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Hello From A Canada :)


Gradiva

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Gradiva Newbie

Hi everyone, and Merry Christmas :)

So, as everyone (or the majority of the users here), I've been diagnosed with Gluten allergy. To be honest, at the beginning, I took it really badly for two reasons:

  1. I already have other allgies (like most of you), but ones that have been quite new. The weirdest one was when eating salmon caused me an anaphylaxia. Later on, I was told by my doctor, that when the fish is not killed instantly, its system releases a substance similar to adrenaline that runs in its muscle and flesh as long as it remains alive, and doesn't disappear when it dies. And it appears, it's something that is highly allergenic. I honestly thought it was a joke. But well, in short I was already paying attention to what is in my plate.
  2. I LOVE bread. It may sound stupid, but i ate bread at every single lunch. I know there are gluten-free breads' recipes, thank Lord. I'm going to buy a bread machine on boxing days and start my quest for the perfect recipe.

I had been sick for several months, but I spent the whole month of November without eating (well, only a veggie soup a day and tea), while the "doctors" I have here in Canada tried to decipher why I couldn't digest anything. It's actually my doctor from France who thought of Gluten allergy or Celiac disease. He told me to try to eat gluten-free. So I started to eat a bit more again, all gluten-free, and I'm feeling better now. I'm still learning what I can eat or not. Though, I noticed that I cannot drink Coke or Sprite, it makes me sick again.

I will go back to France for a week to see a specialist and run all the tests, as here, you need to wait for at least three months (and it's more likely that the waiting period is going to be longer) before getting an appointment <_<

Anyhoo, I joined this forum, because everytime I google something related to my new diet, I always find the best answer here :)

Again, I wish you hall a Merry Christmas :)


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sora Community Regular

Hi everyone, and Merry Christmas :)

So, as everyone (or the majority of the users here), I've been diagnosed with Gluten allergy. To be honest, at the beginning, I took it really badly for two reasons:

  1. I already have other allgies (like most of you), but ones that have been quite new. The weirdest one was when eating salmon caused me an anaphylaxia. Later on, I was told by my doctor, that when the fish is not killed instantly, its system releases a substance similar to adrenaline that runs in its muscle and flesh as long as it remains alive, and doesn't disappear when it dies. And it appears, it's something that is highly allergenic. I honestly thought it was a joke. But well, in short I was already paying attention to what is in my plate.
  2. I LOVE bread. It may sound stupid, but i ate bread at every single lunch. I know there are gluten-free breads' recipes, thank Lord. I'm going to buy a bread machine on boxing days and start my quest for the perfect recipe.

I had been sick for several months, but I spent the whole month of November without eating (well, only a veggie soup a day and tea), while the "doctors" I have here in Canada tried to decipher why I couldn't digest anything. It's actually my doctor from France who thought of Gluten allergy or Celiac disease. He told me to try to eat gluten-free. So I started to eat a bit more again, all gluten-free, and I'm feeling better now. I'm still learning what I can eat or not. Though, I noticed that I cannot drink Coke or Sprite, it makes me sick again.

I will go back to France for a week to see a specialist and run all the tests, as here, you need to wait for at least three months (and it's more likely that the waiting period is going to be longer) before getting an appointment <_<

Anyhoo, I joined this forum, because everytime I google something related to my new diet, I always find the best answer here :)

Again, I wish you hall a Merry Christmas :)

Welcome.

Where are you? I am in Ottawa and fairly new to all of this as well.

psawyer Proficient

Welcome. I'm in the Greater Toronto Area.

love2travel Mentor

Hi there! I am from Alberta. :)

Gradiva Newbie

Wow, it's so great to see other Canadians here :)

I'm from Toronto :) Thank you for the warm welcome!

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
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