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So What Can I Eat?


llama3

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llama3 Apprentice

I just need to vent a bit. I've been gluten free for a few months now and keeping a food journal and I keep finding more and more foods that I can't eat! The latest is I discovered that chickpeas are absolutely out - they make me really really sick. They were becoming a staple for me. Well, not anymore. It's getting to a point where I'm wondering what on earth I CAN eat. Leafy vegetables and fruits seem to be OK, and meat, I think, but I'm honestly not sure about anything else.

I haven't been eating a ton of the specialty products or anything, but when occasionally I try them for a treat, oh, guess what - there is something in there that makes me sick, too. So not only do I have to walk past most of the things in the grocery store knowing I can't eat them, or not sure if I can, but I walk past the section with the big "Gluten Free!" sign and I know I can't eat any of that either.

I hate food. I hate thinking about food. I want food to go away forever and leave me alone.


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burdee Enthusiast

I just need to vent a bit. I've been gluten free for a few months now and keeping a food journal and I keep finding more and more foods that I can't eat! The latest is I discovered that chickpeas are absolutely out - they make me really really sick. They were becoming a staple for me. Well, not anymore. It's getting to a point where I'm wondering what on earth I CAN eat. Leafy vegetables and fruits seem to be OK, and meat, I think, but I'm honestly not sure about anything else.

I haven't been eating a ton of the specialty products or anything, but when occasionally I try them for a treat, oh, guess what - there is something in there that makes me sick, too. So not only do I have to walk past most of the things in the grocery store knowing I can't eat them, or not sure if I can, but I walk past the section with the big "Gluten Free!" sign and I know I can't eat any of that either.

I hate food. I hate thinking about food. I want food to go away forever and leave me alone.

I don't do well with gluten free processed foods either, because I have allergies to most common ingredients (dairy, soy, eggs, cane sugar, vanilla and nutmeg), which are contained in most gluten free processed 'treats' and/or condiments. So I stick with naturally gluten free fresh vegs, fruits, meats, poultry, fish, legumes and nuts, as well as gluten free grains. Fortunately I finally found condiments free of my other allergies. There are only 1-2 frozen dairy/soy free desserts I can eat, one brand of soy/dairy free cheese, one brand of dairy/soy free buttery spread, but amazingly 2 brands of egg/soy free mayonnaise (after making my own mayonnaise for 5 years). There are no gluten free packaged cookies or pastries or even mixes for cakes, cookies, etc. that don't contain my other allergens. I was fortunate to find 1 pancake mixe that is free of my other allergens. However, I have 2 safe bread varieties (from Ener-g) which I enjoy. Also I have 2 great baking cookbooks which exclude 5 of my 7 allergies.

Nevertheless, I focuss on finding or making safe substitutes for any foods I can't buy. I also focus on healthy 'whole' foods, rather than processed/packaged foods, because those contain my allergens.

If you're really worried that you might have other allergens, consider getting an ELISA (blood) test for IgG and IgA (delayed reaction) allergies, as well as more immediate reaction (IgE) allergies. If I hadn't gotten my other allergens diagnosed within 2 years after my celiac disease dx, I'd probably still be wondering what's causing my constant reaction symptoms. Guessing what foods bothered me may have made me afraid to eat anything after awhile.

cahill Collaborator

I just need to vent a bit. I've been gluten free for a few months now and keeping a food journal and I keep finding more and more foods that I can't eat! The latest is I discovered that chickpeas are absolutely out - they make me really really sick. They were becoming a staple for me. Well, not anymore. It's getting to a point where I'm wondering what on earth I CAN eat. Leafy vegetables and fruits seem to be OK, and meat, I think, but I'm honestly not sure about anything else.

I haven't been eating a ton of the specialty products or anything, but when occasionally I try them for a treat, oh, guess what - there is something in there that makes me sick, too. So not only do I have to walk past most of the things in the grocery store knowing I can't eat them, or not sure if I can, but I walk past the section with the big "Gluten Free!" sign and I know I can't eat any of that either.

I hate food. I hate thinking about food. I want food to go away forever and leave me alone.

I have been there and honestly it SUCKS!!!! I know that and I agree.!!!!

I discovered sooooooo many intolerances in addition to being celiac,, there was a period of time where about the only thing I could eat was ground lamb and white rice.

But it got better. I got better. My gut began to heal and slowly , very slowly , I have been able to add back foods.

There are foods ( in addition to gluten and soy) that I still can not tolerate but the list is soooooooooooooo much shorter than it was.

Hang in there , it is a long hard road, with A LOT of ups and downs, but it does get better.Your physical and mental health are worth it !!!!

eatmeat4good Enthusiast

Meat, vegetables and some minimal fruits is all I know that is really safe for me too. Lentils and garbanzo beans were absolutely terrible. Lectins? Who knows. I get sick from gluten free stuff too. It is maddening. I want to eat eggs again...but I can't. Dairy I can live without. It's really difficult but if I'm strict I am well. It's when I cave to cravings that I suffer. I wish I would just quit testing other foods and stick to the veggie and meat I know is right for me. Good Luck and I hope you heal soon.

llama3 Apprentice

Thanks to all who have responded! It is nice just to know I am not alone ... not that I wish this on others!

Another small irritation today - the one trail mix (really just seeds and dried fruits) that I know I can eat without problems, my local store has just stopped carrying. Sigh. I know, there are larger problems in the world ...

If you're really worried that you might have other allergens, consider getting an ELISA (blood) test for IgG and IgA (delayed reaction) allergies, as well as more immediate reaction (IgE) allergies. If I hadn't gotten my other allergens diagnosed within 2 years after my celiac disease dx, I'd probably still be wondering what's causing my constant reaction symptoms. Guessing what foods bothered me may have made me afraid to eat anything after awhile.

I've been thinking of going to see an allergist and get tested for some things. Do they order such blood tests? I know they do scratch testing and that sort of thing. I'm reluctant to go back to my GP because she is unhelpful and already thinks I'm a hypochondriac, especially since I seem to be cursed with blood tests that ALWAYS come back negative (my gluten intolerance is self-diagnosed). Any advice on this would be helpful.

Takala Enthusiast

This "shakedown" phase is really exasperating. You have my sympathy, I have some ongoing issues with common ingredients to gluten free items made commercially, like flax, and I was also reacting to something I was using at home, I had to really go "back to basics" in November, but wow, subsequently, I actually lost weight over the holidays, :blink::DB) and my joints are better.

With legumes (beans) I have to drain the canned ones really well and rinse them. If dried, they would get a boiling water soak, a drain and a rinse, again. This gets rid of the starch which is so hard to digest, even for normal glutenoids. I can't taste bean flour as "odd" ( this is either a blessing or a curse, depending on one's attitude ;) ) but I might be starting to react to Bob's Red Mill products. I hope not, I really don't want to do an oat challenge, I've been avoiding them anyway, but there is a lot of the Bob stuff in storage, and that is a lot of bread I would have to make just for my spouse to use it up. I keep looking at my now so much better looking ankles in disbelief that I actually CAN just AVOID something things like processed lunchmeat with certain preservatives, and some types of gluten free grains, and the swelling finally went down. And I've been stuck with this for over 4 years.

So I just tried baking something tonight, it would be close to paleo, as I didn't use grain at all, but left out what I think is the latest culprit, so let's see what happens.

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    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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