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Dermatitis Herpetiformis


snowy

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snowy Newbie

Is a dignosis of dermatitis herpetiformis enough to clinch a celiac diagnosis? Would an endoscopic biopsy and blood testing really be necessary if the skin biopsy was positive? I feel much much better off gluten, but would like a "real" diagnosis for the benefit of my siblings and my children in regards to their medical history. Thanks in advance!


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kareng Grand Master

That is a " real" diagnosis of Celiac. It only occurs in Celiac as far as I know.

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"A skin biopsy is sufficient to confirm the diagnosis of DH. DH is the skin manifestation of celiac disease."

Also:

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mushroom Proficient

You already have a real diagnosis - celiac disease :rolleyes:

hspichke Apprentice

Is a dignosis of dermatitis herpetiformis enough to clinch a celiac diagnosis? Would an endoscopic biopsy and blood testing really be necessary if the skin biopsy was positive? I feel much much better off gluten, but would like a "real" diagnosis for the benefit of my siblings and my children in regards to their medical history. Thanks in advance!

I have a question about this. I will post a picture of my hands but I have this painful itchy blistery looking rash...does it look similar to yours? I am in the process of being diagnosed right now but don't see my Derm until Jan 6th. I'm afraid my rash will be gone by then because it usually comes for a wk or two then goes away for a month or two.. Did they do your biopsy when you had a rash or do you know if they can do it when it is not there.. If you don't know the answers that is fine just curious! Thanks :)

w1bf4p.webp

s13tk0.webp

pricklypear1971 Community Regular

I have a question about this. I will post a picture of my hands but I have this painful itchy blistery looking rash...does it look similar to yours? I am in the process of being diagnosed right now but don't see my Derm until Jan 6th. I'm afraid my rash will be gone by then because it usually comes for a wk or two then goes away for a month or two.. Did they do your biopsy when you had a rash or do you know if they can do it when it is not there.. If you don't know the answers that is fine just curious! Thanks :)

w1bf4p.webp

s13tk0.webp

Ouch!

hspichke Apprentice

Sorry about that disgustingly large photo lol. I didn't know it would show up so big!

Di2011 Enthusiast

Hspichke (what is that user name ???)

I have similar looking hands at the moment. Have you been on the DH thread on this forum?

If you haven't please take the time to read. If you have then it would be worth you

reposting to the DH thread.

Have you been officially diagnosed? Others as well as myself will be interested.

I started at the ankles and my (undiagnosed) DH has worked itself up - ankles up to now chest / upper arm

and lately my wrists and hands. I am hoping that it has worked itself out so to speak.

All of the regular DH tread members would be interested in your history.

Apology if you have posted and I missed it.

Diana


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lemontree1 Rookie

I get a similar looking rash on my elbows and knees. It comes and goes, and while I've found a few things that seem to trigger it (vitamin supplements), I don't know for sure what it is or what causes it.

lovegrov Collaborator

That looks a lot like my DH looked, but it's pretty hard to diagnose from a picture.

richard

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    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
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      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
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