Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Problems


twe0708

Recommended Posts

twe0708 Community Regular

What do you keep your TSH level at? I know there are new ranges and I am just wondering if other go by the new ranges or the old ranges and if so, how do you feel?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Tsh ranges fluctuate, so I just kind of get what I get.

Most good docs want it around the 1's.

My ND monitors free t3/t4 and prescribes my rx by those levels. My other doc watched tsh and wanted it down from 5's to 1's regardless of t3/t4.

Last time tsh was 8+, which was an all-time high but t3/t4 was on spot. We don't really know what happened on that one. I'm on a decent dose of rx now - doubling it to drop tsh (which may drop anyway) was a bit extreme, we thought. I'm in a wait-and-see pattern.

nmull #newly diagnosed Newbie

I have had problems with my Doctors and labs still using the old tsh ranges. I know what I feel the best at and it is 2 or below. They have had me so up and down taking me off my meds for 6mths. They Just put me back on them because I was right at 5. I wish all the doctors would adjust to the new ranges and I wouldn't have been miserable for 6mths or longer with all the symptoms. I have been gluten free almost 4mths now so I am Hoping it will keep my levels from fluctuating so much

Good luck :)

beachbirdie Contributor

What do you keep your TSH level at? I know there are new ranges and I am just wondering if other go by the new ranges or the old ranges and if so, how do you feel?

It's a little-known secret that TSH can vary several points during the day. I do not manage my thyroid by TSH but by symptoms, and Free Thyroid Hormone levels. I am generally suppressed, with a TSH averaging .03.

TSH is NOT a thyroid hormone and if you are taking thyroid meds your docs should manage your dose using Free T3 and Free T4 because the supplemented hormone messes up the TSH-thyroid gland feedback loop. T3 and T4 are the main thyroid hormones your body needs (there are others but T3 and T4 are most prominent).

T4 is the "reserve" hormone which is stripped of an iodine atom to create T3. T3 is the active form of hormone picked up by receptors to be used by your cells.

I do not feel well with my TSH even in the "new normal" ranges. If my TSH goes up to 2.0 or over, I feel lousy.

quincy Contributor

It's a little-known secret that TSH can vary several points during the day. I do not manage my thyroid by TSH but by symptoms, and Free Thyroid Hormone levels. I am generally suppressed, with a TSH averaging .03.

TSH is NOT a thyroid hormone and if you are taking thyroid meds your docs should manage your dose using Free T3 and Free T4 because the supplemented hormone messes up the TSH-thyroid gland feedback loop. T3 and T4 are the main thyroid hormones your body needs (there are others but T3 and T4 are most prominent).

T4 is the "reserve" hormone which is stripped of an iodine atom to create T3. T3 is the active form of hormone picked up by receptors to be used by your cells.

I do not feel well with my TSH even in the "new normal" ranges. If my TSH goes up to 2.0 or over, I feel lousy.

my labcorp score is 3.47. I really know nothing about thyroid issues but I will be getting a test soon for t4 and t3 and reverse t3 so I don't know what those scores are yet. any help here would be much appreciated.

Skylark Collaborator

my labcorp score is 3.47. I really know nothing about thyroid issues but I will be getting a test soon for t4 and t3 and reverse t3 so I don't know what those scores are yet. any help here would be much appreciated.

3.47 is over the new recommended range of 0.5-2.5 or 3.0. I bet you're tired. I feel bad if my TSH is over 2.0 and that's "normal".

beachbirdie Contributor

my labcorp score is 3.47. I really know nothing about thyroid issues but I will be getting a test soon for t4 and t3 and reverse t3 so I don't know what those scores are yet. any help here would be much appreciated.

I agree with Skylark. Your TSH is a little higher than the level at which most thyroid patients report feeling okay. Hopefully your T3 and T4 tests will be revealing.

It is good that your doctor is looking at your reverse T3. Docs don't usually do that. Reverse T3 is created when the "wrong" iodine atom is stripped from the T4 molecule, and the chemical structure looks like a mirror image of the regular T3. What happens then is, the thyroid receptors in your cells don't recognize it and can't use it for metabolism. Kind of like a polarized electrical plug that can only go into the receptacle one way.

When your body does this, and it can do it for many reasons, you have "thyroid hormone resistance". Too many docs won't even acknowledge the condition exists. It causes you to feel hypothyroid even with normal lab numbers, and will get you a diagnosis like "fibromyalgia" if you are lucky, "all in your head" or "it can't be your thyroid,your TSH is normal" if you are not lucky.

You don't want to look at the straight RT3 number, rather you want to look at your reverse T3 ratio. That is found by dividing your T3 measurement by your reverse T3 measurement. If your T3 is a "total T3" (the lab sheet will tell you) your ratio should be around 10 or less. If your T3 is the "free T3" you will want a ratio of 20 or less.

EDITED TO ADD: Be sure the T3 and Reverse T3 you are using in your calculation are using the same unit of measurement or your numbers won't work! And be sure they are using results from the same blood draw.

There are many reasons the body creates reverse T3, it's pretty complicated. You can Google it and find out more. If you have it, there is a Yahoo group that could be some help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



quincy Contributor

I agree with Skylark. Your TSH is a little higher than the level at which most thyroid patients report feeling okay. Hopefully your T3 and T4 tests will be revealing.

It is good that your doctor is looking at your reverse T3. Docs don't usually do that. Reverse T3 is created when the "wrong" iodine atom is stripped from the T4 molecule, and the chemical structure looks like a mirror image of the regular T3. What happens then is, the thyroid receptors in your cells don't recognize it and can't use it for metabolism. Kind of like a polarized electrical plug that can only go into the receptacle one way.

When your body does this, and it can do it for many reasons, you have "thyroid hormone resistance". Too many docs won't even acknowledge the condition exists. It causes you to feel hypothyroid even with normal lab numbers, and will get you a diagnosis like "fibromyalgia" if you are lucky, "all in your head" or "it can't be your thyroid,your TSH is normal" if you are not lucky.

You don't want to look at the straight RT3 number, rather you want to look at your reverse T3 ratio. That is found by dividing your T3 measurement by your reverse T3 measurement. If your T3 is a "total T3" (the lab sheet will tell you) your ratio should be around 10 or less. If your T3 is the "free T3" you will want a ratio of 20 or less.

EDITED TO ADD: Be sure the T3 and Reverse T3 you are using in your calculation are using the same unit of measurement or your numbers won't work! And be sure they are using results from the same blood draw.

There are many reasons the body creates reverse T3, it's pretty complicated. You can Google it and find out more. If you have it, there is a Yahoo group that could be some help.

thanks for your information, it seems my doctor (functional medicine) mentioned what you mentioned here about ratios. My testosterone has gone steadily down over the last several months. I had gained alot of weight and my bone density is low, plus I have low ferritin.

my doctor gave me Calcium D-Glucarate and Thyroid Synergy by a company called Designs for Health ( I am not employed by them) to help me. Fatigue, low energy, irrational fears, anxiety, weight gain. this must all be thyroid related. I am hoping I can bring down estrogen and feel better or the next step is bio identical HRT.

and yes skylark, I am tired. I work 2 jobs and I am completely wiped out every day. I almost sometimes wonder if I can make it through the days anymore. I just wanna sleep or rest on the couch. I am glad I lost 16 pounds by cutting out most carbs so I at least feel better that i can fit into my jeans now!! Funny because the endocrinologist I went to said nothing about my TSH numbers being too high, it was my function medicine internist who did not like the numbers and took action. Celiac is far reaching in the body, wow.

Jenny (AZ via TX) Enthusiast

My TSH level is always below 1. My doctor does not really look at TSH, but looks at the Free T3 and Free T4 numbers. I feel best when my Free T3 is towards the upper end of the range and my Free T4 is towards the middle.

quincy Contributor

My TSH level is always below 1. My doctor does not really look at TSH, but looks at the Free T3 and Free T4 numbers. I feel best when my Free T3 is towards the upper end of the range and my Free T4 is towards the middle.

I am wondering why my TSH has consistently been 3.47 and the endocrinologist NEVER said there was anything wrong with that number?? Is it because I am a male?

it sounds like a stupid rhetorical question, but I am stumped. In fact, NONE of my doctors, GI, or GP ever said anything about it. The only one who raised a flag was my integrated medicine internist. I just always assumed since the number was below 4 on the labcorp range I was ok....

pricklypear1971 Community Regular

I am wondering why my TSH has consistently been 3.47 and the endocrinologist NEVER said there was anything wrong with that number?? Is it because I am a male?

it sounds like a stupid rhetorical question, but I am stumped. In fact, NONE of my doctors, GI, or GP ever said anything about it. The only one who raised a flag was my integrated medicine internist. I just always assumed since the number was below 4 on the labcorp range I was ok....

It's not just because you're male. They do it to everybody.

I would say they're less likely to even test it if you're male, though...

quincy Contributor

It's not just because you're male. They do it to everybody.

I would say they're less likely to even test it if you're male, though...

I always heard of women complaining of thyroid problems so maybe they just don't want to bother unless the number is above the "normal" range. Every time I would take the testosterone test the number would come back lower and lower, and I have to wonder how low does it have to be before they suggest

something is wrong.... I really think these doctors think celiac is just a stomach ache!!!!

pricklypear1971 Community Regular

I always heard of women complaining of thyroid problems so maybe they just don't want to bother unless the number is above the "normal" range. Every time I would take the testosterone test the number would come back lower and lower, and I have to wonder how low does it have to be before they suggest

something is wrong.... I really think these doctors think celiac is just a stomach ache!!!!

I am starting to think they don't know how to interpret labs and "think". My ND is great at thinking about the labs. Thankfully.

And statistically thyroid problems are higher in women than men. I have no idea what's up with ignoring the dropping testosterone.

  • 2 months later...
quincy Contributor

I am starting to think they don't know how to interpret labs and "think". My ND is great at thinking about the labs. Thankfully.

And statistically thyroid problems are higher in women than men. I have no idea what's up with ignoring the dropping testosterone.

Its been awhile since I posted on this thread, so maybe someone will pick up on it. My recent labs showed my TSH down to 2, and if based on how i feel is an indicator, the thyroid supplement I was taking has worked. I don't feel as tired anymore, my weight is down to a more comfortable and healthy range for me and I don't feel as depressed or low as I used to.

I don't have my numbers, but my T3, T4, and reverse T3 and ratios were normal.

I recently had a saliva test to check cortisol in the morning and there was barely a reading. Mornings are the worst for me. my cortisol level was .3, barely on the chart. does anyone have any knowledge of such a bad cortisol number and how I get that to go up?

Skylark Collaborator

Try this article on thyroid and adrenals. Maybe it will help. :)

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.