Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Comments From Others


Googles

Recommended Posts

Googles Community Regular

Does it annoy you when others make comments about your celiac. I was at practicum the other day and one of the interns brought in cookies. We were all waiting in the little kitchenette area and one of the staff (as people were eating cookies) 'at least you don't have to worry about eating these'. It was so frustrating. I just was like "uh, huh." When I really wanted to say was, "WTF? I wish I could eat those things. It would make my life a lot easier." Ugh. I know she was just trying to make it less awkward, and I realized this right after I took a breath. I wish people weren't uncomfortable eating around me. I've gotten over it (most of the time) when people eat around me. I wish they would be comfortable. I don't even have gluten cravings after getting glutened any more (knock on wood). I wish I could just tell people in my life to not worry about me and food and they would believe me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I understand. Funny how it usually isn't about YOU but about them, isn't it?

I can't knock people too much, I remember the days of blissful ignorance....

thleensd Enthusiast

LOL.... I know what you mean. People in general don't know what to say about a lot of touchy topics: illnesses, weight loss, break ups... I try to laugh it off. I'm not always successful but I try. ;-)

Today at a holiday concert there were free cookies. I'm learning to be happy for other people ( :P ) and so as I walked past an aquaintance eating cookies at the table (that smelled #$%^&* good, darnit!) I said, "mmm, cookies!" She said, "yeah! Oh, and you should try the Roca! ..ur, uh um... wait, you can't have any, can...voice trails off...SORRY!"

I just laughed and waved her off. I don't keep track of what people do and don't eat, so it's just funny. My celiac disease made me very ill, so it was kind of high profile.

I'm glad they care. I wish it wasn't awkward. Oh well.

AVR1962 Collaborator

I like the thought that was in your head, probably would have shocked them to have the words actually come out of your mouth. They have no clue!!

Yesterday morning I was cooking myself some sausage for breakfast and husband says with this pouty whine in his voice, "oh eating what I can't have." BS! He has problems with gout so he had to limit his meats, or at least is supposed to. If he gets too much meat on a continual basis he will get a flare-up in his toe. However, he does take daily meds for this and they can increase the dosage, it's not like there is no solution. I turned to him and told him that actually he could ahve the sausage if he just ate less meat the rest of the day. Who was it that totally pigged out and gorged themselves at the Christmas dinner buffet we went to recently, regradless of that 6 oz meat guideline? And who was stuck eating salad and fruit because everything was loaded with gluten? Who is going without? Ugh, people!!!

pricklypear1971 Community Regular

LOL.... I know what you mean. People in general don't know what to say about a lot of touchy topics: illnesses, weight loss, break ups... I try to laugh it off. I'm not always successful but I try. ;-)

Today at a holiday concert there were free cookies. I'm learning to be happy for other people ( :P ) and so as I walked past an aquaintance eating cookies at the table (that smelled #$%^&* good, darnit!) I said, "mmm, cookies!" She said, "yeah! Oh, and you should try the Roca! ..ur, uh um... wait, you can't have any, can...voice trails off...SORRY!"

I just laughed and waved her off. I don't keep track of what people do and don't eat, so it's just funny. My celiac disease made me very ill, so it was kind of high profile.

I'm glad they care. I wish it wasn't awkward. Oh well.

I would have laughed and said "I can have cookies, just not THOSE".

Yeah, people don't get the part about glutenous foods making me see rat poison. I gave NO DESIRE to eat it.

I do look at stuff and think "how can I recreate THAT???". but that's really the extent of it.

Sure, there are a few things that pull at my heart strings but it just ain't worth it.

lynnelise Apprentice

My husband was being pouty about being the DD at his own company Christmas party. It's a fancy dinner at a lovely resort with the best food and I can't eat anything but salad. You better believe I'm taking advantage of the open bar! lol! Trust me I love food, I'd much rather pig out at the dinner than drink!!!

Aside from celiac I have chronic mono so I feel beyond tired and generally horrible the majority of the time. I get a lot of people who say they understand because "I was too tired to get to the gym this morning" or "the holidays wear everybody out". I guess they are trying to be supportive but really they are just minimizing my concerns.

bumblebee-carnival Newbie

I'm back in college and one of my teachers bought the class pizza on our last day. She said to me, "Have some pizza." I said, "Thanks, but I am gluten intolerant." She looked at me and said, "You want a breadstick?" Me and another girl looked at each other and started cracking up. I said, "Um, thank you, no." She then turned around and said, "Wait? What did you say?" Then we all started laughing. Her brother has celiac, so she knew all about it and had just heard me wrong. But it was hilarious at the time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

I'm back in college and one of my teachers bought the class pizza on our last day. She said to me, "Have some pizza." I said, "Thanks, but I am gluten intolerant." She looked at me and said, "You want a breadstick?" Me and another girl looked at each other and started cracking up. I said, "Um, thank you, no." She then turned around and said, "Wait? What did you say?" Then we all started laughing. Her brother has celiac, so she knew all about it and had just heard me wrong. But it was hilarious at the time.

Glad you have a sense of humor, bumblebee! It goes a long way when we run into moments like this!

Googles Community Regular

So at the same position, my supervisor was giving all the interns candy. She said that as she was packing it up she was hoping that I would be able to eat what she got. She had caught me on a day where I was really tired and had to literally think hard as to if I could eat the Hershey kisses she had given me (given they were out of the original package so I didn't just have an ingredient list). She was so sweet to think about that. She knows because as my supervisor I had to tell her for any accommodations I might need, but it was so sweet of her to think of me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      Insomnia help

    2. - wellthatsfun posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      nothing has changed

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,102
    • Most Online (within 30 mins)
      7,748

    Dawn74
    Newest Member
    Dawn74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
    • Charlie1946
      Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless!
    • Charlie1946
      @trents thank you! I have only been taking 20mg 1x a day. Maybe I need to increase it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.