Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Md Or East Coast?


KaitiUSA

Recommended Posts

Lauren M Explorer
I'm 22, and not recently diagnosed at all! Been diagnosed for about 20 years now.

I live in Southern Pennsylvania, but find myself often in South Jersey where I grew up (in Washington Township). I'm always looking for new friends, not to mention people to meet and talk to who understand the plight of eating gluten free :)

Samantha

Hey Samantha! I just moved from Deptford, NJ to the Maryland area, and my parents live in south-central PA. Are you more toward Philly?

- Lauren

  • 3 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 136
  • Created
  • Last Reply
jacwheeler Newbie
Hey everyone!

"Home" for me is Gettysburg, PA, I work in Howard County, MD, I go to school in Philadelphia, and I'm moving to New Jersey soon. So yep, I've got Maryland and the East Coast covered! :)

I'm 23, enjoy reading, horseback riding, horses and animals in general. I work for a horse magazine.

Kaiti - do you go to school in Frederick? I'm pretty familiar with Frederick - I drive through there to get to work and I sometimes go there to shop, etc. (b/c there is no civilization around me!) In fact, I'm going there to see a movie tomorrow :D

- Lauren

Hi there. I live 20 minutes North of Philadelphia and about 20 minutes from Trenton. So I've got those 2 states covered. My 2 stepcousins and Aunt love to ride horses. They have 2 and do a show every weekend it seems. My Aunt also shoots all the shows and then has a website business where people can buy her photos. Here is her link if you're interested or have run across her in shows Open Original Shared Link

Philadelphia and the New Jersey area has a lot to offer for gluten-free people. If you have any questions just let me know!

Open Original Shared Link

Lauren M Explorer
Hi there. I live 20 minutes North of Philadelphia and about 20 minutes from Trenton. So I've got those 2 states covered. My 2 stepcousins and Aunt love to ride horses. They have 2 and do a show every weekend it seems. My Aunt also shoots all the shows and then has a website business where people can buy her photos. Here is her link if you're interested or have run across her in shows Open Original Shared Link

Oh wow, how cool! Where does your Aunt live? I'm wondering if I've seen her at some shows before. I was looking at her website, but didn't see a location. You can PM me if you prefer.

(By the way, since my quote post was originally made in 9/05, I have moved to New Jersey, and recently back to Maryland, now in Frederick since Jan of this year. Time flies...)

- Lauren

  • 4 months later...
Guest keegans_mommy

I live in Marshall, VA. It's about 45 min. west of D.C. and really not too far from those who live in Fairfax :) I am new to this site and to the Celiac life and would like to know of places to eat out! I feel so alone in this!

jmengert Enthusiast

My parents live in Marshall, VA, and I go up there to visit fairly often. While I don't eat out anymore (too many other intolerances), the IGA in town has a fairly good gluten-free selection, as does Bloom. IGA used to have even more products, when I was first diagnosed, but they do take special requests/orders.

When I was still eating out, I went to the Outback in Warrenton, Fairfax, and Centreville, never having a problem at any of them. There's also a Bonefish in Gainesville, which has a gluten-free menu, but I got sick from that one.

Guest keegans_mommy
My parents live in Marshall, VA, and I go up there to visit fairly often. While I don't eat out anymore (too many other intolerances), the IGA in town has a fairly good gluten-free selection, as does Bloom. IGA used to have even more products, when I was first diagnosed, but they do take special requests/orders.

When I was still eating out, I went to the Outback in Warrenton, Fairfax, and Centreville, never having a problem at any of them. There's also a Bonefish in Gainesville, which has a gluten-free menu, but I got sick from that one.

No way! I wonder if I know them ;) We've only lived here for 6 years this Dec. though :)

I have noticed that IGA does carry a good amount of specialties but they are expensive!!!! Bloom has some stuff too but I still find myself going to Whole Foods to get a bunch of stuff to suppliment. I can't find everything I want/need around here.

The Outback recommendations are great! Thank you :) I've never been to Bonefish before, all seafood huh? It's nice to "meet" you :)

jmengert Enthusiast

Yeah, it's a small world! My parents have lived there about 7 or 8 years now, I guess. It would be funny if you knew them!

IGA *is* expensive. I buy certain things there when I'm up that way, but I still do a lot of shopping at the Whole Foods in Fairfax.

I hope the Outbacks work for you; I got glutened horribly by one down here where I live, but I was okay with the ones up in that area. I would just be very clear with your needs and try to go during an off time.

Bonefish had great food--it's mostly seafood, and it's a bit pricey, but it's good. However, since I got sick there, I haven't been back. This was shortly after they opened, so hopefully they are better with the gluten-free options now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
razzlephrat Newbie

Another Maryland-er here.

Well, Baltimorian..sadly. haha

I don't know anyone here with Celiacs. :(

blueeyedmanda Community Regular
Another Maryland-er here.

Well, Baltimorian..sadly. haha

I don't know anyone here with Celiacs. :(

I am in PA but Welcome to the Board :) Baltimore if about an hour and half from me :)

razzlephrat Newbie
I am in PA but Welcome to the Board :) Baltimore if about an hour and half from me :)

Awesome, my dad lives in PA about 30 minutes from me. If you don't mind me asking where about? (He lives in the Felton/Red Lion area)

blueeyedmanda Community Regular

I'm in Harrisburg, well the Harrisburg area.

Guest Jemenii36

Hey everyone- I am from New Jersey and new to this site (it seems so confusing!)...I am 20 years old...soon to be 21...has everyone been diagnosed with celiac disease recently or living with it for awhile?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,165
    • Most Online (within 30 mins)
      7,748

    AmynDevyn
    Newest Member
    AmynDevyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.