Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free But Other Intolerances?


maltenbe

Recommended Posts

maltenbe Newbie

This is my first post here, I've been gluten-free for a year now. The transition wasn't too bad for me because my sister had been diagnosed with Coeliac a few months before. After eliminating the gluten and finally getting experienced enough at it to be pretty certain I wasn't consuming any rogue gluten, I am still having problems from various things.

Dairy

I have been having a weird reaction to dairy, not really similar to my gluten symptoms. No GI symptoms, but if I eat dairy, within an hour or two my skin gets really weirdly greasy, and I can smell it too, and my eyes feel weird and clogged up, and my tears are thicker than they should be. Cheese was particularly problematic, but I would usually feel perfectly fine if I had AA Organic butter. So for a long time I wasn't dairy free, because it was confusing and I didn't know what was actually the problem. It seems to be casein is the issue, but only if I consume a fair amount, that would explain why I could tolerate the butter better than other dairy. Does this seem reasonable? I am now working towards casein free, but I find it is much more difficult for me than gluten. Since butter hasn't really been a problem, I will probably try using Ghee that is labeled casein free.

Rice

This one only seems to happen if I eat rice directly, I have no problem with gluten-free bread that has rice flour. If I eat white rice or rice noodles I feel really weird the next morning. It is very difficult to describe, it's just not good. Usually I have rice with curry or something, and I was thinking it might be the coconut milk, but I also feel funny after pad thai. I am very careful and all the ingredients in the curry and pad thai are definitely gluten free, and are even labeled as such. I have no problem with corn, gluten-free Oats, or gluten-free bread, so it seems weird to me that I would tolerate all those but be sick after plain rice. Any thoughts on this would be helpful. I have been mostly avoiding rice lately.

There are other things, but I don't want this post to go on forever, and I'd rather not get a complete scattershot of replies, so I will post those some other time.

Thanks,

Miko


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Donna Moxley commented on Scott Adams's article in Latest Research
      2

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    2. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    3. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,277
    • Most Online (within 30 mins)
      7,748

    Michellesmitty
    Newest Member
    Michellesmitty
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.