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Did Anyone Else Have This Issue?

Ryniev

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Ryniev Apprentice
Ryniev
Posted

Sorry if this sounds silly but I've lost my fullness radar since going gluten free. What I mean is my stomach normally hurt because I've always had stomach cramps, gas and bloating after eating. I mentioned to my mother the other day I'm so used to having a stomach ache or heartburn pretty much all the time that it seems foreign to not have one. However, now I seem to want to eat all the time because I don't think

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eatmeat4good Enthusiast
eatmeat4good
Posted

I don't know how long you have been gluten free, but some people become ravenously hungry as they heal. I speculate it is the body trying to heal you and make up for lost time. I lost my appetite and never wanted to eat at all but I made myself eat. Then a few months later I got the "ravenously hungry" stage. It was strange to be eating so much and not feeling bad. What I have read on here from people who had a similar experience as yours is- just go with it. Your body is trying to heal and you should feed it when it asks you for food. The stage passes as you heal. I'm not an expert, just telling you what I have read here when others have had this happen to them.

Hope your healing goes well.

squirmingitch Veteran
squirmingitch
Posted

I have dh & never had too much bad GI symptoms & I've never had a weight problem unless you want to say I had a lack of weight problem. I always ate throughout the day ~~~ 5 small meals per day & like that. When I went gluten free I became horrendously RAVENOUS 24/7. I could eat a large breakfast & within 1 hour I was starving again. It still happens but to a lesser degree. I just chalked it up to my body (gut) healing & it's trying to get the nutrition I've been behind on. I had no choice but to go with the flow & I have. I have not gained one ounce yet (but I could benefit from at least 5 lbs.). I'm still hoping.

faithforlife Apprentice
faithforlife
Posted

I can relate. I thought it was because corn, potatoe and white rice are so starchy so I'm trying a low carb diet but I'm still learning it. I've gained 10-12 lbs and dont want /need to keep gaining. I go to bed hungry at night! But I know I've eaten plenty.

adab8ca Enthusiast
adab8ca
Posted

When I first got diagnosed, if it wasn't nailed down, I was eating it.

I put on 12 pounds in a heartbeat. It did pass eventauly.

dani nero Community Regular
dani nero
Posted

If you read a book called "Eating Less: Say Goodbye To Overeating" by Gillian Riley, she states that when you are aware that some food are forbidden, then your mind gets fixated on breaking free because it's aware of the new restrictions. The book can probably help you regulate your eating so you don't put on any weight without dieting. Hope this helps!

Bellanovia Newbie
Bellanovia
Posted

holy cow, this explains my extreme hunger too..

Since my stomach has stopped hurting like yours I am always feeling like I am hungry..something I rarely felt before because it was overshadowed with pain and bloating.

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      By trents · Posted

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      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
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      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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