Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work Showed No Food Allergies...can I Still Have celiac disease?


lauraned

Recommended Posts

lauraned Newbie

Hello everyone! I am a 20-year old female with severe psoriasis, an autoimmune disease which affects the skin. I actually went on a gluten-free diet last June for about three months to try to help improve my psoriasis and noticed an improvement in my skin by the end of the summer (I also had lost some weight too which was a nice bonus). Unfortunately, I started eating gluten again by the end of August as I started another semester of college and had a difficult time maintaining the gluten-free lifestyle. My psoriasis is now the worst I've seen it in quite awhile. I'm not sure if it is because of the dietary change or the fact that winter always makes my psoriasis flare.

Anyways, for the last two weeks I have been having some gastrointestinal issues and have been wondering if they could be attributed to Celiac Disease. I've experienced upper abdominal pain (usually on the left side), bloating/gas, constant burping, and occasional diarrhea. The symptoms are varied and are usually worst after I eat. I have always had a slightly irregular menstrual cycle, usually getting my period every 6 weeks instead of 4. Strangely though it has been at least 8 weeks since I've gotten my last period (I'm not pregnant, just fyi).

I went to see a doctor last week and they ordered an ultrasound on my gallbladder and also some blood work to test for food allergies. I was also prescribed Prilosec, but decided not to start taking it yet. Today I called to find out the results of my tests and found that I don't have any issues with my gallbladder and no food allergies. Can I still be diagnosed with celiac disease if I am not allergic to gluten? I know there is some difference between the two, but maybe someone can explain it better than my current understanding. I just feel like all the signs point to celiac disease, but I am not sure if I should bring it up with my doctor at my next appointment to ask to have the blood test done for Celiac.

Any insight would be greatly appreciated. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Celiac is an auto-immune disease, not an allergy.

IrishHeart Veteran

Celiac is an auto-immune disease, not an allergy.

....and is often associated with psoriasis.

You may wish to read about Celiac disease so you understand that it is not an allergy and how it is diagnosed.

https://www.celiac.com/articles/1108/1/Celiac-Disease-Screening/Page1.html

burdee Enthusiast

Hello everyone! I am a 20-year old female with severe psoriasis, an autoimmune disease which affects the skin. I actually went on a gluten-free diet last June for about three months to try to help improve my psoriasis and noticed an improvement in my skin by the end of the summer (I also had lost some weight too which was a nice bonus). Unfortunately, I started eating gluten again by the end of August as I started another semester of college and had a difficult time maintaining the gluten-free lifestyle. My psoriasis is now the worst I've seen it in quite awhile. I'm not sure if it is because of the dietary change or the fact that winter always makes my psoriasis flare.

Anyways, for the last two weeks I have been having some gastrointestinal issues and have been wondering if they could be attributed to Celiac Disease. I've experienced upper abdominal pain (usually on the left side), bloating/gas, constant burping, and occasional diarrhea. The symptoms are varied and are usually worst after I eat. I have always had a slightly irregular menstrual cycle, usually getting my period every 6 weeks instead of 4. Strangely though it has been at least 8 weeks since I've gotten my last period (I'm not pregnant, just fyi).

I went to see a doctor last week and they ordered an ultrasound on my gallbladder and also some blood work to test for food allergies. I was also prescribed Prilosec, but decided not to start taking it yet. Today I called to find out the results of my tests and found that I don't have any issues with my gallbladder and no food allergies. Can I still be diagnosed with celiac disease if I am not allergic to gluten? I know there is some difference between the two, but maybe someone can explain it better than my current understanding. I just feel like all the signs point to celiac disease, but I am not sure if I should bring it up with my doctor at my next appointment to ask to have the blood test done for Celiac.

Any insight would be greatly appreciated. Thanks!

Which blood test were you given? (RAST? ELISA?) Did it look for IgG or IgA mediated allergies? Those are delayed reaction allergies which are common among people with celiac disease. Some tests only look for IgE mediated allergies, which are anaphylactic and immediate, not delayed reaction like gluten intolerance.

BTW allergies do involve an immune reaction because antibodies are created. Only intolerances, like lactose intolerance, which involves an enzyme deficiency, don't involve the immune system. Gluten intolerance is actually a misnomer, because the immune system mediates reactions to gluten.

GFinDC Veteran

Hi, welcome to the board. you might want to read up on dermatitis herpetiformis on this site. It is an auto-immune skin condition that some people with celiac get. It often flares when people eat gluten. If you do have DH, they would test for it by taking a biopsy of the skin next to a lesion.

There are certainly some symptoms you describe that fit celiac disease. It makes sense to me to get the celiac antibodies tests done. Your improvement on gluten-free diet is a big indicator. Be aware though that the celiac antibodie tests are not 100% accurate, and fairly often give false negative results

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.