Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy


addis001

Recommended Posts

addis001 Apprentice

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

Ask him " Why not take some samples of my small intestine since you will already be there? Maybe I have more than one thing wrong? Couldn't hurt because you are already there." No arguing just point that out.

Gemini Experienced

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

The reason they do these invasive tests before blood work is, quite simply, they make a lot of money from them. It is always prudent to do blood work or other less invasive tests first but that's not the mind set of the medical community these days. It's up to the patient to request those first.

The remark he made about it not likely being Celiac because you wouldn't have so much pain is false, false, false!!!!! I had excruciating pain every time I ate and it was definitely Celiac. This is the usual stuff you get from non-informed doctors and there are many. I would ask for screening blood work first to see if that shows anything but it's likely he won't even do the right tests. It's very hard to find a good GI.....I never had success with them at all.

I wish you luck with all your testing..hope you find some answers.

Skylark Collaborator

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

False. Yes it's weird that he won't do bloodwork. I'm not sure I think much of this doctor. Crohn's is much rarer than celiac and IBS is a non-diagnosis.

Insist on celiac biopsies during your endoscopy, and he needs to take at least 7 or 8 samples, not the typical 2-4 many doctors use. If he won't biopsy, find another doctor because you don't want to go through it twice.

addis001 Apprentice

I thought so.. My gut told me this guy is not that great.. But he fit me in quick..

His bedside manner is horrible.. but his partner just left the practice and hasn't found an office yet, and he is much better. both my parents used him.. But he wouldn't be able to see me in a month or so...

The only thing that is keeping me with this horrible guy is that the nurses said that both guys are great. The best in our city. Just one has a horrible bedside manner and the other has a wonderful bedside manner.

I'll probably just transfer to the nicer one, once the procedure is done and I know a little more.

mushroom Proficient

When we are in pain and need help right away, we have a tendency to seek the first available appointment wikth anyone. The problem with this is that no one else wants to see them and that is why they have a slot available.:ph34r: The cardiologist I really wanted to see didn't have a slot for three months - she was worth waiting for (with remediating measures in the meantime).

Can you get your GP / PCP to run the complete blood panel for you and in the meantime try to find a GI who knows something about celiac disease and is not just out to take your money?

addis001 Apprentice

I wish I could do that. But I feel like something is really wrong, since i'm feeling so much pain on my right side. Even with the tramadole (spelling?), it relieved the pain one night, but the next night it did not help at all. But on the third and fourth night the diet is finally helping somewhat..And the procedure is in 7 days, they rushed it since i'm in pain, or I would have had to wait a month. i would feel bad cancelling after they squeezed me in...

I feel like people in pain do get stuck with duds sometimes because we will take anyone. But then if we go when we are just in a little bit of pain and complain, we get someone really awesome, and then the doctor can't find anything wrong. Then I feel stupid.... Its like the no-win scenario..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I know, then you just p**s them off, like why are you wasting my time??? :angry: There's not much winning in this world - we have to work for small victories :D That's why I suggested the blood work right away from your PCP - not instead of but in addition to whatever else you do. If you knew you were celiac, you would know that was probably what was causing your pain. And if the diet is helping, you need the blood work before the antibodies leave yhour system, which can start happening in a week. By two weeks they could be completely gone, and the confirming blood tests would require you to eat gluten for 2-3 months again :o A lot of doctors require both!! for a diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.