Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can This Happen?


Jenni121

Recommended Posts

Jenni121 Rookie

Hi all

Something strange has happened this week and I'm wondering whether it could be related to coeliac disease.

I was diagnosed about 6 weeks ago (after biopsy). My only symptom prior to being diagnosed was low iron. I've never experienced any GI symptoms or anything like that.

Have been gluten free since diagnosis.

For 3 days now I have had the worst pain in my upper abdomen, that goes through to my back. I can't bend over or lift my legs, it hurts too much. I also feel constantly nauseous and have to force myself to eat at mealtimes (I've never had this, I'm a big eater).

I went to a dr who said it could be a mild case of gastro. But I'm not vomiting and don't have diarrhea.

Could it be that by eliminating gluten I've now become super sensitive to it? Could this be how my body is going to react now to being glutened? I can't remember eating anything dodgy but I guess I could have.

Just hoping to find an explanation for this awful pain.

Thanks for reading if you made it this far!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RollingAlong Explorer

Based on my husband's experience, it seems like anything can happen in the first 6 months or so without it meaning anything in terms of your long term reaction to gluten. What I am trying to say is that it would be perfectly normal for you to be "super sensitive" to just about anything at this point. Some examples - coffee, pepper, spices, too much fat in one meal, etc. He did better on a plain simple diet, the Paleo diet.

You're healing up and you just have to be careful about gluten and hang in there. You sound terribly uncomfortable. Perhaps a version of the BRAT diet for a few days or some home made chicken broth?

I hope you feel better very soon.

mommida Enthusiast

That could also be gallbladder. If you are still feeling this sick you should go in to the doctor.

T.H. Community Regular

The pain, when it's in your back, is it in the same place as your kidneys? Could it be that it's going from back to front rather than front to back? It sounds a bit like a kidney infection or kidney stone, which can also involve severe nausea as well as pain.

Did the doctor check for anything along those lines? It might be worth asking about, especially if the pain has been pretty constant these few days. Kidney stones can be an issues for some Celiacs (some information about that here:

Open Original Shared Link ).

I had a kidney stone about a year after going gluten free and had sharp, nasty pain and nausea as my own symptoms. I thought at first that it was originating from my gut, the nausea was so bad.

Korwyn Explorer

Yes to your question about becoming super-sensitive, but I had the same first thoughts T.H. and mommida did. Kidney or gallbladder. If it has persisted for more than a couple days like this after seeing your Dr. I would strongly recommend you get back in there and insist on a more through diagnosis. Sharp pains penetrating all the way through your abdominal cavity are not something I would just ignore if it were me.

Jenni121 Rookie

Thanks for the replies. Went to the dr twice, still no answer. Not kidney or gallbladder related, he was thinking appendix or gastro. In any event, the pain and nausea were gone when I woke up this morning. I'm stumped. Maybe a 4 day bug? Guess I'll never know.

Thanks again for replying, it was only after reading your theories that I made the doctor look into kidneys, gallbladder etc. I really hate paying $70 to be told "just leave it a few more days and see how you are then". I'm far too inpatient and hate being sick!

T.H. Community Regular

Very glad you are feeling better, but oh so frustrating not to know what it is. Argh.

It would be so much easier if our bodies just came with an instruction booklet that had troubleshooting in the back! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

    3. - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,562
    • Most Online (within 30 mins)
      7,748

    Hannah Kelch
    Newest Member
    Hannah Kelch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
    • Wheatwacked
      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.