Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction To Dairy Substitutes


AndreaR

Recommended Posts

AndreaR Newbie

Does anyone have a reaction to the milk substitutes? I get pins and needles from soy, almond, and coconut milks. Haven't tried rice or hemp yet. Does anyone getthis type of reaction? I am lactose intolerant and also get the pins and needles from dairy products and some fruit. I am almost 4 months on a gluten free diet. I would like to find a good dairy substitute for baking and for breakfast cereal. Thanks for any explanation or ideas.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

What do all of those substitutes have in common? Read the ingredients list.

Have you considered salicylate intolerance?

Marilyn R Community Regular

Hi Andrea, and welcome to the forum.

I had neurological reactions (and still do if I get CC) before all of the other symptoms stepped in.

The only milk (I tried them all) that I could tolerate was coconut milk, but from a can, and one that didn't list any additives. I actually made my own coconut milk once too, that was a major pia. Once you give your gut a chance to heal, you may be able to tolerate dairy again.

For me, that took over a year, which seems like a really long time, but there are some great bloggers that make it easier (and interesting) to be gluten-free DF. (Coffee is going to be tough on you for awhile, maybe try green tee until your gut starts healing.)

stanleymonkey Explorer

check the substitutes are dairy free and gluten free, also soy may be an issue if you have dairy issues

rice milk is good, if you use it for baking you may need to add a tiny bit more fat to the recipe as there is a lot less in rice milk than regular dairy

our daughter is celiac and has anaphylaxis towards milk in any form, we use silk soy and almond milk and have never had an issue

so delicious coconut milk beverage is gluten and dairy free and very tasty, our daughter would drink it all day! It has fat so will replace the fat you miss out on from dairy, and is fantastic in baking, rice is better for savoury thing though

AVR1962 Collaborator

Sub dairy has additives that are worse than dairy itself. I would be watching for carrageenan, any gum, and if you are soy sensative then that of course too. I tried many but I cannot tolerate carrageenan or the gums and actually found I did better by taking a lactose aide and using actual milk.

Korwyn Explorer

Many of those (including the store bought dairy) contain the added vitamin A or D. There are multiple studies showing problems with synthetic vitamin D, plus I have an acquaintance who can't tolerate any synthetic vitamin D.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

    3. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,250
    • Most Online (within 30 mins)
      7,748

    goody33
    Newest Member
    goody33
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.