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A Christmas Thankyou


NoodleUnit

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NoodleUnit Apprentice

I'd just like to wish everyone a Merry Christmas and voice my thanks to the eternally helpful regulars on here. It was about a year ago ( actually I can pinpoint boxing day as a key moment ) that I started to hit a brick wall with my health. It was very much due to the helpful and knowledgable posters here that I managed to eventually see a way past it. I'm pretty sure I'll still be putting my hand up to ask for advice for months and years to come. It's an absolute roller coaster.

So once again... Thanks folks :) and have a good holiday!


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IrishHeart Veteran

Hey Noodle! :)

How sweet of you to express your thanks.

I also say thanks to the veterans and regulars for all the encouragement and support this past year. I could not have recovered so well without you. :wub:

Happy and HEALTHY New Year to us all.

Cheers,

IH

bartfull Rising Star

YES!!!! I can honestly say that if it weren't for the knowledgable advice and the help figuring this out, I would still be a very miserable person. Thanks to this forum and the wonderful people on it, I am going to enjoy Christmas in relatively good health. I will be grateful forever, and I wish all of you a wonderful holiday season.

Roda Rising Star

Merry Christmas everyone!

ravenwoodglass Mentor

I wish everyone a Merry Christmas also. Whether you are celebrating alone or with family or friends the knowledge and kindness of so many here helps to ensure, as much as possible, that our meals will be safe and we can look forward to a healhier and happier New Year.

mushroom Proficient

Happy gluten free holidays to all :)

Bubba's Mom Enthusiast

Merry Christmas to all of my new gluten-free friends! This is my first Christmas since DX.

Thank you so much for answering the questions I've asked, even though you've seen those same qustions so many times before, and thank you for helping me figure out how to live the gluten-free lifestyle correctly.

Thanks also for helping me decipher tests and helping me know what questions to ask. I have a ways to go before I can say I'm healthy..but thanks to your encouragement I made our traditional lasagna dinner..and nobody noticed it was gluten-free! :D


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    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
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