Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Using Otc Anti-Itch Cream On Dh

BeFree

By BeFree
in Dermatitis Herpetiformis

Recommended Posts

BeFree Contributor
BeFree
Posted

I have this rash that appears very much like DH, but I have not been diagnosed. I know that persons with gluten intolerance and/or Celiac can be prone to other skin conditions such as exzema.

SO, today at the store I got some exzema cream to try on it, in case it might work. If I do in fact have DH, will it hurt anything to put OTC exzema cream on it? Should I or should I not do this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Some people have reported good itch relief using Orajel. The stuff for toothaches. It has a skin numbing ingredient that helps with the itch.

itchy Rookie
itchy
Posted

I can't imagine that using any approved medication will have any negative effect on someone with DH (unless it has gluten or iodine in it, debatably-not everyone has the same reaction to topical gluten or iodine).

And probably not much positive effect either.

People have success with various creams, etc to help with symptoms, but nothing to my knowledge has any effect on the malady itself.

For me, anything that keeps the skin moistened definitely helps.

Ryniev Apprentice
Ryniev
Posted

I've had some luck with the Whole Foods mint lotion combined with aloe, apple cider vinegar, organic extra virgin coconut oil and clear calamine lotion. I soak in a tub with the aloe, acv, evco. Then I make a paste out of the mint lotion and calamine. This has been the result of 7 months of trial and error. Also, I've used the orajel but the tubes are so small!

Another thing I've been practicing for the last couple days is called "tapping" or

Di2011 Enthusiast
Di2011
Posted

Ryniev,

Can you pass on the link for the ebook?

Ryniev Apprentice
Ryniev
Posted

Ryniev,

Can you pass on the link for the ebook?

This is their website. You'll have to scroll down and register your name and email to get the free ebook. Hope it helps. :D

Open Original Shared Link

BeFree Contributor
BeFree
Posted
  • Author

"I can't imagine that using any approved medication will have any negative effect on someone with DH"

OK thanks, I was concerned that if I put the wrong thing on it, it could irritate the DH or make it worse. That doesn't seem to be the case. At least no one has said it happened to them as of yet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

As to my experience there is nothing you put ON the dh that makes it either better OR worse. Unless maybe you rubbed gluten directly into it. And I doubt anyone would willingly try that to find out what happens.

You can use things that help the itching but that's about it.

Metoo Enthusiast
Metoo
Posted

As to my experience there is nothing you put ON the dh that makes it either better OR worse. Unless maybe you rubbed gluten directly into it. And I doubt anyone would willingly try that to find out what happens.

You can use things that help the itching but that's about it.

Ditto this. Before I found out what it might be...I tried cortizone cream, antifungal cream, 2 types...then I finally saw a dermatologist who vaguely dianosed it as stress induced excema and gave me the strongest steroid cream they have...and all that did was slow the turn over rate on it...and made it itch hurt SO much WORSE!

I have found keeping lotion on it, seems to help my skin from cracking so much.

pricklypear1971 Community Regular
pricklypear1971
Posted

The only things I've noticed are that 1) steroids may reduce it but stops it from healing completely 2) anything astringent or scented seems to irritate mine, but that could be because that stuff tends to irritate my skin anyway.

Lotions help - I prefer Vanicream, and Dove unscented products work ( I mean the ones that don't smell at all - the unscented body wash has a scent that turns me green).

I've had a spot on my finger lately - unsure what it is - but it does better if I cover it with some shea butter/olive oil salve and a bandaid.

I think everyone here may react to some otc product - we all seem to have slightly different sensitivities. If you find one that works for you stick with it.

eatmeat4good Enthusiast
eatmeat4good
Posted

Benzocaine products work for the pain, sting and itch.

Walgreens Pain Relieving Ointment

Solarcaine

Bactine

They only work temporarily but sometimes it is a great relief.

BeFree Contributor
BeFree
Posted
  • Author

Doesn't the prescription Dapsone that I've read about even work?

squirmingitch Veteran
squirmingitch
Posted

Read these threads all the way through. Check out Dapsone thoroughly before you jump on it. Be aware of what you take & what it may do to you both good & bad. Believe me, I wish there were magic for this beast. Personally, I wouldn't touch Dapsone with a 10 ft. pole even though I am a squirmingitch! AND even if I didn't have a sulfa allergy.

https://www.celiac.com/forums/topic/80271-sulfa-allergy-no-dapsone/

https://www.celiac.com/forums/topic/78001-oxygen-levels-and-dapsone-and-dh/

https://www.celiac.com/forums/topic/86903-dapsone/

https://www.celiac.com/forums/topic/68551-tired-of-dapsone/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.