Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing A Derm. This Week!

CeliacFashionista

Recommended Posts

CeliacFashionista Apprentice
CeliacFashionista
Posted

I will be seeing a derm. this thursday to get a prescription for my DH. I am on a short course of prednisone right and it is helping to clear up my skin in the mean time. I was wondering what prescriptions work best for this condition. My DH breakouts vary on my face from cystic like acne- itching little breakouts on my face and all over my body. I am so desperate at this point to clear them up that I will try anything. I have tried the low iodine diet but it is driving me crazy!!!!!! I really need any advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

The only advice I have is to wean off the prednisone slowly. And by that in mean 2x as slow as your doctor tells you to.

Most people have an immediate DH resurgence after going off steroids.

Dapsone is the usual rx for DH. You need to be monitored when you start, since it can have side effects.

Good luck, and I hope you get some relief.

Di2011 Enthusiast
Di2011
Posted

Have you had the DH biopsy? If you haven't been diagnosed by skin biopsy then you may want to insist on it. Then you know for sure and then dapsone may be an option (there are many side effects and liver etc monitoring required). Get as knowledgable about DH as you possibly can about DH before visiting the Dermatologist. If in doubt ring the clinic and ask if the derm has experience with DH. You may want to save your time and money.

This is the worst case senario kind of actions required but don't be afraid to take control of your own skin.

CeliacFashionista Apprentice
CeliacFashionista
Posted
  • Author

Have you had the DH biopsy? If you haven't been diagnosed by skin biopsy then you may want to insist on it. Then you know for sure and then dapsone may be an option (there are many side effects and liver etc monitoring required). Get as knowledgable about DH as you possibly can about DH before visiting the Dermatologist. If in doubt ring the clinic and ask if the derm has experience with DH. You may want to save your time and money.

This is the worst case senario kind of actions required but don't be afraid to take control of your own skin.

I have not hade a biopsy but I am 100% sure this is DH. My derm. is the type of doctor that believes diet does not cause skin issues so he is clueless about this. However, he will prescribe just about anything I ask for and he is the only doctor that I am sure will prescribe me with what I need.

Di2011 Enthusiast
Di2011
Posted

Let us know how the visit goes. Dapsone is the only recorded medication that helps DH. If is generally said that if it works for you then you have DH. But be VERY careful about Dapsone ... read all the warnings and be sure you get the testing required to ensure it isn't destroying something else. Do your homework. And perhaps some concern about mixing the steriod in you system with another big drug like Dapsone???? Make the derm and your pharmacist do his/her homework before you jump in to this mix.

CeliacFashionista Apprentice
CeliacFashionista
Posted
  • Author

I've finally been prescribed the dapsone after having my blood work cleared. Today is my first day taking it and I still have breakouts despite being on 50mg of prednisone. How long does this stuff take to work. I just want to have a normal face already and not have to spend everyday hiding under a hat!!! Ugh

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,065
    • Most Online (within 30 mins)
      7,748
    SallyHen
    Newest Member
    SallyHen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Vickey Matteson
      Upset stomach

      By Vickey Matteson · Posted

      Hi, recently I've started getting nauseated different times of the day. It doesn't last too long but I can't seem to connect it with anything except maybe I'm hungry? Any ideas? Vickey
    • Natosha
      Should I ask for more testing? Celiac vs. Gluten Sensitivity

      By Natosha · Posted

      Hi! I apologize that this is going to be a long post but I am hoping to gain some insight from anyone who knows more about Celiac than I do. About 1 year ago I started have weird neurological symptoms(numbness/tingling, headaches, dizziness). This led me to a neurologist who found no issues and treated me for migraines and sent me to a hematologist. They hematologist also found no issues but asked me if I had and gastro issues ( i had been having chronic diaherra also) and if I had ever been tested for gluten sensitivity or Celiac disease as alot of my symptoms could be related to issues with gluten. This got me thinking about my 23 and me results that stated I was at a higher risk for developing Celiac ( I had never put much thought into before hand). I started doing a bit more research. I am a carrier of the HLA-DQ8 gene and I have also been a Type 1 diabetic for 14 years. I started eating gluten free right away hoping it would resolve my symptoms and begged my PCP for a celiac panel. I didn't realize that I should have stayed on gluten until the test was done. So I had been eating gluten free for about 3 days before my celiac panel, I did eat a gluten filled breakfast the morning of my blood test. My test results were, TISSUE TRANSGLUTAMINASE ANTIBODIES IGA QUANTITATIVE of <0.5 u/ml and GLIADIN (DEAMIDATED) ANTIBODY IGA QUANTITATIVE of 3.0 u/ml. My PCP told me my results were negative. I asked if he felt I had a gluten sensitivity and he told me that that was more of a "fad" diet and that I could go gluten free if I wanted to. I haven't had gluten in a year but I don't worry too much about cross contamination. I have eaten a few things that have made me very nauseous, bloated, caused diaherra, and vomiting but I'm not sure if it was from gluten or something else. I guess my questions are: do you think that the 3 days of no gluten messed with test results? , should I ask for more testing and if so what?, and would gluten sensitivity cause the same issues as Celiac? Thanks so much!
    • Wheatwacked
      Muscle atrophy in legs

      By Wheatwacked · Posted

      Thanks for bringing this up again.    That week my doctor sent me for a Carotid Artery scan that came back 90% blockage on both sides.  Short story I had a stent put in right carotid artery. Just now getting back to normal from the Anesthesia. Surgery healed well, but it took until the next day to wake up from the anesthesia. A combination of time and B6.  Anesthesia depletes B6, slowing digestion and peristalsis and is also responsible for my freezing cold toes. These are my symptoms.  As a kid I had weak legs.  But now, 10 minute walk and I can barely move my legs.  I blamed it on the sedentary lifesyle from the general pain, and atrophy was to be expected. And with predisone for the pain and Gluten free I expected recovery. With the carotid artery blockage it got me to thinking it is blockage in the Ileac or Celiac arteries.  I might pursue that but the diet is the answer. I would rather not do more surgery if avoidable. Most important.  Every symptom on this list can be the result of a vitamin or mineral deficiency. Particularly B1 and B6, Iodine and choline and vitamin D. Celiac Disease is a disease of malnutrition by malabsorption or even dietary choices.  In the US the commercial bakeries stopped using iodine as a dough conditioner.  From 1970 to 1984 the average american intake of iodine went down 50%. CoQ10 may be beneficial.  It is given to people taking statins to negate the muscle myopathy caused by statins. Inclusion Body Myositis: Unknown Cause: Not Inherited: No Cure: Progressive Muscle Weakness: Asymmetrical Weakness: Distal Muscle Involvement: Swallowing Difficulties (Dysphagia): Muscle Cramps and Pain:  
    • knitty kitty
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By knitty kitty · Posted

      I agree, low carb/no carb is the best way to go.   I follow the Autoimmune Protocol Diet, a ketogenic Paleo diet, for my diabetes and celiac disease.  I keep carbs low.  The AIP diet helps immensely to keep my blood glucose levels in range.  I supplement with Benfotiamine, a form of thiamine, because the pancreas uses lots of thiamine to make insulin and digestive enzymes.  Thiamine deficiency can precipitate diabetes.   Thiamine is needed to turn carbohydrates into energy.  In an effort to ration thiamine if there's insufficient thiamine, the body turns excess carbohydrates into fat and stores it, hense the rise in obesity.  (Our bodies are naturally more efficient at burning fat for fuel.)  Highly processed foods do not contain sufficient vitamins and minerals needed for the body to process them into energy and enzymes necessary for the body to function and grow properly.  This is called High Calorie Malnutrition by Dr. Chandler Marrs and Dr. Derrek Lonsdale (Hiding In Plain Site:Modern Thiamine Deficiency).  Dr. Lonsdale has studied thiamine in children and adults with diabetes and other diseases for decades.  Their website "hormones matter" is very informative.
    • pasqualeb
      Muscle atrophy in legs

      By pasqualeb · Posted

      Might want to see a rheumatologist also, as if this is an autoimmune disease they might be better equipped to to handle and treat. I was finally diagnosed after a biopsy on one of my quads. Condition known as IBM or inclusion body myositis . Good luck  Good luck 
×
×
  • Create New...