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A Positive I Noticed!

Metoo

By Metoo
in Coping with Celiac Disease

Recommended Posts

Metoo Enthusiast
Metoo
Posted

It dawned on me today I am no longer losing CHUNKS of hair everyday like I have for the past 10 years! I also shedded hair like crazy, where my friends always noted how much hair I had on my clothes!

Where I used to pull lose hairs after combing I would get like a 1/2" chunk now I am less than 1/16"!!

Its a huge difference, I may notice a stray hair or two on my shirt during the day...instead of having to go and take off my sweater in the bathroom and de-hair the back of it because there was so much!

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Diane-in-FL Explorer
Diane-in-FL
Posted

Mine is improving too. Not as much in the brush and it seems healthier. Small victories. :)

IrishHeart Veteran
IrishHeart
Posted

I am so happy for you! :) and you too, Diane!

I am slowly getting some hair to grow back in. I suffered major hair loss and it was very upsetting for me. (my hair was never thick anyway, but this shedding became ridiculous--I was going bald.)

It is always good to hear when a fellow celiac tells me "it comes back!", so thank you so much for posting! Your news is encouraging!!!

Cheers, IH

AVR1962 Collaborator
AVR1962
Posted

Diane and MeeToo, what do you think was the answer for your hair loss?

IrishHeart Veteran
IrishHeart
Posted

Diane and MeeToo, what do you think was the answer for your hair loss?

Hi A!! (IH is waving at you!)

I suspect they will tell us "time and healing" :) and better absorption of nutrients/vitamins-- but let's see if there is any other magic we are missing. I have covered all my bases (testing wise and vit def. wise) and so I know it's nothing else.

BabsV Enthusiast
BabsV
Posted

Congrats! I didn't have hair loss as a symptom but I did notice just this morning that my fingernails are no longer flaking and tearing like they used to, they are much much stronger than they used to be and they are growing much faster. So cool!

Metoo Enthusiast
Metoo
Posted
  • Author

Diane and MeeToo, what do you think was the answer for your hair loss?

I don't know...I am guessing just gluten-free. I am at about 9 weeks gluten free. Maybe being gluten-free has helped me raise my vitamin D levels further. I know up until going gluten free I was still having crushing fatigue problems (my low vit D symptom)...which have slowly resolved.

Previously last April I was diagnosed with severe Vit D defiecency and I noticed a difference in increasing my level to a 'normal' level...but I just had less major loss of hair, but I was still losing it just at a slower rate.

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Metoo Enthusiast
Metoo
Posted
  • Author

I don't know...I am guessing just gluten-free. I am at about 9 weeks gluten free. Maybe being gluten-free has helped me raise my vitamin D levels further. I know up until going gluten free I was still having crushing fatigue problems (my low vit D symptom)...which have slowly resolved.

Previously last April I was diagnosed with severe Vit D defiecency and I noticed a difference in increasing my level to a 'normal' level...but I just had less major loss of hair, but I was still losing it just at a slower rate.

I am still taking 6000 units of vitamin D per day if you were curious. Its supposed to be my maintenance dose since I was so low, and was back up to normal in July.

Diane-in-FL Explorer
Diane-in-FL
Posted

Diane and MeeToo, what do you think was the answer for your hair loss?

I think it is because I am finally absorbing vitamins and nutrients.

granolagal Apprentice
granolagal
Posted

CONGRATS!!! That's so amazing! I really really hope I can post that same thing one day. I've got about 1/4 of my hair left. It's really bad. I'm keeping the faith that it will come back. I've just got to give it time (I'm only 3 weeks gluten-free).

Anyway, like others have said, I just wanted to say CONGRATS and thanks for helping give me hope!!!

ciamarie Rookie
ciamarie
Posted

Great news! I noticed last weekend that an area on the top of my head (the crown area, near the back) which has been pretty thin for ages, and which I didn't attribute to Celiac or gluten at all, has started to fill in. I've been gluten-free for about 10 weeks or so, and have sporadically taken some probiotics and vitamins and try to eat some veggies on a regular basis, etc. I also avoid soy.

bumblebee-carnival Newbie
bumblebee-carnival
Posted

I'm still losing about the same amount, BUT in the last week I noticed all these little hairs growing in around my hairline. They are between 1/8-1/2" long! I've been gluten free since the end of October.

On another thread, someone mentioned Biosil and zinc tablets for hair loss and I started taking those about 6 weeks ago. I think that those supplements combined with going gluten free has really helped my hair start to fill in.

looking for info Rookie
looking for info
Posted

I'm still losing about the same amount, BUT in the last week I noticed all these little hairs growing in around my hairline. They are between 1/8-1/2" long! I've been gluten free since the end of October.

On another thread, someone mentioned Biosil and zinc tablets for hair loss and I started taking those about 6 weeks ago. I think that those supplements combined with going gluten free has really helped my hair start to fill in.

I'm soo happy for you...It's wonderful and give me hope that the hair loss will stop and heal...I've been worried for some time that the hair loss was permanent :(...I had really thick long hair and now (like others) it seems to be thinning and falling out...Congrats...its always nice to hear the possitives :)...thank you for sharing

Takala Enthusiast
Takala
Posted

My hair came back in thick and curly, and I can grow fingernails now that I have to cut short instead of having them break off. :)

jeanzdyn Apprentice
jeanzdyn
Posted

oh wow! thanks for this info! I am happy to learn that my hair may become healthier again!! And that my lifelong fingernail problems may end, or at least maybe on a gluten-free diet my fingernails and hair may get healthier! There is good news to be found in all of this!

I was diagnosed just a couple of months ago, and am still struggling to get gluten completely out of my diet.

lucky28 Explorer
lucky28
Posted

Hi, I just wanted to say that I too have noticed that I have MUCH less hair in the bottom of the tub after I shower! I also noticed, just this morning that i have new hair growing in around my temple area! It's about 1/2 inch long! Good to see some positive results!

bumblebee-carnival Newbie
bumblebee-carnival
Posted

I'm soo happy for you...It's wonderful and give me hope that the hair loss will stop and heal...I've been worried for some time that the hair loss was permanent :(...I had really thick long hair and now (like others) it seems to be thinning and falling out...Congrats...its always nice to hear the possitives :)...thank you for sharing

Thank you! Seriously, try the Biosil and zinc. Completely without exaggeration, after FIVE days my eye lashes were noticeably longer. Really it was that fast! The head hair has a longer growth cycle so it's taken longer to see results on my scalp. But it's starting to visibly fill now. I didn't even realize my eyebrows had thinned and they have even thickened up. I keep my nails short (to just the tops of my fingers) and they are growing like crazy, too.

((((hugs))) cause I know how it sucks to see all that hair in the drain. But I have faith that yours will come back too! :-)

IrishHeart Veteran
IrishHeart
Posted

Thank you! Seriously, try the Biosil and zinc.

This must be why the online sources of BioSil are sold out.

Seriously, try finding it! Word of mouth from satisfied customers has made it nearly impossible to find.

The celiacs are all buying up the bottles. :lol:

looking for info Rookie
looking for info
Posted

Thank you! Seriously, try the Biosil and zinc. Completely without exaggeration, after FIVE days my eye lashes were noticeably longer. Really it was that fast! The head hair has a longer growth cycle so it's taken longer to see results on my scalp. But it's starting to visibly fill now. I didn't even realize my eyebrows had thinned and they have even thickened up. I keep my nails short (to just the tops of my fingers) and they are growing like crazy, too.

((((hugs))) cause I know how it sucks to see all that hair in the drain. But I have faith that yours will come back too! :-)

aww...thank you...ill be trying to find some Biosil this weekend.. :) Hugs.... :)

Avalon451 Apprentice
Avalon451
Posted

That is great news! My 3 daughters and I were just diagnosed, and we start our gluten-free diet soon. I was mystified by hair loss in my younger two. My middle daughter, especially, had handfuls come out every time I combed, a few years ago, but that symptom came and went. The 9-year-old has almost waist-length hair, but whenever I comb it after a bath, I end up with a whole handful to throw away. I hope it grows back for them, and for me (perpetually super-thin hair!) I had no idea this was a symptom till all my recent research.

love2travel Mentor
love2travel
Posted

Although this did not happen to me, I would like to add my congratulations. What an awesome result! I rejoice with you and can feel your happiness. :)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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