Running Out Of Foods To Eat

[allergyprone]

ok so I've been gluten-free for 2 almost 3 years and recently more and more foods have been bugging me. I know its not cc because I live alone have all my own dishes buy all my own food and stay away from processed foods. most foods give me a stomach ache, indigestion, and make me feel awful for a day or two. I'm not sure if it is each food or some enzyme or mold or some protein or what, but these are the things that i have noticed mess with me

gluten

dairy

eggs

peanuts- slight allergy

beans

tomatos

potatos

broccoli

caloflower

oats- gluten reaction

peppers

yellow corn

rice (wild, short grain, long grain, jasmine, brown)

chocolate

bananas - oral allergy

avacados- extreme itching

cabage

soy

strawberries

caffiene

and about 20 other things

I am basically eating peas and meat which I know is not healthy but it is causing me the least amount of pain so.

I was wondering if anyone knows steps i can take to find out what is actually bothering me (food,protien,enzyme...) and/or what to do about it other then avoiding them. my mom suggested seeing a dietionist but i don't know where to find one or if i would need a referal

thanks

ap

[sa1937]

I was wondering if anyone knows steps i can take to find out what is actually bothering me (food,protien,enzyme...) and/or what to do about it other then avoiding them. my mom suggested seeing a dietionist but i don't know where to find one or if i would need a referal

thanks

ap

I also live alone so have total control in my kitchen. At 18-months gluten-free and being very careful with my diet, I was still having some problems and what helped significantly was to start taking a probiotic...specifically Culturelle Digestive Health (thanks, IrishHeart for suggesting that!). I was also thinking of taking a digestive enzyme but honestly don't think I need it now.

FWIW, I never did go to a dietition and I have a feeling that you *may* know more than she does. But if you can find a good one who understands celiac, she may be able to help you.

[dilettantesteph]

Elimination diets and a food diary? That's probably how you have gotten where you are so far. Can you try to get really clean versions of some of those things directly from a farmer who doesn't put anything on them to test if it is pesticides or something used in processing?

I have found that I have problems with many things from the store, but if I grow them myself, or get them from farmer Phillip, I don't.

I hope you find some more foods soon.

[Bubba's Mom]

My goodness..that's a pretty long list! If you've been gluten-free this long and are sure you're not getting cc, you might have something else going on?

You *could* have a small intestine bacterial overgrowth(SIBO)..or maybe Candida? It seems like something is causing leaky gut syndrome? I was told it's hard to diagnose those problems, but they are common.

Digestive enzymes might help, but I think the strongest recommendation I can give is the probiotics..like Sylvia said. I take two different brands, Culturelle being one of them. I take them twice a day. There are a lot of different strains of the "healthy" bacteria in probiotics, so IMHO it's good to take one that has more than one strain?

Once your system settles down you should be able to add some things back in.

[GottaSki]

Good Morning and Happy New Year to you!

Sounds like you already are on the right track and don't believe a dietician can provide much insight into what you already know. I went to one on the recommendation of my Celiac Doc the week after I was dx'd and already knew more than she did and she was connected with a major Celiac Center!

I also have a long list of food intolerance that I discovered by strict elimination diet started on August 10.

If you have already done that...another thing you might check out is "Food Combining" -- many with digestive issues improve when following the rules...we aren't strict about them, but we do try to incorporate them into our meal choices.

Take care, hope you find you find the last pieces of your puzzle!!!

-Lisa

[GottaSki]

Oh...and don't forget to keep a log of when you removed foods...try them again after 6 months or more as healing may bring the ability to digest some of them back. I get to try avocado on Valentine's Day...can't wait

[missy'smom]

ok so I've been gluten-free for 2 almost 3 years and recently more and more foods have been bugging me. I know its not cc because I live alone have all my own dishes buy all my own food and stay away from processed foods. most foods give me a stomach ache, indigestion, and make me feel awful for a day or two. I'm not sure if it is each food or some enzyme or mold or some protein or what, but these are the things that i have noticed mess with me

gluten

dairy

eggs

peanuts- slight allergy

beans

tomatos

potatos

broccoli

caloflower

oats- gluten reaction

peppers

yellow corn

rice (wild, short grain, long grain, jasmine, brown)

chocolate

bananas - oral allergy

avacados- extreme itching

cabage

soy

strawberries

caffiene

and about 20 other things

I am basically eating peas and meat which I know is not healthy but it is causing me the least amount of pain so.

I was wondering if anyone knows steps i can take to find out what is actually bothering me (food,protien,enzyme...) and/or what to do about it other then avoiding them. my mom suggested seeing a dietionist but i don't know where to find one or if i would need a referal

thanks

ap

I've been gluten-free 5 years or so. Your list of avoids is about like mine. I have most of yours on my avoids list too all except the strawberries, rices and oats. I have many others you didn't list as well. You should try less commonly eaten veg etc. Go to the asian section or asian market and try bok choy, lotus root, or regular grocer and try kale, chard. That's what I had to do to get back some variety. I don't see pumpkin on your list. Asian pumpkin "kabocha squash" is good and easy to prepare. A number of others that you didn't list. But I kow our lists are too long to list in all their fullness

I started my journey with food allergy testing-skin and eliminated all that I tested pos, to and then avoided for 4 weeks and started reintroducing them one at a time, keeping a food journal and taking them back out if I got symptoms. Still doing that. This year I discovered a 4 day rotation diet and am doing that to prevent new allergies and maintain balance with food that I was previously allergic to but have successfully reintroduced.

In Jan. I am going in for a colonoscopy and endoscopy with lots of biopsies planned to see what's going on in my GI tract and get some insight n why I end up allergic to frequently eaten foods.

If you are allergic/symtomatic to both avacados and bananas you should consider being allergy tested for latex. Those are the 2 top cross-reactors for latex. This is not THE indicator of latex allergy but do you get band-aid marks from band-aids?

[IrishHeart]

IMHO

A dietician will not be of much use. You already know what's bothering you.

If you are having reactions to that many foods-- as I once was ---it is not necessarily the food proteins themselves causing the problem, but your gut.

You can keep switching foods in and out until doomsday and never find the culprit. Many of us have had this similar frustrating experience. I was removing foods at such frequency because my gut always hurt and I had allergic responses like itchy, burning skin, swelling, coughing, sinus pain, dry eyes, mouth sores, etc. no matter what I ate that Hubs joked I would be down to driveway gravel and water soon. I paid for expensive/expensive food allergy and intolerance testing and did an elimination and rotation diet for 10 months. What did it reveal? Absolutely nothing.

WHAT may be causing your gut to reject them is what you want to find out.

Have you seen a gastroenterologist to rule out any abnormalities of the GI tract or infections like h. pylori ?

If you know your celiac is in remission then it could be something else is making your digestive tract irritated or leaky.

Do you use antibiotics? A lot of NSAIDs or alcohol? If so, they may be the problem.

But the most frequent cause of gut imbalance is a lack of sufficient good bacteria.

Some ways to correct a leaky gut include digestive enzymes and probiotics.

I would suggest you start with those--they solved my problem in a few months post DX --after I had been unable to swallow or digest foods without severe burning pain and bowel problems for over 3 years.

If not, see a GI you can trust to do follow-up testing.

Best wishes to you!

[missy'smom]

IMHO

A dietician will not be of much use. You already know what's bothering you.

If you are having reactions to that many foods-- as I once was ---it is not necessarily the food proteins themselves causing the problem, but your gut.

You can keep switching foods in and out until doomsday and never find the culprit. Many of us have had this similar frustrating experience. I was removing foods at such frequency because my gut always hurt and I had allergic responses like itchy, burning skin, swelling, coughing, sinus pain, dry eyes, mouth sores, etc. no matter what I ate that Hubs joked I would be down to driveway gravel and water soon. I paid for expensive/expensive food allergy and intolerance testing and did an elimination and rotation diet for 10 months. What did it reveal? Absolutely nothing.

WHAT may be causing your gut to reject them is what you want to find out.

Have you seen a gastroenterologist to rule out any abnormalities of the GI tract or infections like h. pylori ?

If you know your celiac is in remission then it could be something else is making your digestive tract irritated or leaky.

Do you use antibiotics? A lot of NSAIDs or alcohol? If so, they may be the problem.

But the most frequent cause of gut imbalance is a lack of sufficient good bacteria.

Some ways to correct a leaky gut include digestive enzymes and probiotics.

I would suggest you start with those--they solved my problem in a few months post DX --after I had been unable to swallow or digest foods without severe burning pain and bowel problems for over 3 years.

If not, see a GI you can trust to do follow-up testing.

Best wishes to you!

Thank you for sharing irisheart, so true about the dietician. I finally caved recently and jumped through the hoops just for the docs and saw one. I would recommend her. She was good but she was honest and didn't even charge me for the full session because she didn't feel she could do anything for me aside what I was already doing for myself. She basically said keep googling things like I've been. At least I know if I am desperate again and need to talk things through with someone I can go to her. I know what I am doing now is just a band-aid, this rotation. It is hard. I'm tired and just want to eat without so much thought. Did just the pro-biotics really help that much? If I break down and spend the $ to take it everyday is there some hope that will be enough? I do take it on occasion when things get out of whack, but have just not taken it everyday due to expense. The endoscopy and biopsy are risky for me due to my bad latex allergy but I am willing to do it to find more answers to help us make decisions and my GI is good and very knowledgeable about celiac disease and related issues. I can't do digestive enzymes due to food allergy/latex allergy issues but I can be more consistant with the pro-biotics if I think the benefit will outweigh the cost.

[IrishHeart]

I use ones recommended by my very celiac-savvy GI doc. The are a good broad-spectrum one studied extensively.

CULTURELLE --DF and gluten-free. OTC about $19. or so-- for a 30-day supply. .

Take them every day, not just sporadically. It's worth a try. And they are beneficial and cannot hurt you--they occur naturally in your body.

I am not sure about something you said, hon --you may have to explain it to me---but why can't you take digestive enzymes due to latex allergy? which foods are those?

[missy'smom]

I use ones recommended by my very celiac-savvy GI doc. The are a good broad-spectrum one studied extensively.

CULTURELLE --DF and gluten-free. OTC about $19. or so-- for a 30-day supply. .

Take them every day, not just sporadically. It's worth a try. And they are beneficial and cannot hurt you--they occur naturally in your body.

I am not sure about something you said, hon --you may have to explain it to me---but why can't you take digestive enzymes due to latex allergy? which foods are those?

I know probiotics are harmless and very beneficial, just so many expenses...I have monthly diabetes supplies to buy too.

I end up allergic to anything I eat frequently and my body's defenition of frequently is probably normal for anyone else. I am very concerned about losing more foods/ingredients and even supplements. Add to that the fact that I am still underweight...I had looked into Houston enzymes but again the worries about food based supplements. Latex cross-reactors are numerous but the big top ones are bananas, kiwi and avacados but I am concerned about bromeliads/pineapple family as well. A few of my food allergies have gone to the level of oils this year. I feel like once they go in the direction of ana reactions, cc level sensetivity, oil level sensitivity that's a point of no return Maybe I am wrong. I wish so. But in time it may play out that some of my food allergies are leaky gut which might be turned around and some are latex-cross-reactors which might be permanent. We shall see.

[IrishHeart]

I know probiotics are harmless and very beneficial, just so many expenses...I have monthly diabetes supplies to buy too.

I end up allergic to anything I eat frequently and my body's defenition of frequently is probably normal for anyone else. I am very concerned about losing more foods/ingredients and even supplements. Add to that the fact that I am still underweight...I had looked into Houston enzymes but again the worries about food based supplements. Latex cross-reactors are numerous but the big top ones are bananas, kiwi and avacados but I am concerned about bromeliads/pineapple family as well. A few of my food allergies have gone to the level of oils this year. I feel like once they go in the direction of ana reactions, cc level sensetivity, oil level sensitivity that's a point of no return Maybe I am wrong. I wish so. But in time it may play out that some of my food allergies are leaky gut which might be turned around and some are latex-cross-reactors which might be permanent. We shall see.

I understand. My sister has diabetes and managing it takes work. My friend--a nurse--developed a latex allergy and had to leave her career as a surgical nurse. Very sad. It gets crazy when the body goes haywire.

I am hoping you can heal the gut and tolerate some more foods once more.

I am still stunned by what happened to me sometimes and now that I am able to eat foods that were absolutely off limits to me for so long--well, I am

grateful and relieved ---as I was essentially, starving.

I am not kidding. I could not swallow water without pain. Just crazy.

I sincerely hope you resolve this--and I hope the probiotics help.

Best wishes to you. IH

[missy'smom]

I understand. My sister has diabetes and managing it takes work. My friend--a nurse--developed a latex allergy and had to leave her career as a surgical nurse. Very sad. It gets crazy when the body goes haywire.

I am hoping you can heal the gut and tolerate some more foods once more.

I am still stunned by what happened to me sometimes and now that I am able to eat foods that were absolutely off limits to me for so long--well, I am

grateful and relieved ---as I was essentially, starving.

I am not kidding. I could not swallow water without pain. Just crazy.

I sincerely hope you resolve this--and I hope the probiotics help.

Best wishes to you. IH

Thank You-Sincerely.

I think you can understand. I am stuck with the latex, a few food allergies and diabetes but it would help a lot to STOP becoming allergic to foods and get rid of a few food allergies. To achieve some stable status quo would help and be welcome. After 5 years I am tired of reinventing the wheel and rules changing every time I gain some stability.

I am glad to hear of your relief and success.

[IrishHeart]

Thank You-Sincerely.

I think you can understand. I am stuck with the latex, a few food allergies and diabetes but it would help a lot to STOP becoming allergic to foods and get rid of a few food allergies. To achieve some stable status quo would help and be welcome. After 5 years I am tired of reinventing the wheel and rules changing every time I gain some stability.

I am glad to hear of your relief and success.

yes, that's how I felt--reinventing the wheel over and over. Insane.

I have a long recovery ahead of me. I suffered massive muscle and joint and nerve damage from long UnDXed celiac, but at least I can absorb foods now.

I am in Physical therapy, massage therapy etc. etc. several times a week. it's tiring and I get frustrated because in essence, I could not walk, stand, sit or lie down without excruciating pain for 3 years. It was just awful.

So, each of us on here seems to have a battle, but we cannot give up and we can only keep working to achieve maximum health. I hope we all have a better New Year!

Best wishes,

IH

[collgwg]

hi hun i know just how you feel

i have the same list of foods that my body just does not like and of course theyare all foods are are yummy lol

but like irisheart said probiotics and digestive enzimes are your friends i try to take them everyday im too on a limited budget i take 1-2 a day and my supplements have digestive enz in them i was not able to take them a month ago but with taking nystead oral liquid i am able to stop the burning and hurting

but with that being stoped i get in my head oh mabe i can try lactose lol yea right my body says i dont like lactose of any kind and hurts me for it lol

all i can do is just keep trying foods and if they react dont eat them and if they do react eat

its so frustrateing to have such limited food choices when everyone around you is eating what i like to call normal food

i too would love to eat something with out giving it a second thought but this is why we have brains for us to do what is right for our digestive tracks cuase our digestive tracks can not tell us no dont eat that it will hurt me

our bodies have a wonderful way of healing as long as we eat foods that dont cause dammage it sure is a life style change

and its hard i know i acutally hacve to change the channel when there are food comurcials on tv lol

i hope you can find some sort of relief soon and calm that gut down ofyours

huggs

[missy'smom]

Thanks for your support. I talked with my DH last night and he said go ahead and spend the $ and take it regularly. So I'll give it a try and get my scopies and keep trying to reintroduce previously avoided foods etc.

[sa1937]

I'm glad I listened to Irish Heart, too, when she suggested I take Culturelle (Digestive Health). It has made such a significant difference in the way I feel. I pay $18.52 for a 30-day supply at my local Wally World. My only regret is that I didn't start taking it earlier as I was still having issues at 18-months gluten-free. I hope it works as well for you as it does for me. She made me a total believer!!!

[IrishHeart]

Thanks for your support. I talked with my DH last night and he said go ahead and spend the $ and take it regularly. So I'll give it a try and get my scopies and keep trying to reintroduce previously avoided foods etc.

Fingers crossed, hon! I hope it helps!!

You may already know this, so forgive me if I am repeating information.

When you introduce a new food, I found it best to do it ONE at a time--and pure. Not IN anything. Some folks on here say they have a soy problem, but they suspect it because it is soy lecithin in chocolate or soybean oil in mayo. Well, how do you know it is not the chocolate or the sugar or eggs, etc. in the mayo? Eat pure soy --like edamame beans to see what happens.

There is no way to control that kind of experiment when there are too many variables.

another example: Some people think carageenan is a problem, but that is used IN things, like creamers. How do you know it is that and not the dairy? If you think it is carageenan, which is seaweed extract, then take seaweed capsules for a day. If it's that, you'll know soon enough.

Likewise, if you believe, (for example) green beans are a problem, just eat them steamed or boiled. NO BUTTER or salt or anything. Eat them all day long with your meals of foods you know are safe already.

Then wait. Could take days for delayed reactions.

Only introduce one suspected food again after waiting a week. Give it time to clear out of your system. See what happens.

Hope you guys can add more foods to your diet in the coming months!

My Best, IH

[missy'smom]

Fingers crossed, hon! I hope it helps!!

You may already know this, so forgive me if I am repeating information.

When you introduce a new food, I found it best to do it ONE at a time--and pure. Not IN anything. Some folks on here say they have a soy problem, but they suspect it because it is soy lecithin in chocolate or soybean oil in mayo. Well, how do you know it is not the chocolate or the sugar or eggs, etc. in the mayo? Eat pure soy --like edamame beans to see what happens.

There is no way to control that kind of experiment when there are too many variables.

another example: Some people think carageenan is a problem, but that is used IN things, like creamers. How do you know it is that and not the dairy? If you think it is carageenan, which is seaweed extract, then take seaweed capsules for a day. If it's that, you'll know soon enough.

Likewise, if you believe, (for example) green beans are a problem, just eat them steamed or boiled. NO BUTTER or salt or anything. Eat them all day long with your meals of foods you know are safe already.

Then wait. Could take days for delayed reactions.

Only introduce one suspected food again after waiting a week. Give it time to clear out of your system. See what happens.

Hope you guys can add more foods to your diet in the coming months!

My Best, IH

Yup, that's prety much been my protocol for 2 years now. But it bears repeating for those who are new on this journey or unfamiliar with it.

After the first year and re-testing, I started avoiding repeat offenders(tests)for longer time periods-6 months or so. That plus wearyness of these scientific experiments with my body have been why I still have yet to try re-introducing quite a few foods. I have insulin/BG experiments to do as well ;)since I started on insulin in Sept.

Yeah, I used to think it was the carageean in the milks. Nope, it was the almond and the soy. Tests and experiments and reactions have proven that out.

It is important to note that cooked forms may be tolerated better than raw. No guarantees. I did separate raw and cooked experiments with some foods.

One more bit of trivia:

I belong to a latex allergy forum and it is common for latex allergic individuals to have long lists of food allergies as well. Several moms of little ones have said that their kiddos were able to tolerate more foods after latex was removed from their daily environments, and their exposure levels greatly reduced, which is no small feat. It is a perhaps a different mechanism at work there than with leaky gut, and some of us may have both issues, but still managing the overall load on our immune systems is important.

[Bubba's Mom]

I'm still at the stage where everything I ingest makes me sick. I'm 6 months gluten-free. I then started reacting very strongly to soy..in all forms, which has kept my system upset.

IH I thank you for posting your experiences. It's helpful to know that reactions to so many foods can be caused by an injured intestine and leaky gut, which takes time to heal.

When first DXed most of us are told that we need to eliminate gluten..and we'll feel fine once we do. For those of us with very damaged systems, we don't feel fine right away, and fear there's a lot more going on.

I've looked at salicylate diets, oxalate diets, Paleo, etc. It seems like no matter what I cut out..I just don't feel good? I have nausea most of the time.

I'm taking Culturelle and another brand of probiotics too, along with several supplements to try to restore my deficiencies. I guess I just need more time?

Recently my hubby asked me if my nausea/lack of appetite might be phsycological? Thanks honey! You now have the same attitude as my Dr.s that left me undiagnosed for so many years.

[IrishHeart]

I'm still at the stage where everything I ingest makes me sick. I'm 6 months gluten-free. I then started reacting very strongly to soy..in all forms, which has kept my system upset.

IH I thank you for posting your experiences. It's helpful to know that reactions to so many foods can be caused by an injured intestine and leaky gut, which takes time to heal.

When first DXed most of us are told that we need to eliminate gluten..and we'll feel fine once we do. For those of us with very damaged systems, we don't feel fine right away, and fear there's a lot more going on.

I've looked at salicylate diets, oxalate diets, Paleo, etc. It seems like no matter what I cut out..I just don't feel good? I have nausea most of the time.

I'm taking Culturelle and another brand of probiotics too, along with several supplements to try to restore my deficiencies. I guess I just need more time?

Recently my hubby asked me if my nausea/lack of appetite might be phsycological? Thanks honey! You now have the same attitude as my Dr.s that left me undiagnosed for so many years.

hoo boy..where do I start??

Most doctors just say "no gluten" after DX...they never mention secondary lactose intolerance (which is very common) or tell you how long it will take or do follow up testing for vitamin deficiencies.

I was just like all of you--and frantically tried to figure out what else was keeping me ill. I hate to say this because it sounds like I am being a wise arse, but I am not, I assure you. Regarding how long it takes to heal:

"It was IS what it IS ...until it ISN'T."

In other words....You'll "get there" when your gut inflammation goes down. It is not a " BAM! I'm healed!" thing....it is a gradual realization that symptoms are abating and each week is less sucky than the weeks before.

I doubt it is psychological and my lack of appetite was directly related to my long unDXed celiac, a life-long messed up gut and anytime I was CCed. I hesitate to tell you this, but I felt pretty lousy until month 11. But I saw small improvements each month and that made me stay the course and eventually, stop stressing 24/7.

This was me, though---but any literature on celiac will tell you it can take 6 months to 2 years to resolve.

Hon, becoming fearful is a detrimental response to the lack of rapid healing. I understand it all too well.

You can gently tell your dear hub that doubting you--and even saying something like that, even in jest---is not encouraging at all and you hope he will never say such a thing again.

Mine never said he doubted my symptoms --as bizarre and plentiful as they were and no doctor could explain them---as he watched me suffer for so long. He propped me up, a cool cloth on my head as I lost all food both ways, dressed me, carried me to bed, took me to the ER, sat up with me when I had insomnia so bad I barely slept for 9 months, drove me to hundreds of appointments, and held me as I sobbed and sobbed from the pain. But there were also days when I was very affected neurologically when he worried for my sanity. (but he only told me this recently when we look back on what the last 4 nightmarish years have been)

Even when I relented to a doctor's advice and saw a psychiatrist because of the gluten-induced anxiety he did not think me insane. I told her "look, I am not crazy. There is something very wrong inside me and it is keeping me ill and agitated. This shaky, sick woman is NOT the real me!! I was a perfectly happy, vibrant woman until this hit me and now I cannot walk, lie down or stand without pain and I can keep no food in and I am dying and no one believes me"....Well, she believed me and asked "do you have food intolerances or allergies by any chance--because I do and they wreak havoc?'' & that got me thinking and researching--- even though my brain was impaired by gluten/celiac.

I recently went back to see her, told her I figured out it was celiac and she saw how much better I looked and that I had gained weight and could walk without assistance and I gave her information about celiac disease and anxiety. She said "OMG! Good for you--saving your own life! I treat a lot of patients with anxiety and eating disorders and maybe THIS is what is going on. Thank you for telling ME."

Don't let anyone tell you what you are feeling is all in your head. If they do, you can say what I say to doubters:

You do not walk in my shoes. Do not tell me what I am feeling.

and Why would I make this up? What's my motivation?

That usually shuts them up.

[Bubba's Mom]

When my hubby asked if my problem might be psycological I asked him how I was able to "fake" the bright red stomach that was observed when scoped on Dec. 20?

He has seen me get violently ill after ingesting small amounts of soy oil, etc. without knowing I had. AFTER vommiting I looked at the labeling and found the ingredient there. It's really hurtful to keep getting the "it's all in your head" as a reason for being so ill!

IH..you are very lucky your hubby has been so supportive. Mine is not. He doesn't seem to have a nurturing bone in his body? My Dr.s have been bad with doubting my DX..and refusing blood tests, etc. Sometimes I feel like I'm not just battling Celiac..but the whole world?

[IrishHeart]

When my hubby asked if my problem might be psycological I asked him how I was able to "fake" the bright red stomach that was observed when scoped on Dec. 20?

He has seen me get violently ill after ingesting small amounts of soy oil, etc. without knowing I had. AFTER vommiting I looked at the labeling and found the ingredient there. It's really hurtful to keep getting the "it's all in your head" as a reason for being so ill!

IH..you are very lucky your hubby has been so supportive. Mine is not. He doesn't seem to have a nurturing bone in his body? My Dr.s have been bad with doubting my DX..and refusing blood tests, etc. Sometimes I feel like I'm not just battling Celiac..but the whole world?

Sorry, hun. Don't know what to say about your hub's attitude. I hope he never gets ill and needs your support.

As for ANY doctor doubting your DX --especially after you had a proven biopsy????!!---and not following up with after-care???--I suggest you take all your records and get a new doctor. You deserve better.

You don't live in upstate NY by any chance do you? I would send you to mine.

[Bubba's Mom]

I'm in Ohio. I just found a new GI, who redid the scope since I seem to be getting worse since my first scope and Dx six months ago. I haven't gotten the results of the tests he has run yet. I'm hoping he has some answers for me.

He gave the names of a couple of PCPs that he thinks are well imformed and able to help me figure some of this stuff out. I had to wait to get our new insurance card before making an appointment. I'm calling first thing Tuesday morning.

[IrishHeart]

I'm in Ohio. I just found a new GI, who redid the scope since I seem to be getting worse since my first scope and Dx six months ago. I haven't gotten the results of the tests he has run yet. I'm hoping he has some answers for me.

He gave the names of a couple of PCPs that he thinks are well imformed and able to help me figure some of this stuff out. I had to wait to get our new insurance card before making an appointment. I'm calling first thing Tuesday morning.

I do not understand why this new GI does not run the after- DX blood work for CBC, ANA, celiac panels, vitamin defs--it's his job!!? Mine does.

And, Sorry to the OP for us getting off topic here!!