Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-Free?


yelahsky

Recommended Posts

yelahsky Newbie

Hi, I've recently had to start eating gluten-free and I'm still learning to say the least. I was wondering if everything that says it is gluten-free actually is gluten-free?? I had some salad dressing that said on the back that it was gluten free but it still seemed to bother me, so I'm not sure if it was that or something else in it or with my stomache.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Hi, I've recently had to start eating gluten-free and I'm still learning to say the least. I was wondering if everything that says it is gluten-free actually is gluten-free?? I had some salad dressing that said on the back that it was gluten free but it still seemed to bother me, so I'm not sure if it was that or something else in it or with my stomache.

Welcome to the forum!

When we're new, it seems like we can react to most anything and everything. And since the FDA has not come up with guidelines as to what exactly constitutes gluten-free, we are at the mercy of manufacturers, some of whom are very good about testing and labeling. Or you could be reacting to an ingredient in the salad dressing even if it is gluten-free or to something you ate a day or two earlier. 'Tis all such a puzzle.

irwinjo75 Newbie

From what I've last found, (which it seems "facts" can be changed every day <_<) gluten free can actually be 20 ppm gluten. Has anyone else heard of that one? So, that would mean that even if it says "gluten free" it isn't always 100% gluten free. Some products are really and truly free of all gluten, but then products can be labeled as gluten free with that 20ppm level. The food industry has put up a long, hard battle to keep from having to put what is in their foods on the label and so it makes it really difficult to buy prepared foods. If only they knew how many struggling Celiacs there are who would buy their foods if they could be sure they wouldn't get "glutened" with them! Watch the "natural flavors" in foods. They can be the culprit a lot of times and often it is from barley or corn (if corn is a problem for you like it is for me, watch out ... it is everywhere)

BabsV Enthusiast

I had some salad dressing that said on the back that it was gluten free but it still seemed to bother me, so I'm not sure if it was that or something else in it or with my stomache.

When I was first diagnosed it seemed like everything set me off and I felt like I was having a reaction. I remember reacting to a mixture of red wine vinegar and olive oil that had been drizzled over a salad -- it was agony. You might just want to go very simple and natural in terms of meals for a few weeks and then slowly add foods back in. This has been working for me although at 5+ months in I still have to be careful about anything acidic and I can't do anything particularly spicy at this point. Hopefully it will all come in time.

CeliacMOM78 Rookie

From what I've last found, (which it seems "facts" can be changed every day <_<) gluten free can actually be 20 ppm gluten. Has anyone else heard of that one? So, that would mean that even if it says "gluten free" it isn't always 100% gluten free. Some products are really and truly free of all gluten, but then products can be labeled as gluten free with that 20ppm level. The food industry has put up a long, hard battle to keep from having to put what is in their foods on the label and so it makes it really difficult to buy prepared foods. If only they knew how many struggling Celiacs there are who would buy their foods if they could be sure they wouldn't get "glutened" with them! Watch the "natural flavors" in foods. They can be the culprit a lot of times and often it is from barley or corn (if corn is a problem for you like it is for me, watch out ... it is everywhere)

Corn is a problem for you as a celiac or for a different reason? Corn meal and tortilla's are my go to! AHHAHAHAHHAAA!

kitgordon Explorer

Some people have additional food intolerances such as corn or soy, but I believe most celiacs are safe with corn. If you have just started the diet, you may have stomach problems just because you aren't healed yet; it doesn't always mean that you've been glutened or have additional intolerances.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Doctors
      10

      Second chance

    2. - knitty kitty replied to Jmartes71's topic in Doctors
      10

      Second chance

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,673
    • Most Online (within 30 mins)
      7,748

    Troy Howald
    Newest Member
    Troy Howald
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Not yet, been waisting time on western doctors. I went yesterday to my pcp thought we were on same page, I gave him the downplayed confirmed celiac medical note from bay area. As a patient I shouldn't have to Chase my medical, my medical SHOULD stick to us.Im am so exhausted and angery how medical has been, my whole way of thinking of our system is completely changed.i wish I can upload my letter from KB 
    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.