Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics

dmb2151

Recommended Posts

dmb2151 Rookie
dmb2151
Posted

I received my celiac diagnosis in early December, and have been gluten free since, but I am still experiencing some symptoms. When I went back to my gi doctor in January, she said that it is probably just taking some time for my intestines to heal. I go back in March, but have not had much relief of my digestive symptoms. I am still experiencing loose stools and nausea. I have read a lot about probiotics and they can be helpful in the intestinal healing. I plan on asking my doctor to recommend a probiotic, but was wondering if anyone else can recommend a good one for celiac disease. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Diane-in-FL Explorer
Diane-in-FL
Posted

I take Culterelle. There are others, but this one seems quite popular with folks here, and it is making a difference with me. But you doctor is right.....you are still healing.....and a probiotic should help you. Good luck! :)

IrishHeart Veteran
IrishHeart
Posted

Probiotics are a must for celiac guts.

Open Original Shared Link

Custom Probiotics are a very good product (and he will talk to you on the phone as well.) They provide a broad spectrum of beneficial flora.

Open Original Shared Link

OTC Culturelle work very well, too. My GI doctor recommends this one because it is backed by clinical research. Just be sure to get the dairy-free ones.

They helped me immensely ---and my GI tract was a burning mess.

Best wishes. Hang in there. :)

tom Contributor
tom
Posted

I get PB8 at Whole Foods. The green-top one (aka veg formula) is dairy-free. Apparently many probiotics are grown with dairy involved. I don't know a lot about it but when I 1st started probiotics yrs ago I started getting my weird detached "living-in-3rd-person" symptom until I read more & stopped taking those.

I don't get that w PB8 green-top.

I've also heard it's good to switch 'em up to get different strains but haven't seen another I want to try. (Partly because the place w the largest selection also has !~@%$#$%& fragrances by the pill aisles & I can only read for as long as I can hold my breath :angry: )

Cathey Apprentice
Cathey
Posted

I was going to suggest ask Irish Heart. See she already replied. I'm using ones I buy @ my Dr's office along with an Aloe drink. I was uncertain of what I was using and Irish Heart researched what I was using as a go. I fell so much better on the Probiotics and Aloe. It really has settled my stomach and less abdominal and gas issues. They really work.

eatmeat4good Enthusiast
eatmeat4good
Posted

Ha! Me too!

I was going to say Irish Heart recommends Culturelle...but as you can see....she doesn't miss a beat!!

Love ya Irish!

And yes, I'm taking my Culturelle!!

IrishHeart Veteran
IrishHeart
Posted

Love ya Irish!

And yes, I'm taking my Culturelle!!

xxoo Good girl ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom-of-Two Contributor
Mom-of-Two
Posted

Interestingly, I have been giving my kids both Culturelle probiotic (adult capsules opened and dumped into food/drink) for over 3 years now, I use them for immunity, keeping them regular, etc. I was taking them before getting my celiac diagnosis, and then my primary dr recommended a different one by Renew Life-- still thinking I had IBS. I have two boxes of them, been taking 2 a day (30 billion). The Renew Life are multiple strains and a combination of bifido and lactobicilli bacteria, supposedly beneficial for both large and small intestine.

They seem better, but I need to get more Culturelle for the kids and am wondering which would be more beneficial for me, Culturelle is so ofen recommended.

I have heard that you should switch up the bacteria, but my GI said that is not true at all, so long as you take it every day, the good bacteria continues to populate the gut. I asked her because my kids have been taking Culturelle so long, but she said t's great for them.

I have to use what is left on these but does anyone have knowledge about the Renew Life? They are a huge digestive company, and their product line is pretty impressive, lots of "critical care" probiotics that could be helpful to celiacs.

I want to be taking the right one to speed healing!

dmb2151 Rookie
dmb2151
Posted
  • Author

Thank you for all the replies! Sounds like Culturelle is a good one, I will definitely ask my doc about it.

Thanks for the help :)

IrishHeart Veteran
IrishHeart
Posted

If it matters to your doctor, My GI doc thinks they are especially good because of the lactobacillis strain.

"Lactobacillus GG was discovered in 1985 at Tufts University in Boston, MA by Dr. Sherwood H. Gorbach and Dr. Barry R. Goldin. Considered to be the premier probiotic in the world, Lactobacillus GG has been the subject of more than 400 scientific studies."

Here, you can print this off:

Open Original Shared Link

Celiacs guts are deficient in the good gut bacteria and need them replenished. They have helped every single celiac I know!

Just IMHO

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748
    Megannnnn
    Newest Member
    Megannnnn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.