Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Photo Included...tell Me What You Think


Metoo

Recommended Posts

Metoo Enthusiast

I finally have some photos. Tell me what you think. The top photo is what is left after I had thousands of tiny blisters under my skin, I had gluten 2 days in a row....some are still blisters but they are tiny and don't show up in a photo. This is very painful...its small but it is incredibly painful, its peaked in pain though, today is better than yesterday.

The bottom 2 photos are the blister stage, before they have popped...they are so hard to get to show in a photo because they are as white as I am. lol. There are hundreds on my pinky in the photo. The one picture has one 'large' one.

72yp82.webp

2eumj5x.webp

f37xhv.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

It's hard to tell from the photos, but do they look like whitehead pimples, and then after a day or two become just red dots? Or are they more like clear blisters? You say it hurts but you don't mention itching. Do you get this on your feet too? Any other parts of the body? And when it heals, does it get really dry and crack and peel?

I have palmoplantar pustular psoriasis. This might be what you have. I get it on the palms of my hands, sometimes on my fingers, and on the heels and soles of my feet. It might itch a little bit once in a while, but the itching is minor compared to the pain. Any pressure on the pustules hurts, and of course the healing stage where the skin cracks open is very painful too.

The good news is that as long as I stay gluten and corn free, I'm fine and it clears up. The bad news is that it is so darned hard to stay away from my triggers that every time I turn around, something gets me.

Have you noticed any difference gluten free? It may be possible that you have other intolerances that are causing it too. For me it is BOTH gluten and corn. For you it might be nightshades or one of the many other foods that bother some of us.

Metoo Enthusiast

It's hard to tell from the photos, but do they look like whitehead pimples, and then after a day or two become just red dots? Or are they more like clear blisters? You say it hurts but you don't mention itching. Do you get this on your feet too? Any other parts of the body? And when it heals, does it get really dry and crack and peel?

I have palmoplantar pustular psoriasis. This might be what you have. I get it on the palms of my hands, sometimes on my fingers, and on the heels and soles of my feet. It might itch a little bit once in a while, but the itching is minor compared to the pain. Any pressure on the pustules hurts, and of course the healing stage where the skin cracks open is very painful too.

The good news is that as long as I stay gluten and corn free, I'm fine and it clears up. The bad news is that it is so darned hard to stay away from my triggers that every time I turn around, something gets me.

Have you noticed any difference gluten free? It may be possible that you have other intolerances that are causing it too. For me it is BOTH gluten and corn. For you it might be nightshades or one of the many other foods that bother some of us.

They are clear blisters. If they don't pop they turn sort of a brownish shade. The intensly itch often, and are bothersome sort of like a pain feeling before they begin to crack. Once they crack they are intensly painful and it kind of cracks, peels off then leaves a raw area.

I have noticed a difference gluten free, they entirely went away...then came back in a much larger area then before. I don't have it anywhere else at this point except on the side of my palm.

eatmeat4good Enthusiast

This is exactly how the DH on my fingers looked and felt. Itchy, clear, tiny skin colored blisters that pop and then hurt like the devil. I later developed much more severe DH on my face and back of my neck. I've read of other's whose DH started like this too. You are right to be concerned and gluten free. Especially since it seemed to go away when you were gluten free. Now just to watch for traces of gluten, cross-contamination and observe whether Iodine is effecting you. Iodine can keep lesions active so if that happens you can follow the thyca.com diet which is a low iodine diet just until the lesions heal. Yup...I would say it's DH.

squirmingitch Veteran

Me too Metoo. That is what the dh on my hands looks like although I rarely get them on my palms or undersides of fingers. They occur mostly on the backs & sides of my hands & fingers. I think they are more painful on my hands than any other portion of my body. And that is how my dh first began but I have never been able to keep from popping the blister to relive the itch even temporarily. And I might add that those kind of blisters are how all my dh began manifesting. It's frustrating because it's hard enough to see the blisters in person, much less get them to show up on a photo. Then I began to get them on my ankles & backs of my calves & knees. Then more & more places. Then my scalp. Then........

It's weird but when I began to get major outbreaks over large portions of my body beginning in April of this year; then my hands stayed clear. Now I'm TOTALLY gluten free since Thanksgiving & this last week my hands began breaking out again. Overall my dh is improving rapidly everyday ---- intensity wise & the length of time for each blister or lesion. It's almost as if the dh is a living being & is having it's "last hurrah".

I would say yours is dh.

Di2011 Enthusiast

Ditto for me too.

My hands are the last area of my body to be affected. Started at the ankles and worked itself upward. At the moment my upper torso and arms/hands are still affected with general itching elsewhere. But if you haven't had it on your upper thigh/buttocks then you haven't had the worst of it. Avoid gluten in any form (if you don't know what a chemical/additive is then research - anything vaguely or possibly wheat/gluten derived is a no-go for me even if claimed to be gluten free eg. xanthan gum E415) You do not want this to spread or intensify.

Ice packs and antihistimine (polaromine/phenergan - not for the "allergy" relief but for the brain/nerve ease and sleep helper) have helped me to some degree. Get the ice/cold packs on to avoid destroying your skin. I have five cold packs on hand and when things get bad I rotate through them. Evenings/nights are bad so when I get itchy I sleep with them. Good luck .. and know that I/we are thinking of you.

After 3 months strictly(very very strictly - see the "sensitive" thread) and 6 months (with mistakes etc) gluten free I am finally adding back a bit of iodine foods without particular issue on consumption.

LabyrinthRunner13 Rookie

I totally agree with everyone else. My blisters start out under the skin on my fingers and hands and if I am really good and dont pop them, then they turn yellow. And then I HAVE to pop them. No matter how determined I am, I can't stand it. Even to the point where I would scratch them like crazy in my sleep.

I also know what you mean about them being hard to photograph. But, I agree with what everybody else has said. Its probably DH. When I went gluten free, mine went away in about a month. Its not a fun diet, but when my hands look even remotely "normal" I get so excited I have to show everybody! Its worth it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
Lorisc Newbie

My hands look like this but a lot worse. I went on a 7 day fast, juice only, and only at the very end did they show signs on clearing up. I've had this since I was 13 or 14 but it's getting worse. I'm just now finding out it's gluten. I've known for a year I was allergic to corn but this is going to be interesting. I've only had abdominal pain but no other gi symptoms. Now itchy skin, i always thought it was normal to always have extremely itchy skin! I have the clear blisters on my hands and feet and red rash now on my hands. Does anyone know where I can kind a chart for foods to eat and not eat? Thank you!

weaselfish Rookie

My hands look like this but a lot worse. I went on a 7 day fast, juice only, and only at the very end did they show signs on clearing up. I've had this since I was 13 or 14 but it's getting worse. I'm just now finding out it's gluten. I've known for a year I was allergic to corn but this is going to be interesting. I've only had abdominal pain but no other gi symptoms. Now itchy skin, i always thought it was normal to always have extremely itchy skin! I have the clear blisters on my hands and feet and red rash now on my hands. Does anyone know where I can kind a chart for foods to eat and not eat? Thank you!

Hi Lorisc,

Check this site out as a start:

Open Original Shared Link

Then use a search engine like google or this alternative:

Open Original Shared Link

and search for gluten free topics like this:

"gluten free bread"

"gluten free re-fried beans"

etc . . . ( use the double-quotes !!! )

During my own personal research on Dermatitis Herpetiformis / Celiac, I've collected many valuable links regarding the affliction. If you'd like me to post them for you, just let me know.

Best of luck and healing,

WF

Lorisc Newbie

Thank you for responding! I would really appreciate any links or articles anything! I will do as you suggested!

Thank you!

Quote name='weaselfish' timestamp='1327526306' post='768068']

Hi Lorisc,

Check this site out as a start:

Open Original Shared Link

Then use a search engine like google or this alternative:

Open Original Shared Link

and search for gluten free topics like this:

"gluten free bread"

"gluten free re-fried beans"

etc . . . ( use the double-quotes !!! )

During my own personal research on Dermatitis Herpetiformis / Celiac, I've collected many valuable links regarding the affliction. If you'd like me to post them for you, just let me know.

Best of luck and healing,

WF

rosetapper23 Explorer

I get DH on my face, neck, the sole of one foot, and on one palm....and it looks JUST like your photos. Remember, to get better, you may need to avoid iodine. That means that you'll need to avoid seafood, iodized salt, asparagus, and some brands of dairy.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,346
    • Most Online (within 30 mins)
      7,748

    CourtneyDave
    Newest Member
    CourtneyDave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...