Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Proud Of My 9 Year-Old!


Avalon451

Recommended Posts

Avalon451 Apprentice

My daughters have been gluten free for just ten days.There has certainly been moaning, groaning, and mock cries of "Waaahhhh... no more doughnuts!" but for the most part, they are troopers.

Today the 9 y.o. came home from school and told me that she and her friend Allie, who sit next to each other, are in the habit of sharing a bit of their desserts with each other. (it's a small private school and they bring lunchboxes and eat at their desks.) She handed Allie a hunk of her homemade gluten-free macaroon ("yum" said Allie) and Allie handed DD a hunk of her cookie. DD put it down, intending to eat it in a minute, then said, "Hey! Are you trying to poison me?" :) She was pretty proud of herself that she remembered and resisted.

This from the girl who told me she was going to run away when we went gluten free. I mean, she was kidding, but sort of not...?

I'm also loving that my 16 y.o.'s boyfriend and his family have been very sweet and supportive. He's a nice, respectful kid, and is educating himself about it. His mom, who thinks my daughter is the bee's knees, has already called me to ask what is safe and what is not, and is stocking up on safe foods for DD to eat while over at their house.

Now if only I could get my own family interested, and get them to get tested!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Good Girl for your 9 yr old!

and

Awww, how sweet about your 16yr old's girlfriend and family.

Glad for your good news.

Bubba's Mom Enthusiast

My daughters have been gluten free for just ten days.There has certainly been moaning, groaning, and mock cries of "Waaahhhh... no more doughnuts!" but for the most part, they are troopers.

Today the 9 y.o. came home from school and told me that she and her friend Allie, who sit next to each other, are in the habit of sharing a bit of their desserts with each other. (it's a small private school and they bring lunchboxes and eat at their desks.) She handed Allie a hunk of her homemade gluten-free macaroon ("yum" said Allie) and Allie handed DD a hunk of her cookie. DD put it down, intending to eat it in a minute, then said, "Hey! Are you trying to poison me?" :) She was pretty proud of herself that she remembered and resisted.

This from the girl who told me she was going to run away when we went gluten free. I mean, she was kidding, but sort of not...?

I'm also loving that my 16 y.o.'s boyfriend and his family have been very sweet and supportive. He's a nice, respectful kid, and is educating himself about it. His mom, who thinks my daughter is the bee's knees, has already called me to ask what is safe and what is not, and is stocking up on safe foods for DD to eat while over at their house.

Now if only I could get my own family interested, and get them to get tested!

Sounds like your daughter is understanding the gluten thing pretty well? That must make you feel good?

It's so nice that your other daughter has come across such nice, accomodating people too?

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.