Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rant Frustrated...feeling Compelled To Cheat..but Wont

Metoo

By Metoo
in Coping with Celiac Disease

Recommended Posts

Metoo Enthusiast
Metoo
Posted

I am at almost 4 months gluten free. I am not diagnosed with celiac, my blood test was negative, I decided not to go through with the scope, because I would have had to kept a food journal for 3 months to convince my doctor, I was just too fed up at that point so I went gluten free.

My mom has both celiac genes but test negative herself via blood test, her sister and her sister's kids all can no longer have gluten.

After going gluten free, I have not had any stomach pain problems for the entire 4 months! My hand cleared up entirely, which the prescription from the dermatologist couldn't do! I am not getting into running again, and I am actually seeing improvement, I was an avid runner 10 years ago...and the last 7 I have struggled with it.

But...I am finding myself frustrated. Frustrated that I am STILL not losing weight...and that often lately have thought about consuming gluten. I know what will happen if I do...over Christmas I did and my hand broked out so much worse, and I delt with the pain, broken skin for 5 weeks!

I guess this is one of those times I wish I had a diagnosis to keep me from eating gluten. So far I remember to think about my Christmas time ordeal...and what might happen next time. Or that I consumed vodka and within 2 hours I spent the whole day in the bathroom.

I am happy that my sister (who I believe has celiac), is finally going to get tested! Sometime in March. I hope she tests positive, if she does that will make it more concrete that I do have it.

I must say I think some of this frustration might stem from practically giving up dairy/lactose, I am still eating limitedly cheese, yogurt and almond milk. I am really limited now in eating at work, and I find myself frustrated and hungry at the end of eat day. I need to find more things I can bring to work. Really if I was losing weight, this whole starving in the afternoons at work might be alright. =)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Does the milk bother you for cetain? Maybe you could add some back in. I think some of the cheeses like cheddar have little to no lactose.

This seems reasonable and agrees with what I have heard before:

Open Original Shared Link

Metoo Enthusiast
Metoo
Posted
  • Author

Does the milk bother you for cetain? Maybe you could add some back in. I think some of the cheeses like cheddar have little to no lactose.

This seems reasonable and agrees with what I have heard before:

Open Original Shared Link

Milk bothers me for certain, if I drink raw milk I spend the rest of the day gassy, bloated and feeling awful. I took it out for 3 weeks and then tested it last weekend.

I am still eating like 1/2 cup greek yogurt per day and I am eating cheese, but I use it sparingly.

I am having 1 cup of almond milk per day...and still use cow milk sometimes to bake, for mac n cheese (1/2 cup for the whole 2 boxes)...so its very limited the amount I might actually be intaking.

kareng Grand Master
kareng
Posted

Milk bothers me for certain, if I drink raw milk I spend the rest of the day gassy, bloated and feeling awful. I took it out for 3 weeks and then tested it last weekend.

I am still eating like 1/2 cup greek yogurt per day and I am eating cheese, but I use it sparingly.

I am having 1 cup of almond milk per day...and still use cow milk sometimes to bake, for mac n cheese (1/2 cup for the whole 2 boxes)...so its very limited the amount I might actually be intaking.

I was hoping that if we could find you some fun things to eat, you might perk up. Have you tried goat cheese? Feta is delicious on salad or melted on pizza or a sandwich. The article says that it might be easier to digest.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

It sounds like you have Celiac..or at least a strong gluten intolerance? With the genes in the family I think you are wise to stay gluten-free?

Can you take nuts to nibble on? They're good for you and will help with the hunger that makes you want to grab bad carbs. Almonds are tasty and healthy too.

The important thing is to not skip meals. Eating at regular intervals helps boost your metabolism.

Monael Apprentice
Monael
Posted

I think you have two issues going on. First, if you feel so much better without the gluten, then it seems to me like that would be your motivation to keep up with it.

The second issue is not losing weight. I wish gluten free diets meant losing weight because I should definitely lose several pounds. But it doesn't mean you will automatically lose weight.

I didn't get a diagnosis from the doctor for 2 reasons. #1, I already went gluten free and noticed such a big relief in my symptoms that I was happy to stay gluten free and #2 I didn't want to have to go back to eating gluten in order to get the diagnosis. I had already accidentally been glutened and had all my old symptoms back so that was good enough for me.

GFinDC Veteran
GFinDC
Posted

Hi,

It doesn't seem like you are really having a problem with dairy if you are eating yogurt, cheese, and using milk in baking. So if that is the case there may not be any need to restrict yourself from it. Do you have symptoms from eating dairy? If not don't worry about it. If you aren't sure then they way to find out is to stop all dairy completely for a few weeks and then try cheese first for a week and the next week try milk. Stopping something only partially is not much use for determining reactions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Metoo Enthusiast
Metoo
Posted
  • Author

I was hoping that if we could find you some fun things to eat, you might perk up. Have you tried goat cheese? Feta is delicious on salad or melted on pizza or a sandwich. The article says that it might be easier to digest.

I think you are right. I went to the grocery store last night and tried buying a few different things. Maybe I just need a change of pace food wise.

IrishHeart Veteran
IrishHeart
Posted

You cannot lose weight by starving yourself, hon! That messes up your metabolism.

You need some variety to keep you interested!

There are low carb muffins you can make with almond flour.

Open Original Shared Link

And returning to gluteny foods will likely cause you to GAIN weight as well as return those symptoms you just got rid of, so please don't do that! :)

Goat cheese products, more veggies and fruits, and smaller meals throughout the day may help? Eat 5-6 six smaller portions (instead of big meals) that include PROTEIN with carbs (some hummus or PB on a cracker, small amount of cheese with veggies, some grapes, etc ) and you may see a few lbs. drop off. I do this around 3 PM when I start feeling a little bit tired and hungry.

Too many gluten-free goodies just packs on the lbs.--I have learned. I had a 20 lb. swing UP once I went gluten-free! This was okay, since I was malnourised and had dropped 90 lbs. and was looking pretty scrawny but I do not need any more extra lbs. at this point. :lol: and so it is best to go with whole, fresh foods.

But I admit it, a handful of Cape Cod chips has been a snack around here too. :lol: (who doesn't like chips?)

llama3 Apprentice
llama3
Posted

If you're eating lots of processed gluten-free foods, crackers, breads, etc, that could be why you are not losing weight. I have found that I cannot eat these things, they give me all sorts of digestive problems. My favorite treat right now to satisfy my cravings is to combine, in a food processor, some nuts, dates, and coconut (flakes and oil), roll it up in little balls and refrigerate. They harden and make a great snack, sweet and chewy. Sometimes I will just eat nut butter with a spoon. Baked apples are good. I was going crazy too but it helped to find some things that feel like a treat, so I can feel that I'm indulging now and then.

IrishHeart Veteran
IrishHeart
Posted

My favorite treat right now to satisfy my cravings is to combine, in a food processor, some nuts, dates, and coconut (flakes and oil), roll it up in little balls and refrigerate. They harden and make a great snack, sweet and chewy.

.....ooh, that sounds like "yum"!!! your very own (sort of )Larabar

and probably a lot cheaper, too. :)

llama3 Apprentice
llama3
Posted

.....ooh, that sounds like "yum"!!! your very own (sort of )Larabar

and probably a lot cheaper, too. :)

Exactly. :)

They are really good with toasted cashews and pecans.

IrishHeart Veteran
IrishHeart
Posted

Exactly. :)

They are really good with toasted cashews and pecans.

Now, I want some... :lol:

Katrala Contributor
Katrala
Posted

Or that I consumed vodka and within 2 hours I spent the whole day in the bathroom.

You can drink vodka on a gluten-free diet. It's safe once distilled.

Of course.. vodka can cause you to spend the whole day in the bathroom depending on how much you have.. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end...
    2. trents
      - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So...
    3. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

      I have a lot to learn! Thank you
    4. DebJ14
      - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ...
    5. Hmart
      - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748
    Linda Stark
    Newest Member
    Linda Stark
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      Is this celiac?

      By Hmart · Posted

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.