Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I'm Missing Something....


upwitht21

Recommended Posts

upwitht21 Rookie

Hi everyone and merry Christmas,

So my family has been gluten free for about a month. New cookware, toaster, strainer, ect have been purchased. I've been really trying to avoid processed food but I think I'm missing something. My bone pain has definitely improved but now I have stomach problems I didn't have before. Is there anything that you guys missed at first that I should look at changing? I changed lotions and things like that as well.

Thanks!

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Strawberry-Jam Enthusiast

sorry, how long have you been gluten free?

it took 3-6 months before certain symptoms of mine resolved. I experienced a new symptom--bloating and gas--which was new, but went away in time.

healing is so confusing.

Marilyn R Community Regular

sorry, how long have you been gluten free?

it took 3-6 months before certain symptoms of mine resolved. I experienced a new symptom--bloating and gas--which was new, but went away in time.

healing is so confusing.

If your gut is damaged, it could also be one of the common culprits like dairy, soy, corn or other grains (like certifed gluten-free oats or other "safe" grains. Fortunately these may be items you can safely reintroduce in time. Foods in the nightshade family bother some people after going gluten-free too.

Try keeping a food diary. It also helped me to go to an allergist. Good luck!

upwitht21 Rookie

I had zero stomach problems before I changed my diet. I was actually tested because we have fertility problems. In a lot of ways I feel worse than I did. We decided that I wouldn't do a biopsy since my labs were all high but I'm considering going back on gluten and having the biopsy. I've only been gluten free for a about a month. I've been avoiding dairy as much as possible and I'm not s huge fan of tomatoes or the other nightshade veggies so they aren't a problem.

I'm so incredibly frustrated right now.

mamaw Community Regular

Your body may be de-toxing. A month is really nothing in terms of being gluten-free.. I call it the infancy stage. It can take several years for some people to feel better ... Everyone is different..You have taken out (wheat) something that your body was having to digest for probably years & years, then all of a sudden you take it away.. Body just may be having withdrawals & fighting back...

You could try some digestive enzymes ( I use Digest Gold) and probiotics... I think I would try anything before having to go back to eating gluten ! Also very clean eating could help for a few months. Cutting out processed foods & junk foods....just a plain basic diet...

eatmeat4good Enthusiast

I had a lot of stomach rumbling and nausea in the first few months gluten free. Your stomach isn't used to not having to deal with gluten. I had to use Promethazine by prescription for the nausea. I decided the "baby villi" were just trying to grow back. It was a long few months and I had secondary intolerances too. I didn't think I would have the secondary intolerances, but dairy, soy, preservatives, and salicylates all bothered me in the early stages of healing. It took forever to figure it out. Finally I went grain free and that is when I started healing really really fast. Just wanted you to know the early months are rough just like the other posters have said. But hang in there because it really is all worth it.

upwitht21 Rookie

Thanks for all the advice glad to know this normal lol sucks to have stomach problems now but hopefully it will get better. My 9 year seems totally fine with the change so thank goodness for that.

....Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

It can take a while for your bodies' gut flora to get right after removing gluten. It can help to take pro-biotics and remove sugar and starches. Dairy is a fairly common problem as the tips of the villi make the lactase enzyme that breaks down the lactose sugar in cow dairy. So it can help to go off dairy for a few months and see if that improves things. The villi can heal/regrow though and then they can make the lactase enzyme again and the dairy may not bother you then.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    2. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    3. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    4. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.