Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing A Derm. This Week!

CeliacFashionista

Recommended Posts

CeliacFashionista Apprentice
CeliacFashionista
Posted

I will be seeing a derm. this thursday to get a prescription for my DH. I am on a short course of prednisone right and it is helping to clear up my skin in the mean time. I was wondering what prescriptions work best for this condition. My DH breakouts vary on my face from cystic like acne- itching little breakouts on my face and all over my body. I am so desperate at this point to clear them up that I will try anything. I have tried the low iodine diet but it is driving me crazy!!!!!! I really need any advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

The only advice I have is to wean off the prednisone slowly. And by that in mean 2x as slow as your doctor tells you to.

Most people have an immediate DH resurgence after going off steroids.

Dapsone is the usual rx for DH. You need to be monitored when you start, since it can have side effects.

Good luck, and I hope you get some relief.

Di2011 Enthusiast
Di2011
Posted

Have you had the DH biopsy? If you haven't been diagnosed by skin biopsy then you may want to insist on it. Then you know for sure and then dapsone may be an option (there are many side effects and liver etc monitoring required). Get as knowledgable about DH as you possibly can about DH before visiting the Dermatologist. If in doubt ring the clinic and ask if the derm has experience with DH. You may want to save your time and money.

This is the worst case senario kind of actions required but don't be afraid to take control of your own skin.

CeliacFashionista Apprentice
CeliacFashionista
Posted
  • Author

Have you had the DH biopsy? If you haven't been diagnosed by skin biopsy then you may want to insist on it. Then you know for sure and then dapsone may be an option (there are many side effects and liver etc monitoring required). Get as knowledgable about DH as you possibly can about DH before visiting the Dermatologist. If in doubt ring the clinic and ask if the derm has experience with DH. You may want to save your time and money.

This is the worst case senario kind of actions required but don't be afraid to take control of your own skin.

I have not hade a biopsy but I am 100% sure this is DH. My derm. is the type of doctor that believes diet does not cause skin issues so he is clueless about this. However, he will prescribe just about anything I ask for and he is the only doctor that I am sure will prescribe me with what I need.

Di2011 Enthusiast
Di2011
Posted

Let us know how the visit goes. Dapsone is the only recorded medication that helps DH. If is generally said that if it works for you then you have DH. But be VERY careful about Dapsone ... read all the warnings and be sure you get the testing required to ensure it isn't destroying something else. Do your homework. And perhaps some concern about mixing the steriod in you system with another big drug like Dapsone???? Make the derm and your pharmacist do his/her homework before you jump in to this mix.

CeliacFashionista Apprentice
CeliacFashionista
Posted
  • Author

I've finally been prescribed the dapsone after having my blood work cleared. Today is my first day taking it and I still have breakouts despite being on 50mg of prednisone. How long does this stuff take to work. I just want to have a normal face already and not have to spend everyday hiding under a hat!!! Ugh

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,594
    • Most Online (within 30 mins)
      7,748
    kathleenconley
    Newest Member
    kathleenconley
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.