Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Tmi Topic! Sigh!


rgarton

Recommended Posts

rgarton Contributor

I know lots of topics like this but voila this is what were all here for right? Support and knowing at least one other person with Celiac disease is going through it too!

So to begin with the tmi, apologies!

I've been going from constipated to what can only be described as mud like stools in a matter of days, its infuriating, im fine with constipation, its better than the other way! But i still go to the bathroom every day its just well small amounts with mucus, after a couple of days like that, i had a bm yesterday which was surprisingly thin, not pencil thin no, just thinner, but i had hardly eaten anything the previous days (just get fed up with food) and today voila after yesterday almost pigging out for me, but no one else agrees just ate more than usual, i woke up, bm was soft, and well mud like, its dark, but because of my iron tablets, but also first bit of it was hard and covered in mucus.

After 10 months being gluten&dairy free (very strict) and 8 months soya free... when the hell is all this nonsense going to stop?!? I dread morning time, absolutely hate it and it ruins my day when i have days like this. Has anyone got any advice, my doctors just seem to sigh at me whenever i call or see them now, i don't think they realise how badly it effects me! Oh and I'm losing weight again, this time last year i was 10 and a half stone, now im only 8 nd a half, i dropped to 9stone in a matter of weeks and have been bobbing along around 8,10 for months, but now im 8,7... I am so so so fed up and tired!

Someone please just say they're going through the same thing or some advice?! Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

All I can say is after four or five years of (soy free, dairy and corn light, nasty chemicals free) I still never quite know what to expect when I go potty. I've accepted that my body has it's own definition of digestion and I get what I get.....

pricklypear1971 Community Regular

Are you on probiotics and digestive enzymes? They help me tremendously.

I think digestive enzymes help more with C.

lynnelise Apprentice

I started taking Citrucel on the advice of a friend who is a PA and it has changed my world. I thought it was just for constipation but it isn't. It makes things look normal again. Plus I swear it even seems to help some the few times I've been glutened since taking it. It makes the GI effects less severe.

mindbodysoul Newbie

I started taking Citrucel on the advice of a friend who is a PA and it has changed my world. I thought it was just for constipation but it isn't. It makes things look normal again. Plus I swear it even seems to help some the few times I've been glutened since taking it. It makes the GI effects less severe.

I second Citrucel. Eating gluten for me causes extreme constipation and discomfort. Citrucel helps keep things moving, if I'm already constipated I will take stool softeners just get it over with as well as drink lemon juice and water. I take Citrucel everyday and it really helps.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748

    BJ OConnor
    Newest Member
    BJ OConnor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.