B2 in the daily diets of postmenopausal women could potentially serve as a preventive measure against NAFLD." Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/ High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pmc.ncbi.nlm.nih.gov/articles/PMC7988776/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.