Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Actually Competent Celiac Docs In The Seattle Area?


lc1333

Recommended Posts

lc1333 Apprentice

so, seeing how my GI doc is completely incompetent, AND i have to get my kids tested now, does anybody know of any good docs in the Seattle area???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

so, seeing how my GI doc is completely incompetent, AND i have to get my kids tested now, does anybody know of any good docs in the Seattle area???

I've had good results with the IBS Treatment Center in North Seattle. (Rather than diagose your symptoms as "IBS", they look for causes of IBS symptoms, which they believe are caused by gluten intolerance, other food allergies, gut dysbiosis or bacterial, parasitic or fungal infections, among other things).

My current doctor is affiliated with the Tahoma clinic, which has a clinic in Renton and one in Lake City in North Seattle. (If you want to go beyond a celiac/gluten intolerance diagnosis and diagnose and treat other complications, esp. from long undiagnosed celiac disease, I'd recommend Tahoma Clinic docs.)

Avalon451 Apprentice

We're just in the process, and we were referred to David Susskind at Seattle Children's hospital, a pediatric GI doc. He's reputed to be the best, and we've certainly found him to be very competent, kind, and knowledgeable about celiac. Also really seems to listen and give you a chance to air your questions and opinions. My 16 y.o. presented with dermatitis herpetiformus, and her Everett Clinic dermatologist referred us to him. Since then I've heard two other people, one a doctor and one, a friend of mine, a director at a big asthma clinic, tell me that he's the best in the area.

He gave us the choice of whether or not to do an endoscopy with her. (we went ahead and did it). He's done thousands of them, and it went very well. He usually takes 6 biopsies, but being extra careful, he took 8 with her. It just came back a few days ago, positive. He's got us set up to meet with a dietician for extra help with the diet. Just overall very pleased with the staff and treatment there.

My younger two had positive bloodwork (though not as strongly positive as their sister) and we chose not to get them scoped, and he thought that was fine, since we are all going gluten-free anyway. They will remain under the care of their regular pediatrician at Everett Clinic (Cheryl Beighle, who we love) unless they develop complications that they need to be seen at Children's for.

Meanwhile my doc referred me to an Everett Clinic GI, Lonny Hecker. I've only met him once, at my consultation, but I was really impressed. Again, he seems very knowledgeable, and he says he pretty much tests everybody who comes through his office, because he's found that around 40% of everybody at a GI doc's office has celiac, even if they're not looking for that diagnosis. I'm getting an endoscopy on Tuesday.

Good luck with your search! We feel like we've been very lucky so far.

lc1333 Apprentice

thanks for the input y'all, here we go....

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.