Angry, All Doctors Are Inept (Here Anyways)

[Cujy]

Well just as suspected I have just come from my doctors office, and now them armed with a confirmed celiac diagnosis, have chosen to ignore my urine sample that states significant crystals and significant bacteria. I am in so much pain (side and back) and I was put on pred and pain killers for a week....basically its all the fault of celiac, stay on the diet and get out!

Rrrrrrrrrrrrrrrrrr................

[frieze]

Well just as suspected I have just come from my doctors office, and now them armed with a confirmed celiac diagnosis, have chosen to ignore my urine sample that states significant crystals and significant bacteria. I am in so much pain (side and back) and I was put on pred and pain killers for a week....basically its all the fault of celiac, stay on the diet and get out!

Rrrrrrrrrrrrrrrrrr................

geesh.....is there an ED you can go to? the crystal part=drink, drink, drink! But if there are truly significant bacteria, why didn't they consider an antibiotic?

[Cujy]

She didn't even mention that....because again I gave them a sample today and it was clear. I said the sediment won't come out till tonight or tomorrow morning. I wonder if I go in with a sore throat, or I can't see if they'll tell me its the celiac too!?!? I should have bypassed the doc and gone to emerg, but then again they'd tell me Im fibbing again like they did last time before the official diagnosis....They did a CT two and half months ago, she said stones would have shown up on that...well this pain only started two weeks ago, and she snarked at me and said that stones dont grow in two weeks!!!! Again I felt about an inch tall and just ran out of there bawling like a baby....I think I must have left some peel marks pulling out of the parking lot I was so angry....guess my anger management problem that I just had today is a result of celiac too.....

[tom]

Snarky health professionals are very professional.

And did the House show give them the go-ahead to treat patients as a buncha liars?

(Not that I don't like the show overall )

Infuriating.

[Cujy]

Tom, I love the show House, its my favorite show in the world....He's a cocky guy, BUT his diagnostics are fabulous. Ive quite often over the last couple months fantasized about meeting with his show consulting team, 18 of the worlds best diagnosticians....ahhh....They'd figure this out I just know they would....We can dream, until then I sit in excrutiating pain wishing all the worlds doctors would take lessons in patient relations!!!!!!!!!!!!

[frieze]

She didn't even mention that....because again I gave them a sample today and it was clear. I said the sediment won't come out till tonight or tomorrow morning. I wonder if I go in with a sore throat, or I can't see if they'll tell me its the celiac too!?!? I should have bypassed the doc and gone to emerg, but then again they'd tell me Im fibbing again like they did last time before the official diagnosis....They did a CT two and half months ago, she said stones would have shown up on that...well this pain only started two weeks ago, and she snarked at me and said that stones dont grow in two weeks!!!! Again I felt about an inch tall and just ran out of there bawling like a baby....I think I must have left some peel marks pulling out of the parking lot I was so angry....guess my anger management problem that I just had today is a result of celiac too.....

the stones (if you have any) could have been growing for at least the 2.5 months since the CT scan. Don't know the average time from start to pain. Is your unrine more concentrated when the sediment occurs? Is it granular, or soft, or mucus? Clean out your diet as much as possible. good luck

[Bubba's Mom]

Tom, I love the show House, its my favorite show in the world....He's a cocky guy, BUT his diagnostics are fabulous. Ive quite often over the last couple months fantasized about meeting with his show consulting team, 18 of the worlds best diagnosticians....ahhh....They'd figure this out I just know they would....We can dream, until then I sit in excrutiating pain wishing all the worlds doctors would take lessons in patient relations!!!!!!!!!!!!

I'm so sorry you're having such a rough time with your Dr. May be time to try a new one?

House is really good at diagnosing..but have you noticed he usually wants to look inside people's brains..no matter what the symptoms? You wouldn't want that! LOL

[quincy]

yeah doctors are clueless sometimes. I went to an endocrinologist in 2006 cause I knew something was wrong and I thought it was low testosterone. He basically ran some blood work and told me I was depressed. If he had checked my vitamin D back then my celiac might have been discovered perhaps 4 years earlier than it was. instead I wound up being given lexapro and xanax and what a night mare that was....

I have had IC symptoms lately as well. have you checked out the IC network for more info?

[Cujy]

Hi all...glad to know I don't feel like a headcase here! My friend keeps telling me to go to emerg, but last time I did that, they kicked me out after trying to kill me by running a bag of morphine over 5 minutes! Oh and called me a liar about me saying there was blood in my BM.

As for changing docs, can't do it here. The system mandates that if you have a doc yer stuck with them unless you move to another province and can't get to your old one, or your old one leaves. Sucks but true.

Today I am suffering from massive back pain, not sure if its related to the kidney thing. I had the white sediment again last night, and it looks like small white bits, almost like running CLR through a coffee machine, just the flakes arn't as big. It looks like white powder and thats what they said is "significant crystals being dumped". I know from other people that stones can develop quick, even over a span of two months. All I asked for was a renal ultrasound, but no one will do it. Because I had the CT 2.5-3 months ago. I also at the same time had an internal ultrasound but they were checking my ovaries, not even sure if they can see my kidneys on that because it dosn't require the fluid intake as does a renal ultrasound.

By IC you mean collitis? Not even sure what the symptoms are, and would they not see that on a colonoscopy which I already had???

The doc asked me yesterday how my diarhea was....I said, WHAT diarhea???? I never ever had that problem or even said anything about it...so she was making stuff up!!!!!!!!! I was never bloated and never had a problem with BM's other then the blood.

I am at a loss....Ill just suffer with the pain rather then feel like an idiot, or a headcase.

[frieze]

Hi all...glad to know I don't feel like a headcase here! My friend keeps telling me to go to emerg, but last time I did that, they kicked me out after trying to kill me by running a bag of morphine over 5 minutes! Oh and called me a liar about me saying there was blood in my BM.

As for changing docs, can't do it here. The system mandates that if you have a doc yer stuck with them unless you move to another province and can't get to your old one, or your old one leaves. Sucks but true.

Today I am suffering from massive back pain, not sure if its related to the kidney thing. I had the white sediment again last night, and it looks like small white bits, almost like running CLR through a coffee machine, just the flakes arn't as big. It looks like white powder and thats what they said is "significant crystals being dumped". I know from other people that stones can develop quick, even over a span of two months. All I asked for was a renal ultrasound, but no one will do it. Because I had the CT 2.5-3 months ago. I also at the same time had an internal ultrasound but they were checking my ovaries, not even sure if they can see my kidneys on that because it dosn't require the fluid intake as does a renal ultrasound.

By IC you mean collitis? Not even sure what the symptoms are, and would they not see that on a colonoscopy which I already had???

The doc asked me yesterday how my diarhea was....I said, WHAT diarhea???? I never ever had that problem or even said anything about it...so she was making stuff up!!!!!!!!! I was never bloated and never had a problem with BM's other then the blood.

I am at a loss....Ill just suffer with the pain rather then feel like an idiot, or a headcase.

I am wondering if the IC she is referring to would be interstitial cystitis?

[Cujy]

I have an ovarian cyst but its not the "bad" kind of thats what IC means??? Sorry Im slow! LOL

[quincy]

I have an ovarian cyst but its not the "bad" kind of thats what IC means??? Sorry Im slow! LOL

IC means Interstitial Cystitis, its a condition where the mucous lining of the bladder breaks down and causes burning, frequency and urgency of urination.

it sounds like if sediment is being released then it is something different than IC. They say that taking magnesium supplements or having a multi vitamin with magnesium will help with the calcification in the kidneys, bladder etc. has anyone else heard of this?

I go on IC-Network as many people with Celiac also have IC.