Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Armpits Dh

GFreeMO

By GFreeMO
in Dermatitis Herpetiformis

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

Whenever I consume gluten by CC or corn, I get DH on my elbows and recently both of my arm pits. It's insanely itchy. I drank a soda on Sat. night and woke up Sun. morning with DH under my arm pits. It was so itchy that I was scratching them overnight and now they are bleeding.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Oh no.

Ice packs, Vanicream (I know it's gluten-free, check for corn) and Vaseline.

Try to wear a bra as little as possible.

Use a mild deoderant - nothing with scents or strong ingredients. It burned mine.

Try to wipe it down with wet clothes a few times a day.

You will notice more bo, but that's normal because of the skin and scab accumulation around the sweat glands.

Try a low iodine diet and see if it helps snuff it out. Google "thyca".

Antiinflammitories can aggrivate DH, so use a Tylenol type (if you gave a corn safe version).

pricklypear1971 Community Regular
pricklypear1971
Posted

You will need to apply the lotion/Vanicream several times a day. Once isn't enough. Keep it moisturized and soft.

When it swells and weeps, gently wipe with a soft cloth or put dry wash clothes under your arms. Then more lotion.

You may try sleeping with socks on your hands. Cut your nails down, at least.

Jestgar Rising Star
Jestgar
Posted

I have no help to offer, but I am so so sorry. :( That sounds just awful. :( :(

squirmingitch Veteran
squirmingitch
Posted

Awwwwwwwwwww Gluten-Free. I just hate hearing that. I'm so sorry. Monster hugs!

Well, I think Prickly has to be the armpit dh expert. She gives you great advice.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Thanks everyone!!! Prickly, Vanicream really helped. Great stuff! Why would my corn allergy give me DH is what I am wondering. I get it from gluten and now corn..unless I was glutened and blamed it on the corn I drank in the soda. Who knows..Sometimes celiac is a complete mystery as to what made us sick. :huh:

pricklypear1971 Community Regular
pricklypear1971
Posted

I've found many things can trigger DH if the antibodies are there and you are prone to it.

MSG, high salicylates would do it to me in the beginning.

I don't know if you'll see it, but I posted not to use aloe or prickly pear unless you know you don't have a problem with salicylates. That MAY be a problem for you, if your soda was sugar based instead of corn based. I'd think about what sets it off and if it makes sense.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Di2011 Enthusiast
Di2011
Posted

Hi GFreeMO,

My DH has been head to toe for most of the past 10 months and I must say - the arm pits are right up there on the 'worst place to have DH' list. For me it is insanely little itchies !!!

Have you tried the benzocaine products ? It tends to be in mouth/teeth infection products such as chemist/pharmacy quality products. It will give you some temporary relief.

GFreeMO Proficient
GFreeMO
Posted
  • Author

I will check out benzocaine products. Thank you! I will try anything b/c this is unbearable.

Prickly, what are salicylates? I Googled it but I can't really figure it out.

The things that cause me to have a gluten type reaction with the digestive issues and DH are gluten, corn in all forms..citric acid is the worst. Grapes and raisins give me intestinal mucus and DH. Are these things included? Bananas, Advil, Motrin, Orange juice from the store. If I make my own i'm ok. Tea, tomatoes, all vinegar except apple cider.

My DH is getting worse lately. I use to only get in on my knees. Now it's never my knees, it's my elbows and armpits and scalp. I'm one of the lucky celiacs that get the horrible gut pain and DH.

Thanks!

Di2011 Enthusiast
Di2011
Posted

Google sals - until recently I was in denial about sals. They are a complex set of foods to navigate compared to glutens but has been worth the while. Avoiding berry yogurt but not yogurt altogether was a godsend. My early indicators were dried fruit - raisons etc.

btw I also avoid the citric acids, preservatives etc. I have a long way to go figuring it all out but the "acid" in the label I avoid.

As much as love hot / spicy food my GI system does like it. I use a lot of garlic for flavour.

GFreeMO Proficient
GFreeMO
Posted
  • Author

I Googled sals. There is a forum dedicated to it. I react to most of the foods listed. WOW. I never thought of a secondary intolerance like this. I am convinced that I react to sals. The only thing that was listed as high that I don't react to at all is olive oil. Thank God b/c It's the only oil that I can use.

I use a lot of garlic too. I also use lemon and oregano a lot too.

Funny that you mention dried fruits. My first was raisins. I kept think that they were CC with gluten. Now I know...

Thanks so much for helping me figure this out! :)

squirmingitch Veteran
squirmingitch
Posted

We've been having a big discussion about sals here:

https://www.celiac.com/forums/topic/91375-upset-confused-venting-scared-frustrated/

come & read & join us.

GFreeMO Proficient
GFreeMO
Posted
  • Author

I will check that out. Thanks!

GFreeMO Proficient
GFreeMO
Posted
  • Author

Well I thought that it was getting better. Went to bed last night and woke up with it all back again. I haven't worn deodorant in 3 days and today it's suppose to be 90! I thought it was bad when I had knee DH..this armpit stuff is a million times worse.

squirmingitch Veteran
squirmingitch
Posted

Sigh. I'm so sorry to hear that it's getting worse. This stuff is a B&%$#! And there are no magic fixes.

Great big huge ((((HUGS)))) Gluten-Free.

pricklypear1971 Community Regular
pricklypear1971
Posted

DH runs a 2 week course with me. I go through at least a week of the sores swelling and filling at night, popping and drying up in the morning. The swelling starts around 4 pm and goes to 10 pm or so. It's a nightly battle not lose my sanity. During that time it spreads (mine is like a solid net of rash with a rash free bulls-eye in the center of my arm pit).

The second week is generally a scabby week, where I spend a lot of time moisturizing and shedding. Maybe some swelling and popping, but generally not spreading.

pricklypear1971 Community Regular
pricklypear1971
Posted

There should be some sal-free deodorants put there. I'd bet they are unscented, too. Start googling.

I use Dove unscented. I think it's also sensitive skin formula?? I don't know if it's sal free, though.

Aha! Here!

Open Original Shared Link

GFreeMO Proficient
GFreeMO
Posted
  • Author

I have the same. It's like it grows and grows. It's like storm clouds billowing up. Mine happens at night too. It's really bad in the morning. I am really trying to watch the sals.

I have been using an all natural crystal deodorant. I have tried Dove unscented. It made it worse for me. I think it has sweet almond oil and I can't have that..or something like that.

Thanks for the link! I'll check it out.

pricklypear1971 Community Regular
pricklypear1971
Posted

I have the same. It's like it grows and grows. It's like storm clouds billowing up. Mine happens at night too. It's really bad in the morning. I am really trying to watch the sals.

I have been using an all natural crystal deodorant. I have tried Dove unscented. It made it worse for me. I think it has sweet almond oil and I can't have that..or something like that.

Thanks for the link! I'll check it out.

I used the crystal deoderant (spray), but it burned because of the salts so I stopped using that. I actually used a spray version of Sure (or was it Suave) for a while. It was unscented and a spray so I didn't have ro touch the rash (which helped). But it was a bit harsh. I ended up with a Tom's stick that was ok for me but I'm sure it was high sal. Finally, tried the Dove and it worked.

It is very difficult while the rash is active. Everything seems to make it worse and burns like a sob. Ironically enough, shaving my pits (where the rash wasn't so much) helped because it would slough off the scabs. I could only do it every 3 days or so and not when it was in the swelling stage. I would also let cool-ish water run down the pits and rub gently to help get off the dead skin. You'll know when you've done it enough.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Thanks for the tips! So far Vanicream has been the best thing. I have also found that sleeping in something sleeveless like a tanktop helps.

pricklypear1971 Community Regular
pricklypear1971
Posted

Thanks for the tips! So far Vanicream has been the best thing. I have also found that sleeping in something sleeveless like a tanktop helps.

Yes, it does help not to have anything stick to it or seams to rub on it. Though at a certain point I found it safer to sleep with a big (men's xxxxxlarge) v neck t on so I didn't scratch it so easily in the middle of the night. Tgey also made a nice barrier between my skin and the ice packs (which I'd fall asleep with).

Di2011 Enthusiast
Di2011
Posted

What would we have done without the ice pack!

pricklypear1971 Community Regular
pricklypear1971
Posted

What would we have done without the ice pack!

Probably kicked a hole in the wall and then cried about it.

Di2011 Enthusiast
Di2011
Posted

Don't need a hole in the wall for DH to make you cry though huh!?

pricklypear1971 Community Regular
pricklypear1971
Posted

Don't need a hole in the wall for DH to make you cry though huh!?

Nope.

In retrospect I wish DH was a person I could beat down with a baseball bat.

And put the body out in the sun for the ants to eat.

While there was a bit of life left, so it could feel the stings.

Cover it in honey???

I'd watch it squirm while I ate gluten-free chocolate ice cream.

Of course at the time I just wanted the pain to stop...

I must admit, coming back on the board has given me some flashbacks....hmmm, maybe I need another vacation??

Maybe I do need to take up kickboxing???

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.