Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Celiac Doc For Pregnancy Check Ups!


Celiac Ninja

Recommended Posts

Celiac Ninja Enthusiast

Title pretty much sums it up. I got celiac pretty bad, am pregnant, and need someone who knows what they are doing to check for the right things for this baby. I could go to the AHCCCS which is reduced health care, but those people probably will have no clue what celiac is.

I may need a naturopath, I'm on a very strict diet and certain vitamins I can't swollow or come right back up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Are you in AZ?

Call the Phoenix or Tucson Celiac groups and ask for a referral.

StephanieL Enthusiast

If it's between no care and care where you may need to educate them a bit, I would go with the later.

What "things" are you expecting them to check the baby for specific to Celiac?

ravenwoodglass Mentor

If you have no insurance go to your local Social Services office, the criteria for Medicaid is different for women that are pregnant and you may qualify. If nothing else check with your local Planned Parenthood office as they can help you find a doctor or a doctor there can at least check on things. You need to at least have vitamin and mineral panels checked so you can supplement what needs to be supplemented but other than that I don't think you need any special treatment.

When you say you have celiac real bad does this mean you are still suffering symptoms? If that is the case and you are a diagnosed celiac you need to find out why. If you are self-diagnosed and strictly following the diet you need to make sure you don't have something else going on.

Wishing you and the little one the best. Don't put off going to the doctor as your health and the babies health are too important to ignore.

kareng Grand Master

Are you saying you are pregnant and having Chemo for cancer?

"The Quick New Plan

So in Spokane at the doc's office, mom and I were informed that surgery would be the only option for something that was cutting my time short. The tumor was non-hodgkins lyphoma, 4.5x5 inches."

"We can mix up a stronger batch of chemo and use Rituxin before hand...blah blah blah.” Mom and I both exhaled and laughed crazily, commenting that we'd both been praying madly just then."

ravenwoodglass Mentor

Are you saying you are pregnant and having Chemo for cancer?

"The Quick New Plan

So in Spokane at the doc's office, mom and I were informed that surgery would be the only option for something that was cutting my time short. The tumor was non-hodgkins lyphoma, 4.5x5 inches."

"We can mix up a stronger batch of chemo and use Rituxin before hand...blah blah blah.

Celiac Ninja Enthusiast

Are you saying you are pregnant and having Chemo for cancer?

"The Quick New Plan

So in Spokane at the doc's office, mom and I were informed that surgery would be the only option for something that was cutting my time short. The tumor was non-hodgkins lyphoma, 4.5x5 inches."

"We can mix up a stronger batch of chemo and use Rituxin before hand...blah blah blah.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Ninja Enthusiast

If you are preggers and having chemo talk to your oncologist about what to do as far as keeping the baby safe.

My personal blog is not current, it is of the past, I am not on chemo right now.

Celiac Ninja Enthusiast

Are you in AZ?

Call the Phoenix or Tucson Celiac groups and ask for a referral.

Thank you this is a good idea, I appreciate the help. :)

kareng Grand Master

I think you are reading my personal blog that is not a current time frame. This topic here is seperate.

It was posted here a few days ago so I thought it was current. Glad that is in the past!

tarnalberry Community Regular

You may find that your best bet is to find a midwife who is also a natropath. (There are some - one of mine was.) Celiac in and of itself shouldn't require any special treatment in pregnancy - stay gluten free, address any nutritional concerns (which would have to be investigated via blood test anyway.

domesticactivist Collaborator

Whether this can work depends partly on where you are, but I used midwives for both my pregnancies and deliveries at home. My midwife's husband was a naturopath which worked out great. It was about a tenth of the cost of seeing a regular doctor, and my babies and I got much better care!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.