Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nausea Every Evening...

hillary13

By hillary13
in Coping with Celiac Disease

Recommended Posts

hillary13 Rookie
hillary13
Posted

Any ideas why I'm having this problem. I'm nauseous every night....like almost throwing up. It's just been since I went on the gluten-free diet. I feel especially bad tonight and have a killer headache too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AVR1962 Collaborator
AVR1962
Posted

Many possibilities here. Here are something to think about:

Other foods or additives- dairy, soy, xanthan gum, etc.

Too little or too much vits. Too little iron can bring on nausea or taking too much D.

Did you just go off a med? That can also create stomach upset.

Having any trouble with acid reflux? Spice, acidic foods, alcohol for some, can cause nausea.

kwylee Apprentice
kwylee
Posted

For awhile I was waking up with nausea every morning and couldn't figure out why. It would go away as the day went on but would be back each morning. I started keeping a detailed food diary and found it was soy content in probiotics I was taking every night before I went to bed.

That the nausea is happening around the same time each day suggests an intolerance to something you're ingesting everyday (that may not necessarily be gluten). That food diary is key: what you ate, the time you ate it and the time you experienced the symptom. Then use that history to play detective and EVERYTHING should be considered suspect. Hope you figure it out soon!!

hillary13 Rookie
hillary13
Posted
  • Author

If I find out that I have to cut more foods out of my diet, I will go crazy. I can barely eat anything now as it is....plus, for a person that is a recovering anorexic, having to continually cut foods out of your diet makes it even harder to stay on the path to recovery....

kwylee Apprentice
kwylee
Posted

I admit I do not have personal experience with anorexia, but is it possible that if you could isolate what is making you so miserable in the evenings, there may be a replacement for it, e.g., a packaged food that contains soy could be exchanged for one that is soy free?

Are you eating foods that are packaged? If so, I'd start with one of those as a possible nausea culprit and then ponder further for a solution. One thing at a time. Please let everyone know how you are doing.

kareng Grand Master
kareng
Posted

If your not pregnant..... I got morning sickness all day, especially when I was hungry.

But now that I'm not preggers, I will get a headache in the late afternoon if I don't eat enough protein during the day. I know its that because, if I eat something proteiny like cheese or meat, it mostly goes away. You say you are barley barely eating, so maybe its blood sugar or my unscientific protein deficiency. :)

Edited to fix an unfortunate typo.

hillary13 Rookie
hillary13
Posted
  • Author

definitely not pregnant. i am eating, just feel so limited in the foods that i can eat. i am wondering if last night i just needed some food, but the other nights i have no clue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kwylee Apprentice
kwylee
Posted

I just looked back at some of your posts and notice that last week you may have still been eating a bit of gluten. If you are now entirely gluten free, you may be experiencing withdrawal. It is common and will pass but you must stay gluten free. If you are not gluten free, then you cannot evaluate any other food intolerances until you are 100% so.

Either way, this is for your health and good nourishment. Gluten is simply a protein, it's not an end all/be all, and neither is any other food you may find your system cannot tolerate. Being well and feeling happy is worth giving up things that make you feel badly.

Aly1 Contributor
Aly1
Posted

If I find out that I have to cut more foods out of my diet, I will go crazy. I can barely eat anything now as it is....plus, for a person that is a recovering anorexic, having to continually cut foods out of your diet makes it even harder to stay on the path to recovery....

I am also at the stage of things where I am still narrowing down the things that are affecting me and am also frustrated by the dwindling foods available to me! But - I am not also recovering from an eating disorder, that makes the situation all the more difficult. You have my sympathy! I hope you are getting the support you need during this difficult stage; just try to keep in mind that it's a stage that will pass and you will get to the point where things stabilize and you feel good again! Good luck to you.

kareng Grand Master
kareng
Posted

definitely not pregnant. i am eating, just feel so limited in the foods that i can eat. i am wondering if last night i just needed some food, but the other nights i have no clue.

You may have said before on another thread, but ...Why are you limited in what you can eat? Can you eat PB or Almond butter? Maybe try some on an apple in the afternoon and see if that helps?

hillary13 Rookie
hillary13
Posted
  • Author

I have gastroparesis as well as the celiac disease.

hillary13 Rookie
hillary13
Posted
  • Author

I always seem to have more problems being on the gluten free diet than when I'm not on it. I think that makes this all so much harder for me....

Aly1 Contributor
Aly1
Posted

That is very interesting. Are there foods you are eating more of when you go gluten-free? Have you tried a food diary to narrow down why it might be occurring?

hillary13 Rookie
hillary13
Posted
  • Author

That is very interesting. Are there foods you are eating more of when you go gluten-free? Have you tried a food diary to narrow down why it might be occurring?

I'm really not "changing" anything.....I mean....I'm eating gluten free now, but I'm not eating more of something that I wasn't eating before.

I do know that the gluten-free stuff is harder to digest....and I need an easily digestible diet. For some reason, white bread and white flour, etc are the easiest foods to digest....

hillary13 Rookie
hillary13
Posted
  • Author

ok.....so I had a baked potato tonight....already nauseous. what could be wrong with a baked potato???

Skylark Collaborator
Skylark
Posted

ok.....so I had a baked potato tonight....already nauseous. what could be wrong with a baked potato???

Did you have dairy with it? Butter or sour cream? I'm a little sensitive to nightshade veggies, including potatoes. I sure hope that isn't your issue.

Aly1 Contributor
Aly1
Posted

Was there anything on it? Was it the only thing you ate? What did you drink alongside it? Take any supplements after?

hillary13 Rookie
hillary13
Posted
  • Author

Did you have dairy with it? Butter or sour cream? I'm a little sensitive to nightshade veggies, including potatoes. I sure hope that isn't your issue.

margarine on it. and vernors to drink since i've been so nauseous.

Aly1 Contributor
Aly1
Posted

So there could be a few things going on. You need to test each of the items to see which one is causing it - have a plain potato (yawn, I know) on an empty stomach and just drink water, and see what happens. If you feel sick, you know you have an issue with potatoes. (You should still test each one of the other items to make sure you aren't reacting to any of them too). It's just a process of elimination, luckily you only have a few items there to go through!

hillary13 Rookie
hillary13
Posted
  • Author

So there could be a few things going on. You need to test each of the items to see which one is causing it - have a plain potato (yawn, I know) on an empty stomach and just drink water, and see what happens. If you feel sick, you know you have an issue with potatoes. (You should still test each one of the other items to make sure you aren't reacting to any of them too). It's just a process of elimination, luckily you only have a few items there to go through!

But why would I be fine eating potatoes before and now because I went gluten-free I now have a problem?? That doesn't make sense to me....

Aly1 Contributor
Aly1
Posted

Well, it seems that a lot of us who go gluten-free become very sensitive to other things in our diet. My doc says when you take the biggest offender out of the picture, other things bubble up to the surface. For me it was corn and anything derived from corn, even sweeteners. I'd been having those for life without any perceived problem, but now that I'm gluten-free they make me feel sick. So you just have to test to see what is making you feel bad. It sucks after going through getting gluten out of your diet, to be faced with still more foods that need to be removed. At times it can be overwhelming but when you find what's making you sick and you get rid of it, you will feel so good it will be worth the stress!

hillary13 Rookie
hillary13
Posted
  • Author

Well, it seems that a lot of us who go gluten-free become very sensitive to other things in our diet. My doc says when you take the biggest offender out of the picture, other things bubble up to the surface. For me it was corn and anything derived from corn, even sweeteners. I'd been having those for life without any perceived problem, but now that I'm gluten-free they make me feel sick. So you just have to test to see what is making you feel bad. It sucks after going through getting gluten out of your diet, to be faced with still more foods that need to be removed. At times it can be overwhelming but when you find what's making you sick and you get rid of it, you will feel so good it will be worth the stress!

i don't know how removing all this foods can be worth the stress. this is so difficult for me. i'm starving tonight even though i'm nauseous and i'm ready to just go and eat something that i'm not supposed to have.....

Aly1 Contributor
Aly1
Posted
:(. I've been there. Where you are hungry and overwhelmed and sick of thinking about it, and know that anything you put in your mouth is going to make you feeling lousy. Just this week I figured out my corn-derived sweetener issue and removed it (I am eating muffins out the wazoo bc I was dropping weight like crazy. Now they are totally unsweetened muffins. Yum. Not.) and it was like everything felt different overnight. It feels like such a relief physically to have that gone. Hang in there, really, you are trying to figure out what works for you and it's really really hard. But at some point you will get there - and it could be sooner than you think! - and you will know what to eat and what not to, to keep yourself feeling good.
Skylark Collaborator
Skylark
Posted

margarine on it. and vernors to drink since i've been so nauseous.

I hardly know anything about gastroparesis so I typed "gastroparesis carbonation" into Google. This came up at the American College of Gastroenterology website. Open Original Shared Link

"Symptoms of gastroparesis include bloating, nausea, early fullness while eating meals, heartburn, and epigastric pain. Ingestion of solid foods, high fiber foods such as raw fruits and vegetables, fatty foods or drinks high in fat or carbonation may cause symptoms."

Could it be the Vernor's?

Maybe it was OK before but now that your diet is a little different it's triggering some nausea?

Please don't get frustrated to where you eat gluten. My thyroid is a mess from having celiac undiagnosed for so long and I hate to see anyone else mess themselves up.

Skylark Collaborator
Skylark
Posted

Oh, another dumb question because I don't know about gastroparesis. Can you have a drink like Ensure to get some calories? Ensure is gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.