Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wallpaper Reaction? Sleeping Hands & Swollen


AkashaCanada

Recommended Posts

AkashaCanada Newbie

I'm hoping someone can help please! We went Gluten-free Casein-free 1.5 months ago for our kids, not realizing we should have been tested (docs wanted to medicate for ADHD related symptoms, dismissed my dietary concerns and the host of other symptoms that were all GI related).

Anyway, I've had issues with my hands falling asleep at night which wakes me regularly (this started before the diet). Yesterday I spent the day removing wallpaper from a room in our home using water and peeling it off with my hands, primarily my right hand. Last night my hand was very cold to the point where I needed to hold it against my body to warm up and it took a long time to get it to room temperature. This followed by the worst night of hands being asleep and the right hand was by far the worst. This morning my right hand is swollen and I have a slight loss of mobility (as if my hands were cold and not working right). Has anyone else experience this with wallpaper removal? I am looking for a local naturopath but in the meantime, this is scary for me. Having been flagged with a very low white blood cell count a few years ago by a walk in doctor who said it was nothing to worry about, I'm now thinking it could be auto-immune related in conjuction with all of my other symptoms. I'd love some feedback if you've experienced this please!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Sorry you are having such discomfort.

I have read that gluten was once used in drywall and wallpaper pastes, but I am not sure if this is still a common practice or not and I am not sure it explains your onset of worsening symptoms.

Your hands being swollen, cold and numb could be from any number of issues. Have your vitamin and mineral levels been tested? Thyroid?

If it persists, you may wish to seek emergency medical care. (no offense to the Naturopath)

rosetapper23 Explorer

I had those symptoms for years, especially after I developed Rheumatic Fever. It's called paresthesia. However, since it largely resolved after going gluten free, it may be that you're suffering from inflammation caused by gluten in your diet. I do recall, though, that whenever I was handling construction materials (especially lacquers and bonding substances), I would wake up during the night with my hands in terrible pain and numbness. What worked to alleviate the problem for me was to take bovine collagen (Calorad) along with prescription-strength Motrin (800 mg). Bovine collagen works to reduce the inflammation in connective tissues--in my case, my wrists--as does the Motrin.

Paresthesia can be caused by many things, but one of the things that can cause it is mineral deficiencies, which can be present in people with absorption problems (e.g., celiacs). I looked up which mineral deficiencies can cause paresthesia and came up with calcium and phosphorus. You might check to see if you're low in these minerals. Also, toxic levels of pyridoxine can also cause paresthesia, though this would be a rare occurrence...and I only mention it in case there's any possibility in your particular case.

Also, you may wish to look up information on Reynaud's Syndrome, since people with celiac can also develop it...and it involves cold, numb extremities.

AkashaCanada Newbie

Thank you so much for your replies! The wallpaper is circa 1980. I did get a few gouges under my nails from the paper and of course there were tiny open wounds so if there was gluten, it had a fast track to my bloodstream.

I forgot to mention that shortly after I finished the work, I felt like I had a crazy blood sugar drop and had to lay down. I felt weak all over.

There is still a noticeable circulation issue as I feel it in my feet as well with tingling, the hands are still not back to "normal" either and require constant warming up although the swelling has gone down.

I'm going to read up on the items you posted and hopefully find a doctor (naturo or med) who can help. My luck thus far with medical docs has been RX after RX which I would like to avoid if I can find the root (deficiency or whatever else is the root).

Thank you again, this was my first post and you both were so helpful :)

IrishHeart Veteran

Thank you so much for your replies! The wallpaper is circa 1980. I did get a few gouges under my nails from the paper and of course there were tiny open wounds so if there was gluten, it had a fast track to my bloodstream.

I forgot to mention that shortly after I finished the work, I felt like I had a crazy blood sugar drop and had to lay down. I felt weak all over.

Hon, gluten molecules do not go into an open cut and into the bloodstream. It does not work that way. So do not worry about that.

It is possible that you are simply still ill from long term gluten intolerance and you have some vitamin deficiencies and hypoglycemia.

You are still new to the gluten-free diet and it takes a while for symptom resolution.

If you do not feel better soon, you should see a doctor.

AkashaCanada Newbie

Hon, gluten molecules do not go into an open cut and into the bloodstream. It does not work that way. So do not worry about that.

(Blush) oops, I didn't know that, thanks for pointing that out :)

Still lots of learning to do over here!

IrishHeart Veteran

(Blush) oops, I didn't know that, thanks for pointing that out :)

Still lots of learning to do over here!

That's okay! I had to learn all this, too! We all had to learn.

Hopefully, you will find good information on here. It helps to read the FAQs at the head of each section. And there are many articles and sections to look through.

Welcome to the forum!! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

With a reaction like that, I think I would look to reactions to chemicals and/or substances that might be in the wall paper, the old paint on the wall, the wall paper paste, first. In my completely layman-based opinion, it seems like it might be a potential allergic reaction, based on your description. Some of us who go gluten free have 'picked up' a few previously unknown allergies after we go gluten-free. Don't know why, but there's a lot of us here who have had it happen to us.

Also, thinking of symptoms, allergies affect the blood pressure (which might account for that feeling like your blood pressure dropped). They also can cause swelling, pain, tingling, and so on.

I've read about an allergic reaction before that involved a woman feeling very cold in the affected parts. I have never seen that listed as an official allergic reaction, however. It was just something this woman had noticed herself, and it was different enough that it stuck in my head.

I do know that current wallpaper paste now has a fungicide added that can trigger an allergic reaction through skin contact. I don't know if any paste from the 80's contains the same fungicide, but I imagine you could find out.

It might be worth checking this one out with an allergist. There could be other substances in there aside from a fungicide, but the couple I can think of offhand you would likely have nearly daily contact with, so you'd probably already have noticed another reaction.

Hope you're feeling better!

rosetapper23 Explorer

If BOTH hands and feet are feeling numb, you may be suffering from B-1 deficiency. You might try taking a co-enzyme Vitamin B complex vitamin.

pricklypear1971 Community Regular

It may be quite a few or any of the above mentioned.

Have you tried an oral antihistimine? I ask because I am allergic to quite a few plants and if I play with them, and in particular, if one penetrates my skin I get an all-over body reaction that feels like a cold or flu, along with pain and numbness in my hands (what has been playing with the plants). An antihistimine helps.

So, I doubt an allergy caused the initial numbness at night, but it may be why you are in so much pain now.

T.H. Community Regular

Anyway, I've had issues with my hands falling asleep at night which wakes me regularly (this started before the diet).

Well crud, I totally missed this part! No idea how I did that. Sorry!

This is something I've experienced, too, actually. Before my celiac diagnosis, during the night my hands would fall asleep to the point that they were tingling and almost numb and difficult to move. If I slept heavily, by the morning, they would be numb, slightly swollen, and difficult to move properly. Sometimes I couldn't move my arms at all for a while. It didn't last more than about 10 minutes after waking, although the swelling could take a little longer to subside. My hands and feet would also get very cold, very frequently, in moderate temperatures.

Going gluten free eliminated the problem, we thought. I DO get various neurological issues from gluten, so we thought it was related. But we figured out that ingested corn seems to be the cause for the overnight numbness and tingling in the limbs. Longer term low-level corn cc causes the tingling/pain to spread to my neck, down my arms and spine, my joints. Injected corn derivatives seem to be worse than ingested, with longer lasting effects.

I wish I could tell you exactly WHY it happens, in case it relates, but the docs don't have a clue. Doesn't seem to be an allergy, and it's not exactly an intolerance. At this point, the docs just tell me, essentially, 'we don't know what it is, but avoid corn because it's messing you up.' Getting corn usually just feels like, well, like everything in my body that can become inflamed HAS become inflamed. Including places that can cause nerve problems and circulation problems due to the inflammation.

So, don't know if this is a food thing for you as well, but for what it's worth, it seems to be the cause in my case.

dilettantesteph Collaborator

There are lots of references which talk of wallpaper paste containing gluten. Here is one: Open Original Shared Link

It is probably responsible for some of your symptoms since you are sensitive to gluten, I'm assuming that since you are posting here. I hope you feel better soon. Hopefully someone else can finish up that job while you get out of there.

missy'smom Collaborator

Adhesives can also contain natural rubber aka latex. I have a latex allergy and my fingers can go numb if I touch/handle things with latex like the grips on pens. Do you get "band-aid marks"? if you use standard band-aids? I did but not if I use latex-free band-aids. If you have a substance allergy then an opening in the skin would make the "allergen" get into the blood stream easier.

AkashaCanada Newbie

Having loaded up on spinach, hummus, B6/B12 and some honey that day trying to boost magnesium and B vitamins, I slept through the night the last 2 nights and did not wake up with my hands asleep. I am thankful for that! My right hand and legs still feel a bit off which I will have checked out.

I read something about people having blood sugar issues when going off gluten as the body stabilizes so I'll likely never know if it was the wallpaper or a sugar drop. Either way, I figured I'd update as I personally love knowing what happened after the fact with reactions.

About the band-aids...I do not have that reaction however my daughter (6) does and we actually went off corn and corn derivatives after making the connection to that and her intestinal issues a few years ago but it didn't alleviate her distended belly and bm trouble (this was before learning about gluten of course, now we're sailing but should omit corn again soon).

Thank you all again so much for your responses and links, I really appreciate all of the information and hope to return the help down the road as I learn as well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.