Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If My Toddler Needs To Go Gluten Free!


erinmom

Recommended Posts

erinmom Newbie

my 20 month is a picky eater barely eats! She wakes up throug the night VERY THIRSTY!! her doctor put her on pedisure bc she wasnt eating and not gaining the propery weight! pediatric gasterologist put her on probotics bc she is VERY GASSY and would wake up in the middle of the night with gas! we are on lactose free milk! i need some help bc her doctor isnt doing the job i am one worried mama!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Have they tested her for Diabetes? I think in little ones being thirsty is a symptom. It could also be that she has some sinus blockage & is breathing with her mouth open? Have they tested her vitamin & iron levels? Did they blood test for Celiac?

Doctors can be so hard to deal with! :blink:

erinmom Newbie

Have they tested her for Diabetes? I think in little ones being thirsty is a symptom. It could also be that she has some sinus blockage & is breathing with her mouth open? Have they tested her vitamin & iron levels? Did they blood test for Celiac?

Doctors can be so hard to deal with! :blink:

we were tested for diabetes and they say she was fine!!!!!! they have done blood test but act as everything is fine, but something is going on for sure!!!!! i have no clue what to do bc doctors are NO HELP!!!!!!!!! i just want my silly funny toddler back!:)

kareng Grand Master

Get copies of all her blood work and any other tests they have done. You need to see if they have done the right tests. You may need to try another doctor.

erinmom Newbie

ok thanks what all testing needs to be done to see if this is the problem?

Booghead Contributor

Well testing for celiacs in a toddler is pointless, it never comes back positive.

It doesn't really sound like that is her problem though. Children can just be thirsty or, if she is waking in the night telling you she is thirsty she might just be trying to delay going back to bed. I don't really know what goes on because I don't live with you :P I would try to get a better doctor if you can. Doctors need to listen and yours does not.

Best of Luck to you and your little one. B)

erinmom Newbie

Well testing for celiacs in a toddler is pointless, it never comes back positive.

It doesn't really sound like that is her problem though. Children can just be thirsty or, if she is waking in the night telling you she is thirsty she might just be trying to delay going back to bed. I don't really know what goes on because I don't live with you :P I would try to get a better doctor if you can. Doctors need to listen and yours does not.

Best of Luck to you and your little one. B)

thanks yeah she wakes up like she is starving but when i give her a drink it sucks it down with like 2 sips and back to sleep she goes! and with her not eating it didnt worry me at first but its going on for 8 months we are living off lactose free milk, pedisure, juice and water and tad bit of food here and there! and no her doctor doesnt listen and my husband probably thinks im crazy too but with my five year old i never had this problem so i am a concerned mama! and yes i heard that testing in toddlers never come back postive! guess its time to look into a new doctor!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

I think celiac testing in infants is not very reliable. That would be something to check out. Lactose is not the only possible problem with milk though. It could also be casein, the protein in milk causing a problem. You could try her on non-dairy milk (not soy though) and see if she improves. Rice or hemp or almond milk. Don't use the Dream milks though as they use barley in them.

Open Original Shared Link

erinmom Newbie

thanks i will try this! something has to work would it hurt fir me to try the gluten free diet?

StephanieL Enthusiast

Well testing for celiacs in a toddler is pointless, it never comes back positive.

That just isn't true. I know of many kids 3 and under who test +.

erinmom Newbie

so do i need to see about getting her tested?

alex11602 Collaborator

so do i need to see about getting her tested?

I would definitely try to get her tested because down the road for school it will be easier to get accomidations and if it was positive there would be no doubts that gluten was the problem. But after all testing is completed, even if it's negative, you could always trial her gluten free for 3-6 months and see if it helps. Going gluten free is not harmful as long as she is eating nutritious foods and seeing her diet now I don't think it would hurt at all to try.

StephanieL Enthusiast

Yes, what Alex said :)

erinmom Newbie

thanks so much i will get with her doctor! i dont want to run into problems at school and such thanks!:)

M0Mto3 Rookie

I think that you should talk to your ped about seeing someone for feeding issues. Has she always not eaten much or is this new? Is she acting ill? Is she having a lot of bowel movements or frequent urination? If she is not eating much during the day it wouldn't be surprising that she is waking up acting like she is starving. I would really work on her feeding before trying anything else. It sounds like she might just be too busy during the day to eat and then she is hungry at night. Also, with her being gassy...it is much more common for toddlers to have issues with the protein in milk than with lactose. I would do what PP said and try soy or almond milk. You can also try cutting out all dairy. Some kids have a lot of GI trouble from dairy.

An issue with dairy is far more common in toddlers than Celiac's. I would probably try cutting out all dairy (even trace amounts) first. If you aren't seeing changes within 2 weeks I would then pursue testing for Celiac's.

erinmom Newbie

I think that you should talk to your ped about seeing someone for feeding issues. Has she always not eaten much or is this new? Is she acting ill? Is she having a lot of bowel movements or frequent urination? If she is not eating much during the day it wouldn't be surprising that she is waking up acting like she is starving. I would really work on her feeding before trying anything else. It sounds like she might just be too busy during the day to eat and then she is hungry at night. Also, with her being gassy...it is much more common for toddlers to have issues with the protein in milk than with lactose. I would do what PP said and try soy or almond milk. You can also try cutting out all dairy. Some kids have a lot of GI trouble from dairy.

An issue with dairy is far more common in toddlers than Celiac's. I would probably try cutting out all dairy (even trace amounts) first. If you aren't seeing changes within 2 weeks I would then pursue testing for Celiac's.

thanks so much!!!!!! im going to try all this :)

GFinDC Veteran

I wouldn't try soy milk. There was a study not long ago published about people putting their kids on soy milk after they had milk reactions. The kids ended up having even more food allergies develop after being put on soy. Soy and guts are not a good combo.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.