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Dermatitis Herpetiformis

snowy

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snowy Newbie
snowy
Posted

Is a dignosis of dermatitis herpetiformis enough to clinch a celiac diagnosis? Would an endoscopic biopsy and blood testing really be necessary if the skin biopsy was positive? I feel much much better off gluten, but would like a "real" diagnosis for the benefit of my siblings and my children in regards to their medical history. Thanks in advance!

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kareng Grand Master
kareng
Posted

That is a " real" diagnosis of Celiac. It only occurs in Celiac as far as I know.

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"A skin biopsy is sufficient to confirm the diagnosis of DH. DH is the skin manifestation of celiac disease."

Also:

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mushroom Proficient
mushroom
Posted

You already have a real diagnosis - celiac disease :rolleyes:

hspichke Apprentice
hspichke
Posted

Is a dignosis of dermatitis herpetiformis enough to clinch a celiac diagnosis? Would an endoscopic biopsy and blood testing really be necessary if the skin biopsy was positive? I feel much much better off gluten, but would like a "real" diagnosis for the benefit of my siblings and my children in regards to their medical history. Thanks in advance!

I have a question about this. I will post a picture of my hands but I have this painful itchy blistery looking rash...does it look similar to yours? I am in the process of being diagnosed right now but don't see my Derm until Jan 6th. I'm afraid my rash will be gone by then because it usually comes for a wk or two then goes away for a month or two.. Did they do your biopsy when you had a rash or do you know if they can do it when it is not there.. If you don't know the answers that is fine just curious! Thanks :)

w1bf4p.webp

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pricklypear1971 Community Regular
pricklypear1971
Posted

I have a question about this. I will post a picture of my hands but I have this painful itchy blistery looking rash...does it look similar to yours? I am in the process of being diagnosed right now but don't see my Derm until Jan 6th. I'm afraid my rash will be gone by then because it usually comes for a wk or two then goes away for a month or two.. Did they do your biopsy when you had a rash or do you know if they can do it when it is not there.. If you don't know the answers that is fine just curious! Thanks :)

w1bf4p.webp

s13tk0.webp

Ouch!

hspichke Apprentice
hspichke
Posted

Sorry about that disgustingly large photo lol. I didn't know it would show up so big!

Di2011 Enthusiast
Di2011
Posted

Hspichke (what is that user name ???)

I have similar looking hands at the moment. Have you been on the DH thread on this forum?

If you haven't please take the time to read. If you have then it would be worth you

reposting to the DH thread.

Have you been officially diagnosed? Others as well as myself will be interested.

I started at the ankles and my (undiagnosed) DH has worked itself up - ankles up to now chest / upper arm

and lately my wrists and hands. I am hoping that it has worked itself out so to speak.

All of the regular DH tread members would be interested in your history.

Apology if you have posted and I missed it.

Diana

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lemontree1 Rookie
lemontree1
Posted

I get a similar looking rash on my elbows and knees. It comes and goes, and while I've found a few things that seem to trigger it (vitamin supplements), I don't know for sure what it is or what causes it.

lovegrov Collaborator
lovegrov
Posted

That looks a lot like my DH looked, but it's pretty hard to diagnose from a picture.

richard

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      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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