Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi! New To The Forum!


health nut

Recommended Posts

health nut Newbie

Hello, I am a registered dietitian with celiac disease and I have been viewing this forum for a while now, but just officially decided to join in. I was diagnosed via labs and biopsy last summer, but have been a dietitian for about 4 years so I was fortunate that I already had a good understanding of the diet when I was diagnosed- but I know for most people that is not the case. I was inspired by the previous thread from Josh voicing frustration about the misinformation that can be spread on these type of forums, and how there is a great need for people who can share accurate information. I must say that I also read some other facebook pages where anyone can ask/answer questions about celiac disease and gluten-free living, and I have been very impressed with this forum. I've noticed that if somebody does post inaccurate information here- someone else has always been very quick to correct it or question it. This does not happen on the FB pages I've seen and the few times I tried to pipe-in it was not well accepted. So I've decided this is the community I would much rather be a part of. I hope to be able to help others, but I know I will also have questions myself. I have tons of books on nutrition and celiac disease, but sometimes the best information can come from others who are in the same situation.

So I just wanted to introduce myself, and I am excited to finally be able to participate in the great discussions here! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

As a register dietician I think you could be very helpful in this forum, welcome!

rosetapper23 Explorer

I agree--I think you'll make a great addition to our Forum. Welcome!

Lisa Mentor

Welcome health nut! I'm sure we will make good use of your expertise. B):D (Josh will be happy, you came out)

ciamarie Rookie

Welcome! I'm somewhat new'ish here myself, and haven't really looked for other forums. I guess I actually got it right the first time. I think the people here are great. :)

mushroom Proficient

You are so welcome, health nut. We are always looking for voices of reason and information. I look forward to your participation. You will probably have seen some negative reactions around here to those dietitians who are ill informed about celiac, but don't, please, let that put you off. We do not tar with one brush :D Many of us have had ghastly experiences with hospital dietitians whose focus seems to be on the cost of foods rather than their nutrient value. Eating gluten free in a hospital can be a very hazardous experience, especially if you do not have family to bring you food :huh:

So we are really looking forward to a gluten savvy dietitian

ravenwoodglass Mentor

Welcome to the board. There are so many things the newly diagnosed have to get used to doing that many in the medical field are not knowledgabe enough about to let them in on. Being celiac yourself you know the 'hoops' we have to jump through to be safe. We will greatly welcome your input and I am sure your patients are already reaping the benefits of your celiac knowledge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



health nut Newbie

Thanks everyone!!!

And Mushroom- absolutely no offense taken here about some of the dietitian comments I have seen. I now feel very well educated about celiac disease and the gluten-free diet (my career goal now is to someday be considered an expert in the field), but I could not say this about myself before being diagnosed, and I know pretty much all my dietitian friends would also admit there knowledge is limited. It's not that we don't learn about it in school and our internship, but like the saying goes "if you don't use it- you lose it." It is definitely one of those diets you need to work with a lot to really know it- you can't just dabble in it. Unfortunately, since there aren't many dietitians who specialize in it, people are often sent to see one who really isn't savvy about all the nuances of the diet (but they should at least be able to give you some decent info to get started...). I should also say though- that the increased rate of celiac disease (and gluten intolerance) is recognized in our profession, and I have seen a lot more effort put into comprehensive continuing education courses on this topic for us so we can be a better resource for our patients.

Well, thanks again everyone- I am happy to be here!

Health nut

Bubba's Mom Enthusiast

Hello...and welcome! When I was referred to a dietician she had very limited info on Celiac. She mainly advised diabetic patients. You will be a great help to those needing a bit of guidance.

sa1937 Community Regular

Welcome, health nut! You'll be a valuable addition to the forum. When I was diagnosed, I declined to meet with a dietitian as I figured I probably knew more than she did. I know, rather pompous perhaps, but I lurked on the forum long enough to know that their advice was not always accurate.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,037
    • Most Online (within 30 mins)
      7,748

    cbattiato
    Newest Member
    cbattiato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.