Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free But Other Intolerances?


maltenbe

Recommended Posts

maltenbe Newbie

This is my first post here, I've been gluten-free for a year now. The transition wasn't too bad for me because my sister had been diagnosed with Coeliac a few months before. After eliminating the gluten and finally getting experienced enough at it to be pretty certain I wasn't consuming any rogue gluten, I am still having problems from various things.

Dairy

I have been having a weird reaction to dairy, not really similar to my gluten symptoms. No GI symptoms, but if I eat dairy, within an hour or two my skin gets really weirdly greasy, and I can smell it too, and my eyes feel weird and clogged up, and my tears are thicker than they should be. Cheese was particularly problematic, but I would usually feel perfectly fine if I had AA Organic butter. So for a long time I wasn't dairy free, because it was confusing and I didn't know what was actually the problem. It seems to be casein is the issue, but only if I consume a fair amount, that would explain why I could tolerate the butter better than other dairy. Does this seem reasonable? I am now working towards casein free, but I find it is much more difficult for me than gluten. Since butter hasn't really been a problem, I will probably try using Ghee that is labeled casein free.

Rice

This one only seems to happen if I eat rice directly, I have no problem with gluten-free bread that has rice flour. If I eat white rice or rice noodles I feel really weird the next morning. It is very difficult to describe, it's just not good. Usually I have rice with curry or something, and I was thinking it might be the coconut milk, but I also feel funny after pad thai. I am very careful and all the ingredients in the curry and pad thai are definitely gluten free, and are even labeled as such. I have no problem with corn, gluten-free Oats, or gluten-free bread, so it seems weird to me that I would tolerate all those but be sick after plain rice. Any thoughts on this would be helpful. I have been mostly avoiding rice lately.

There are other things, but I don't want this post to go on forever, and I'd rather not get a complete scattershot of replies, so I will post those some other time.

Thanks,

Miko


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

    2. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

    3. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,269
    • Most Online (within 30 mins)
      7,748

    powergs03
    Newest Member
    powergs03
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
    • Scott Adams
      This article might be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.