Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination?


GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor

Hey everyone,

So I've been gluten-free for a year and a half, and I've been pretty lax about cross contamination. I share a toaster/condiments with my gluten-eating family, will eat stuff not certified gluten free (after checking the ingredients, of course), etc.

I've never noticed any traditional "glutening symptoms," but I don't know if there's a chance I could be feeding myself minute amounts of gluten that are harming me, but not enough to have negative effects. I often have stomachaches, mild ones, but I don't know if that's related or just from something else.

Any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

I would say the "mild" stomach aches could be related. While you are probably not getting a big hit of gluten all at once the low levels can eventually add up and cause symptoms. If you want to stop the immune reaction and damage(yes even little amounts from cc can keep inflammation/damage going) you need to me more conscious of cross contamination.

Get yourself a new toaster and either get new condiments to share with rules about not cc'ing them(squeeze bottles work great)or buy your own. You very well may need to go through your kitchen and clean it because cc is likely everywhere. Replace any baking items and spices/herbs that could have cc. Don't use wooden spoons/cutting boards/pasta strainers that had gluten on them, you may need to buy separate because of this. You will need to replace the waffle iron if used for gluten. I personally won't allow any regular flour baking in the house. All baking and shared meals are gluten free. My husband has a dedicated shelf in the pantry, drawer in the fridge and space on the counter for his gluten items. Otherwise the majority of the kitchen is dedicated to gluten free. I have two boys and myself gluten free and I feel it is important for the kids to have full access to the kitchen and not worry about cc. My husband is great and takes great lengths to be careful. So far this works for us.

eatmeat4good Enthusiast

I didn't change the toaster at first either. But kept getting sick. I didn't wanna believe I would react to traces of gluten possibly found in foods that were technically gluten free but made on shared lines. I have now found that indeed I do react to those things. I walked the toaster oven to the dumptster wearing gloves. I now never, ever eat anything made on shared lines. I have DH though, so my reaction shows up pretty quickly and I also get neurological symptoms of depression and anxiety. So now I avoid all possible traces of gluten and I went Paleo. It is very hard but it works.

My son is 17 and gluten free Celiac one year. He became lax and wanted to eat a couple of french fries from his friends' box of Arby's fries. He did. He fell asleep the minute he got home, was irritable and moody for a day and a half. I suggested he was reacting to gluten and he said no way - he has believed he is not as sensitive as I am. A couple of days later he said he was sorry for the way he acted and he now believed he was glutened but could not believe it was from the fries. I'm glad he is figuring it out now.

It certainly is a process to first to accept Celiac, then to learn to be Gluten Free, then to learn to be Really Gluten Free, then to learn to believe in Trace Gluten and the evils of Cross Contamination. Once you "get" it though, you really start to feel way better. I always wonder about those who think they are gluten free but really aren't because they don't know they are reacting to CC and trace gluten. I have visible and immediate reactions both skin and neurological. But I wonder how much damage is done for those who don't feel it right away or who don't eliminate the shared lines foods. It is a puzzle for sure finding all the places gluten can hide in your world. Just think how much better you might feel if you didn't have stomach aches? And maybe, just maybe, other things might improve that you didn't even know were bothering you. It is very difficult to be sure. But all the ways of getting contaminated that have been written about here are really true. I believe I have tested almost every one of them either directly or inadvertantly and I can tell you that CC is an issue for me. It is amazing how strong the reaction can be. I'm one year gluten free and now getting really good at looking for traces of gluten because I hate the way I feel when it "gets" me. I hope you can get your own toaster and condiments and see if you feel better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.