Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel So Bad, Was Careless

stanleymonkey

Recommended Posts

stanleymonkey Explorer
stanleymonkey
Posted

feeling so bad, made spaghetti for dinner last night, made normal noodles for me (trying to use them up, on a tight budget, can't afford to throw out food!), and made her own, in her an pan,own dish etc. Pug her plate down on table where she was sitting put mine on the other side, theorem baby woke up, told her repeatable I went to get her sister. Sensations and started wait g mine, she stepson much. Within 2 hours her "eczema" that had disappeared came back with vengeance, she is so miserable, was restless last night, and has barely eaten, wouldn't even eat things she normally begs for, I feel so bad, going to doctor tomorrow, as G I insists she has no bourgeoisie, and doctor wants a record of every thing that could be gluten related to pass on book g this doctor might pull his head out of his ass and get us the reversal to the people we need to see to make sure she is healthy and keep her thatway

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

feeling so bad, made spaghetti for dinner last night, made normal noodles for me (trying to use them up, on a tight budget, can't afford to throw out food!), and made her own, in her an pan,own dish etc. Pug her plate down on table where she was sitting put mine on the other side, theorem baby woke up, told her repeatable I went to get her sister. Sensations and started wait g mine, she stepson much. Within 2 hours her "eczema" that had disappeared came back with vengeance, she is so miserable, was restless last night, and has barely eaten, wouldn't even eat things she normally begs for, I feel so bad, going to doctor tomorrow, as G I insists she has no bourgeoisie, and doctor wants a record of every thing that could be gluten related to pass on book g this doctor might pull his head out of his ass and get us the reversal to the people we need to see to make sure she is healthy and keep her thatway

???? Spell- check having its way with you?

Might want to hit " edit"

domesticactivist Collaborator
domesticactivist
Posted

Damn you, autocorrect!

I think I got the gist, though. It's a horrible feeling when we gluten our kids :( Hopefully she'll recover quickly, and now you know one more thing to be extra careful about.

I've gotten my son a few times. Most recently I used his toothbrush when I was in the middle of a gluten challenge. How terrible is that??!?!?!?!!!

Another time I served him food I brought to our friend's house on a dish that she had washed with a glutened sponge and air dried where she bakes.

We have our stupid moments, and sometimes it costs our kids. It's hard to forgive ourselves when it happens, but we have to. I am so vigilant in general that I hope at least that helps the mistakes take less of a toll in the long run.

stanleymonkey Explorer
stanleymonkey
Posted
  • Author

auto correct on the HP touchpad is nasty!

Darn210 Enthusiast
Darn210
Posted

auto correct on the HP touchpad is nasty!

Makes you really have to read between the lines, eh? ;)

I think every mom of a gluten free kid has been there, done that. We learn our lessons (no one wants to be the reason why their kid is suffering) and become more diligent. Hopefully the kids will learn one, too. I know it may be hard to do, but you need to point out to her that it was the gluten that made her feel so bad. Even though this event was accidental, use the experience to drive home the fact that she can't eat that stuff. You will not always be in control of what she is eating. If she learns this lesson now, hopefully down the road she won't do it to herself at a friend's or at school.

  • 2 weeks later...
GFSAHmom Rookie
GFSAHmom
Posted

Before my son was diagnosed with Celiac, I was trying to get him to eat ANYTHING! So i found the "healthy" packets of CREAM OF WHEAT... Poor kid :( It was Poison! We've all been there!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.