Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aching Bones

swittenauer

Recommended Posts

swittenauer Enthusiast
swittenauer
Posted
  • Author

Well, to add to the achy bones......he has a broken leg now.

  • 11 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kirsty101 Newbie
kirsty101
Posted
I was curious if aching bones & pain in general are part of having Celiac. My husband seems to ache & hurt all over. I would like to do what I can to help him feel better but am unsure what to do. Has anyone else experienced this & if so what can be done. It seems to be an ongoing problem for him.

Before I was diagnosed with coeliac the aching bones were my main symptom. It was abit strange how it all came about..I went to bed one night feeling fine..and woke up the next morning feeling as if I'd aged about 50 years over night. And from then on my bones ached constantly for about 2 years. It was only really in the last few months before they realised that I had coeliac that I started to get the stomach pains and all of that. One thing that did help a bit, for a little while at least with my aching..was accupunture. Well the doctors had no idea what was wrong with me..they thought I had some weird form of arthritis that didn't show up on any tests they did, then they thought it was bone cancer...it went on for months. The other thing is just to have plenty of hot baths and use hot water bottles, they can give you some relief as well.

take care,

Kirsty.

  • 4 weeks later...
Smooreberry Newbie
Smooreberry
Posted
I was curious if aching bones & pain in general are part of having Celiac. My husband seems to ache & hurt all over. I would like to do what I can to help him feel better but am unsure what to do. Has anyone else experienced this & if so what can be done. It seems to be an ongoing problem for him.

I experienced the same thing! I got to the point that walking became hard. My hip joints were the worse. This actually helped me get diagnosed. I knew something was wrong when a 25 year old has trouble walking already from joint pain!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      ttg iga high (646 mg/dl) other results are normal

      The IGA TTG (aka, TTG-IGA) is the centerpiece of celiac disease blood antibody testing. A high value in this test indicates probable celiac disease, though there are other reasons (some other diseases, some medications and in some cases, even some non-gluten foods that can cause it to be elevated. And it is not unusual at all for other celiac antibody tests...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Related Issues & Disorders
      3

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      Thanks that's what I didn't know about soy hidden with wheat. I know it's autoimmune but want sure about sensitivity to corn or eggs. There's no tests for these which are non gluten is there? I have had gluten free tortillas pastas made with corn and have had eggs so I don't think it bothers me but I was curious if there was a test that does sure sensitivities...
    3. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      ttg iga high (646 mg/dl) other results are normal

      And of course I get these results (the ttg iga marked high at 646 mg/dL) on a Friday in my portal, my doctor wasn't in, and now we are in the weekend—leaving me to have to try and figure things out on my own until sometime next week. None of the nurses at the office would talk to me.
    4. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      ttg iga high (646 mg/dl) other results are normal

      peptide iga, peptide igg, and ttg igg were all marked normal with limits noted as <15.0
    5. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      ttg iga high (646 mg/dl) other results are normal

      Gliadin peptide iga was 0.7 U/mL Gliadin peptide igg was <0.4 U/mL IGA TTG was 646 mg/dL (marked high with limits noted as 40-350) IGG TTG was <0.8 UmL
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,328
    • Most Online (within 30 mins)
      7,748
    Kathy58
    Newest Member
    Kathy58
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      The IGA TTG (aka, TTG-IGA) is the centerpiece of celiac disease blood antibody testing. A high value in this test indicates probable celiac disease, though there are other reasons (some other diseases, some medications and in some cases, even some non-gluten foods that can cause it to be elevated. And it is not unusual at all for other celiac antibody tests to be normal when the TTG-IGA is high. Normally, when the TTG-IGA is elevated, the physician will order an upper GI with biopsy of the small bowel lining to check for the damage characteristic of celiac disease. The biopsy is then sent out for microscopic analysis. This is to confirm the results of the blood testing and is considered the gold standard diagnostic test. You should not begin a gluten free diet until the endoscopy/biopsy is complete. This is very important because otherwise the results will be invalidated.  This article on celiac disease blood antibody tests might be helpful to you while you are waiting for feedback from the physician:  
    • xxnonamexx
      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      By xxnonamexx · Posted

      Thanks that's what I didn't know about soy hidden with wheat. I know it's autoimmune but want sure about sensitivity to corn or eggs. There's no tests for these which are non gluten is there? I have had gluten free tortillas pastas made with corn and have had eggs so I don't think it bothers me but I was curious if there was a test that does sure sensitivities to these non gluten items for gluten-free people. Thanks
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      And of course I get these results (the ttg iga marked high at 646 mg/dL) on a Friday in my portal, my doctor wasn't in, and now we are in the weekend—leaving me to have to try and figure things out on my own until sometime next week. None of the nurses at the office would talk to me. 
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      peptide iga, peptide igg, and ttg igg were all marked normal with limits noted as <15.0
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Gliadin peptide iga was 0.7 U/mL Gliadin peptide igg was <0.4 U/mL IGA TTG was 646 mg/dL (marked high with limits noted as 40-350) IGG TTG was <0.8 UmL
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.